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Finally got an endocrinology appointment
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
unlucky-angler
in
Thyroid UK
6 months ago
Covid and Blood Tests
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
SilverSavvy
in
Thyroid UK
6 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
3 months ago
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Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
lankisterguy
Volunteer
in
CLL Support
6 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
6 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
3 months ago
Bile acid malabsorption
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
Netbet22
in
IBS Network
3 months ago
Mouthwash
I am on 320 of alvesco a day at present along with fostair mart taken with my trusty aero chamber. I was on 640 of alvesco, however for the first time I was starting to get some irritations from this, mild oral thrush, joint pain, weight gain and some odd eye issues. So my consultant said to drop
I am on 320 of alvesco a day at present along with fostair mart taken with my trusty aero chamber. I was on 640 of alvesco, however for the first time I was starting to get some irritations from this, mild oral thrush, joint pain, weight gain and some odd eye issues. So my consultant said to drop
Homely2
Administrator
in
Asthma Community Forum
3 months ago
Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
6 months ago
Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
6 months ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
6 months ago
rubella immunity blood tests
Hi I’m about to start another round of IVF after 7 cancelled transfers and 3 failed but using a new clinic. My blood tests have come back that I don’t have a rubella immunity but I have checked my results from my IVF cycle in 2020 which blessed me with my son and my pregnancy results and I did have an
Hi I’m about to start another round of IVF after 7 cancelled transfers and 3 failed but using a new clinic. My blood tests have come back that I don’t have a rubella immunity but I have checked my results from my IVF cycle in 2020 which blessed me with my son and my pregnancy results and I did have an
Chowlady14
in
Fertility Network UK
3 months ago
Tirosint
Hi, I posted earlier about Tirosint in Gel capsules possibly giving me a rash. I stopped taking them 4 weeks ago and the rash continues. Not as bad but still all down my legs and arms. My question. Can it take so long to leave the body? Or am I blaming the wrong thing for my rash? Blood tests were
Hi, I posted earlier about Tirosint in Gel capsules possibly giving me a rash. I stopped taking them 4 weeks ago and the rash continues. Not as bad but still all down my legs and arms. My question. Can it take so long to leave the body? Or am I blaming the wrong thing for my rash? Blood tests were
jand123
in
Thyroid UK
3 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
3 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
6 months ago
Started peginterferon alpha 2a treatment
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Purplechoclover
in
MPN Voice
3 months ago
When to restart Biologics after Covid Infection
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Intheend
in
NRAS
6 months ago
Has anyone gone from Pegasys to Besremi?
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
ET625
in
MPN Voice
3 months ago
Mouth Ulcers and Taste issue
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
BigH63
in
ICUsteps
6 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
3 months ago
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