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another quick update
I am now back home . My gall bladder has calmed down so the plan is to have it removed in next 10 weeks ( that’s the waiting time ) My biggest concern now is that the CT scan I had on Monday has revealed a 5cm mass in my stomach. I am awaiting a CT biopsy which my haematologist has requested as
I am now back home . My gall bladder has calmed down so the plan is to have it removed in next 10 weeks ( that’s the waiting time ) My biggest concern now is that the CT scan I had on Monday has revealed a 5cm mass in my stomach. I am awaiting a CT biopsy which my haematologist has requested as
Hilo13
in
CLL Support
6 months ago
another iron infusion? and low ALT level
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
daisydaisy26
in
Restless Legs Syndrome
2 months ago
Fatigue after eating. Ibs
Hi, I have long term fibro. Pain, ibs, fatigue etc.I suffer with bloating, constipation and fatigue which follow most meals especially after breakfast when I have to wait often up to 2 or more hours before fatigue gradually goes although it is longer lasting lately. Food does seems to affect me less
Hi, I have long term fibro. Pain, ibs, fatigue etc.I suffer with bloating, constipation and fatigue which follow most meals especially after breakfast when I have to wait often up to 2 or more hours before fatigue gradually goes although it is longer lasting lately. Food does seems to affect me less
E3178
in
IBS Network
2 months ago
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Sulfasalazine
My rheaumatolgist changed my sulfasalazine to sulfasalazine En-tabs because I thought it was them that were upsetting my stomache I have been on E-tabs for a month now I'm feeling sick and loads of gas ,what I'm wondering is can the En tabs still upset the stomache or not maybe it wasn't them in the
My rheaumatolgist changed my sulfasalazine to sulfasalazine En-tabs because I thought it was them that were upsetting my stomache I have been on E-tabs for a month now I'm feeling sick and loads of gas ,what I'm wondering is can the En tabs still upset the stomache or not maybe it wasn't them in the
Alice70
in
NRAS
2 months ago
diverticulosis
well after 10 months of many laxatives for chronic constipation, 8 months since an X-ray showed considerable faecal loading, I finally had a colonoscopy! The diagnosis is Diverticulosis. Fantastic that the diagnosis wasn’t cancerous, nevertheless, it doesn’t help the abdominal and back pain that
well after 10 months of many laxatives for chronic constipation, 8 months since an X-ray showed considerable faecal loading, I finally had a colonoscopy! The diagnosis is Diverticulosis. Fantastic that the diagnosis wasn’t cancerous, nevertheless, it doesn’t help the abdominal and back pain that
Laxido21
in
IBS Network
2 months ago
mucus
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
devon29
in
Lung Conditions Community Forum
2 months ago
Why taking anti-inflammatories including Pred could lead to a stomach ulcer
Dr Mark Porter who is a working GP writes most weeks in The Times. The link to today's article is below because he mentions steroids as well. I hope it opens. If it doesn't I can cut a paste the parts of interest. https://www.thetimes.com/article/184977ba-beb6-4db5-ad10-62e8fbb57add?shareToken=caa43823ee68fa182865e92faa5502b2
Dr Mark Porter who is a working GP writes most weeks in The Times. The link to today's article is below because he mentions steroids as well. I hope it opens. If it doesn't I can cut a paste the parts of interest. https://www.thetimes.com/article/184977ba-beb6-4db5-ad10-62e8fbb57add?shareToken=caa43823ee68fa182865e92faa5502b2
Motida
in
PMRGCAuk
2 months ago
CA125 rising steadily
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Norelo8
in
My Ovacome
2 months ago
A warrior’s journey, QOL, wisdom?
