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Equivocal Dsdna
hi, I was diagnosed with SLE in 2022 and have had positive and negative antibody results since this time but my most recent test came back as equivocal which is a first for me. I’m on Benlysta monthly infusions which has massively dampened down my symptoms. Has anyone had this equivocal result and could
hi, I was diagnosed with SLE in 2022 and have had positive and negative antibody results since this time but my most recent test came back as equivocal which is a first for me. I’m on Benlysta monthly infusions which has massively dampened down my symptoms. Has anyone had this equivocal result and could
Mooncat111
in
LUPUS UK
29 days ago
Hand, Foot & Mouth
Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M last year.Unfortunately I caught it from them & it was a nightmare. Because of the thickness of my skin due to SS, the spots & sores could not break out on the surface of my skin. They errupted below the skin on my hands
Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M last year.Unfortunately I caught it from them & it was a nightmare. Because of the thickness of my skin due to SS, the spots & sores could not break out on the surface of my skin. They errupted below the skin on my hands
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Sjorgren syndrome
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Pippapot
in
MPN Voice
1 month ago
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RA got worse after pneumonia
After pneumonia my ra took a turn for the worse. Could a medicine change help
After pneumonia my ra took a turn for the worse. Could a medicine change help
Vonnie69
in
NRAS
1 month ago
Help with steroid induced hyperglycaemia
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
AmberGamble
in
PMRGCAuk
1 month ago
Confused! Adhesiolysis or Hysterectomy or Mirena!
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
TallulaShark
in
Endometriosis UK
1 month ago
Schwannomatosis NF3 and AZ Covid 19 vaccines finally out of system after 3 years
Good news for a change? My left arm has been tingling for about the last 6 weeks, shaking, even in sleep I have to put it under the pillow, so I can sleep, this afternoon watching TV, 1st Feb, lower left arm slightly warm twitching as per usual, I lost patience with it and severely hit back of hand
Good news for a change? My left arm has been tingling for about the last 6 weeks, shaking, even in sleep I have to put it under the pillow, so I can sleep, this afternoon watching TV, 1st Feb, lower left arm slightly warm twitching as per usual, I lost patience with it and severely hit back of hand
Adlon57
in
Healthy Evidence
5 months ago
Azithromycin
Discharged recently from hospital after a long period of exacerbations and then pneumonia. After weeks of oral antibiotics and steroids had to have IV antibiotics. Next time I will probably have to begin IV immediately on flare up. I take 250 mg Azithromycin 3 times a week and was wondering does any
Discharged recently from hospital after a long period of exacerbations and then pneumonia. After weeks of oral antibiotics and steroids had to have IV antibiotics. Next time I will probably have to begin IV immediately on flare up. I take 250 mg Azithromycin 3 times a week and was wondering does any
kenta
in
Lung Conditions Community Forum
1 month ago
ToeNail fungus treatment and Methotrexate
I’ve recently been recommended Curanail by my footcare practitioner for a toe nail fungus condition. I wondered if any one has used this while taking weekly methotrexate, and sometimes Naproxen.My blood test results are all fine and RA is well controlled atm. Looking at the instructions it can take
I’ve recently been recommended Curanail by my footcare practitioner for a toe nail fungus condition. I wondered if any one has used this while taking weekly methotrexate, and sometimes Naproxen.My blood test results are all fine and RA is well controlled atm. Looking at the instructions it can take
L-ttie
in
NRAS
1 month ago
RSV vaccine?
Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid last September and hoping that immunity is going to last awhile. As always, so appreciate the advice on this great site.
Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid last September and hoping that immunity is going to last awhile. As always, so appreciate the advice on this great site.
Spartans1
in
PMRGCAuk
5 months ago
Covid free test kit for - Certain Vulnerable People from the Government website link.
Covid free test kit for - Vulnerable People from Government. Good afternoon everyone. Can someone tell me please when the Government stopped send out Covid test kit for vulnerable people? I used to qualify for these and have a box sent to me when requested because I have no immune system. The link
Covid free test kit for - Vulnerable People from Government. Good afternoon everyone. Can someone tell me please when the Government stopped send out Covid test kit for vulnerable people? I used to qualify for these and have a box sent to me when requested because I have no immune system. The link
Joseph260268
in
Lung Conditions Community Forum
5 months ago
Thyroid/post viral fatigue/perimenopause/CFS - help!
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Dahliasanddaisies
in
Thyroid UK
5 months ago
Night Terrors
Good morning everyone, I last posted about my night terrors , so I visited my doctor who changed the 30mg lansoprazole I was taking to 20 Esomeprazole but unfortunately still getting the disturbing night terrors feel so upset this morning the nightmare was so bad last night I was too scared to go
Good morning everyone, I last posted about my night terrors , so I visited my doctor who changed the 30mg lansoprazole I was taking to 20 Esomeprazole but unfortunately still getting the disturbing night terrors feel so upset this morning the nightmare was so bad last night I was too scared to go
lmpieroni
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Can LDN help with Long Covid?
Can LDN help with Long Covid? Answered by Pharmacist Stephen Dickson, LDN Specialist Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed with information on Low Dose Naltrexone (
Can LDN help with Long Covid? Answered by Pharmacist Stephen Dickson, LDN Specialist Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed with information on Low Dose Naltrexone (
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Sepsis - a timely reminder
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
bennevisplace
in
CLL Support
1 month ago
Covid teens
It may have been there before covid, but if it was it was very well hidden. I have two great kids, son and daughter. One was a senior during Covid, and the other was in 10th grade. We will start with seniors story. Needless to say no senior year enjoyment, and then went off to college and his first year
It may have been there before covid, but if it was it was very well hidden. I have two great kids, son and daughter. One was a senior during Covid, and the other was in 10th grade. We will start with seniors story. Needless to say no senior year enjoyment, and then went off to college and his first year
bobo9876
in
Anxiety and Depression Support
5 months ago
Cancer sufferer T3 below range, T4 50%, TSH 1.6 advice
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Sleepman
in
Thyroid UK
5 months ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
1 month ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
LeoTravels
in
MPN Voice
1 month ago
My going out again after having covid Indeed
My name is John Stefan and I am from London. I do Live in Peterborough and I am at the moment planning to start going out again with my family. But I have not been out with my family since we had Covid - 19 Last summer in the August Summer Break in 2023. But I have a question now to ask. Should Me and
My name is John Stefan and I am from London. I do Live in Peterborough and I am at the moment planning to start going out again with my family. But I have not been out with my family since we had Covid - 19 Last summer in the August Summer Break in 2023. But I have a question now to ask. Should Me and
Hidden
in
Mencap
5 months ago
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