Keeping Pegasys injections cool and monitoring temp

[LeoTravels]

Hi,

I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer in their cooler to keep an eye on the temp?

Thanks in advance,

Leo Travels.

[hunter5582]

I do not bother with a thermometer. I do use a high-quality cooler bag with one or more gel ice packs to keep the med cool. That has worked fins thus far. I would consider other options if on a very long trip.

[LeoTravels in reply to hunter5582]

Thank you - I know I’m overthinking it!

[Saus_l]

I will also be travelling soon. Any compact cooler recommendations? I will only need to bring 1 dose with me.

Thanks

[hunter5582 in reply to Saus_l]

I use a small Yeti bag. I wrap the med in bubble wrap. I use 1 or 2 gel ice packs depending on how long the trip is.

[Wyebird]

hi, I travelled around Australia and NZ for just over 6 weeks with 3 injections. I used a cool bag, ice packs plastic zipper bags and a fridge thermometer. I found plastic zipper bags brilliant bags as you can easily ask fast food chains or buy ice when needed. I wouldn’t recommend doing it that way for such a long time again but short haul and no touring would be fine.

I also tweaked my medication dates to prevent taking more.

[eladhil]

hey. You can look for a company call 4all family. They have coolers

[Exeter21]

No thermometer I put it in my small cool bag. I have flown all over the world with it & topped it up with a bit of ice cubes in bag in emergencies as sometimes no fridge on my travels. It’s always been fine. 👌 Julia UK. PS. I leave it sealed in its box for customs & take my letter authorising use.

[LeoTravels]

Thank you x