From initial diagnosis through every lab test, imaging study, and treatment decision, this journey took enormous physical, emotional and spiritual fortitude. No matter the course or the length, hold your loved ones close, continue to plan adventures, and never give up hope. My husband used to say “
From initial diagnosis through every lab test, imaging study, and treatment decision, this journey took enormous physical, emotional and spiritual fortitude. No matter the course or the length, hold your loved ones close, continue to plan adventures, and never give up hope. My husband used to say “
MaxWife
in
Advanced Prostate Cancer
6 months ago
Upper left pain …gastro update
Just a quick update which hopefully helps others. I’ve just had an upper endoscopy and this showed mild gastritis. I’m very fortunate to have a great NHS doctor who listened to my concerns and supported me gaining assurances that there is nothing seriously wrong. I’ve still got the upper left quarter
Just a quick update which hopefully helps others. I’ve just had an upper endoscopy and this showed mild gastritis. I’m very fortunate to have a great NHS doctor who listened to my concerns and supported me gaining assurances that there is nothing seriously wrong. I’ve still got the upper left quarter
Dh19
in
IBS Network
2 months ago
Anecdotal, but running could boost immunity
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
PeggySusi
Graduate
in
Couch to 5K
6 months ago
additional comments on second pathology
Hello, I just received additional comments on second opinion surgical pathology. I was wondering if you can provide feedback because I don’t understand. I am seeing PA on Friday so I need to ask the right questions. Please help me understand this. I have Gleason 3+4 (40% 4) plus intraductal. Negative
Hello, I just received additional comments on second opinion surgical pathology. I was wondering if you can provide feedback because I don’t understand. I am seeing PA on Friday so I need to ask the right questions. Please help me understand this. I have Gleason 3+4 (40% 4) plus intraductal. Negative
Granolaberry
in
Prostate Cancer Network
6 months ago
Could Gluten Intolerance lead to RLS?
After watching the video about what can cause Parkinson’s that was posted on this website, I started thinking about inflammation, and inflammation of the body and gut. I found this website from the gluten free society who have found correlation between gluten and rls. My husband who has had RLS for
After watching the video about what can cause Parkinson’s that was posted on this website, I started thinking about inflammation, and inflammation of the body and gut. I found this website from the gluten free society who have found correlation between gluten and rls. My husband who has had RLS for
Sandalsforever
in
Restless Legs Syndrome
3 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
6 months ago
In vivo: nanocarriers to deliver precision chemotherapy
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
Maxone73
in
Advanced Prostate Cancer
6 months ago
Adenmyosis and Constipation
I found out recently that adenmyosis can cause bad bouts of constipation, which explains a lot for me. However all the dr’s do is plug me with laxitives and tell me to eat prunes (which I have explained doesn’t help) because (and I apologise if this is TMI) my stools aren’t hard, it’s not a fibre intake
I found out recently that adenmyosis can cause bad bouts of constipation, which explains a lot for me. However all the dr’s do is plug me with laxitives and tell me to eat prunes (which I have explained doesn’t help) because (and I apologise if this is TMI) my stools aren’t hard, it’s not a fibre intake
SmallTalk
in
Endometriosis UK
3 months ago
Accuracy of PSMA PET scan?
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
Adendino
in
Advanced Prostate Cancer
6 months ago
Be your own case manager
I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well controlled but I was not thriving as such and Nov 23 showed a new symptom - eye inflammation. Basically I read about a study in Birmingham where a
I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well controlled but I was not thriving as such and Nov 23 showed a new symptom - eye inflammation. Basically I read about a study in Birmingham where a
SCMW
in
Behçet's UK
3 months ago
Post laparotomy
Hello dear ladies, I am 5 days post my debulking surgery which went quite well. So far I have not had major issues… except bowel problems. Now they are talking about post op ileus or intestinal paralysis. Has anyone experienced this complication? What was done to treat it
Hello dear ladies, I am 5 days post my debulking surgery which went quite well. So far I have not had major issues… except bowel problems. Now they are talking about post op ileus or intestinal paralysis. Has anyone experienced this complication? What was done to treat it
Lara1
in
My Ovacome
3 months ago
Flagyl ( Metronidazole) Side Effects
Hi my friends, I was given Flagyl to treat my digestive system after an episode of food poisoning but this medicine caused a lot of annoying side effects like heartburn and bloating. Did any one had this medicine and how did you feel. Many thanks
Hi my friends, I was given Flagyl to treat my digestive system after an episode of food poisoning but this medicine caused a lot of annoying side effects like heartburn and bloating. Did any one had this medicine and how did you feel. Many thanks
Shoosh_kw
in
IBS Network
3 months ago
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