Could I be in remission : Hi everyone I have been on... - NRAS

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Could I be in remission

Frankiefocus profile image
38 Replies

Hi everyone

I have been on here now a few years winging about my RA and getting great advice but good news this time. I did get a steroid shot in December on my left shoulder as the doc thinks I have tendon damage although my RA consultant thinks this pain is due to my RA' anyway I did also start my new biologics (40mg Adalimumab taken every two weeks) in January as well and the thing is all and I mean all my RA pains are now gone. So I do not know if it was the steroids shot or the new biologics but it feels like Im in remission. I usually have swelling in the knuckles, knees, painful jaw, dry eyes a lot of fatique....all gone. What do you guys think? is this just a wee holiday remission period for me?

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Frankiefocus profile image
Frankiefocus
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38 Replies
snotts profile image
snotts

I will cross my fingers toes and eyes for remission for you! My friend's dad had relentless RA from the age of 20, then started rituxan in 2006 and has been in remission ever since. He's now 80 and carves and builds furniture and goes on walking holidays. Makes me hopeful!

snotts profile image
snotts in reply to snotts

Which biologic have you started? I'm still trying to find the magical treatment for me

Madmusiclover profile image
Madmusiclover in reply to snotts

Don’t give up!

Frankiefocus profile image
Frankiefocus in reply to snotts

40mg Adalimumab taken every two weeks

Twitty999 profile image
Twitty999 in reply to snotts

Me too!!… Rituximab has given me my life back! 🤗

Boxerlady profile image
Boxerlady

Great news - enjoy!

Madmusiclover profile image
Madmusiclover

I doubt it’s the steroid working so long after the event. You never know! Long May your relief last. I had 2 months ‘off’ this time last year. Rest of the time I’d say I’m at 60% relief. Awaiting new hip and mri on knees so with osteo in the mix it’s never going to be perfect….Hurrah for you!

Gnarli profile image
Gnarli

Whatever it may be I'd be thanking all that's good and yelling yipee! I'm so glad to hear that you're feeling so good and long may it last

Frankiefocus profile image
Frankiefocus

Thanks for the lovely responses I will add since diagnosed RA 4 years ago I changed my diet by cutting down on dairy, processed food, and I take daily omega 3 and turmeric/curcumin.

Lolabridge profile image
Lolabridge

Good news! I would call it well-controlled RA rather than remission. It sounds as though the Adalimumab is working well for you and long may it do so!

Deeb1764 profile image
Deeb1764

Keeping my toes sort of crossed from RA for you in remission. How lovely take the time to enjoy it x

springcross profile image
springcross

I really hope it's remission and if so, long may it continue. 🤞

Miasnana profile image
Miasnana

I have just got off the phone as I’ve been organising my first delivery of adalimumab for next week and I also needed a steroid injection last Friday to deal with a really bad flare. Your post has given me a hope that things could be looking up, I know everyone responds differently but good result stories give hope. Thank you

helixhelix profile image
helixhelix

Sounds like this could be the one for you! Enjoy - but don’t overdo it straight away!!

Mmrr profile image
Mmrr

You might just have found your med best wishes to you. Enjoy.

Katie-Mag profile image
Katie-Mag

Great news Frankie! Adalimumab has also worked wonderfully for me too (for the last 12 months).

Ros23 profile image
Ros23

Yes it feels like remission but as my consultant told me it’s the biologicals doing their job and not to be tempted to come off them, I on on imraldi and it has been great 👍

CagneysMum profile image
CagneysMum

Amgevita (adalimumab) has worked in much the same way for me since I started it 18 months ago 👍 I still also take methotrexate and hydroxychloroquin but will slowly start to reduced these over the next couple of years all being well. Fantastic to find something that works like this isn’t it ? 😁

Hurrah, excellent news, what will you do first, go hiking, dancing, cycling, gardening,,,,,,, you must be so excited 😃

Frankiefocus profile image
Frankiefocus in reply to

Over the moon thanks 😀

stbernhard profile image
stbernhard

Take as a very good sign that your medication is working and you're in remission. It's early days, so please don't go and exhaust yourself by doing too much at anyone time. It's very much worth keeping to a patient steady build up of energy and strength. I am very happy for you. I remember the wonderful feeling when I went into remission.

Evie3 profile image
Evie3

Sounds like the Adalimumab is working for you….long may it last 🙏

HamHammy profile image
HamHammy

Great news. Enjoy but do so steadily. Can I ask please is adalimumab by injection?

Emye343 profile image
Emye343 in reply to HamHammy

It is, once every two weeks. X

HamHammy profile image
HamHammy in reply to Emye343

Thank you 😊

Frankiefocus profile image
Frankiefocus in reply to HamHammy

Injection every two weeks

HamHammy profile image
HamHammy in reply to Frankiefocus

Thank you 😊

Vixen2 profile image
Vixen2

Great news. I used to love a tv ad for voltarol gel. An old woman was boogying on the dance floor! Get boogying & dance like no one’s watching!!!

Garnacha profile image
Garnacha

Oh how amazing 🥰 really hope it continues, your post gives me optimism that there could be light at the end of the tunnel, I too suffer with dry eyes I look like I'm constantly crying 🤣 & the fatigue 😩 even when the pain is slightly under control the side effects of the drugs make me feel bleurghhhh, hope I get lucky with meds x

Jollyjill profile image
Jollyjill

This is wonderful! I too have been symptom free for some time but please proceed cautiously! You & your doctor will assess whether or not you meet certain criteria over a period of time. These criteria are used by scientists when conducting clinical trials. Your rheumatologist may use these or slightly different measures to determine if your disease is in remission:* One or fewer swollen joints

* One or fewer tender joints

* An assessment by the patient that on a 0–10 scale, arthritis activity is 1 or less

* A blood test showing little or no inflammation in levels of C-reactive protein, a key marker of inflammation

Then they might suggest tapering the dose of meds you take gradually before going cold turkey! I do hope you continue improving! All the best!

oldtimer2 profile image
oldtimer2

Remission really means that your disease has gone away(at least for now). It sounds as if you are responding successfully to treatment with adalumimab. Me too! And isn't it a marvellous feeling! Unfortunately it also means that you need to continue with the treatment. But giving yourself an injection every two weeks, even if it is slightly painful as it goes in, is SO much better than the constant pain and feeling awful all the time. I've started being able to do things that I couldn't do for ages as well.

Ritaritis profile image
Ritaritis

Hope your remission contines for a long, long time.🐈🐈

andy7551 profile image
andy7551

Great news , but keep up with the healthy eating, I regretted it when I went back to eating junk!

Paisley58 profile image
Paisley58

Fingers, toes, eyes and anything else I can get crossed that remission is definitely happening for you. Very happy and sending you an infinite amount of good vibes😀

Frankiefocus profile image
Frankiefocus

Thank you all soo much for your lovely responses, I shall keep you posted on my progress.

vonniesims profile image
vonniesims

Oh! I feel encouraged .I started on Adalumimab 6 weeks ago and I think it's beginning to work.

Pitbull2017 profile image
Pitbull2017

It's good you are feeling better but far to early to say remission, I've been a RA suffer for over 30 years, now have a deformed right hand arms won't completely straighten lump on ankle the size of a egg, but for nearly 4 years now no pain or discomfort my blood test are good and I've been told by my consultant I'm in remission, I put that down to methotrexate and enbrel, I play golf 3 times a week that's walking a tough course no buggy, I now live a perfectly normal life.

PMRGCA19 profile image
PMRGCA19

Delighted for you. Long may it continue.

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