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Art project around organ transplantation
Hi all - thanks for having me in the group. I’ve joined because I wanted to let you know about an art project, ‘Not Just the Incredibles’ that I’m working on that’s about organ transplantation, and – for those of you in the UK that have had a liver transplant – I wanted to invite you to a workshop that
Hi all - thanks for having me in the group. I’ve joined because I wanted to let you know about an art project, ‘Not Just the Incredibles’ that I’m working on that’s about organ transplantation, and – for those of you in the UK that have had a liver transplant – I wanted to invite you to a workshop that
tim_jeeves
in
British Liver Trust
8 years ago
Found a US PBC Support Group
Hi all, i am recently diagnosed with PBC, with overlapping Autoimmune Hepatitis, & Celiac Disease since (2008). Met with new Specialists yesterday in the Houston Texas Medical Center. Here is another website for you. www.pbcers.org I will be reading up on them this week. I also know for those who
Hi all, i am recently diagnosed with PBC, with overlapping Autoimmune Hepatitis, & Celiac Disease since (2008). Met with new Specialists yesterday in the Houston Texas Medical Center. Here is another website for you. www.pbcers.org I will be reading up on them this week. I also know for those who
SmileSun69
in
PBC Foundation
8 years ago
HCV patients should get treatment with or without cirrhosis on NHS
Treatment using Harvoni There are some genotypes that aren't so easy to treat...but, if you have Hepatitis C the NHS are obliged to treat you according to the final guidelines published by NICE November 2015. If you are not aware of this and are waiting treatment & wondering... Read this link: http
Treatment using Harvoni There are some genotypes that aren't so easy to treat...but, if you have Hepatitis C the NHS are obliged to treat you according to the final guidelines published by NICE November 2015. If you are not aware of this and are waiting treatment & wondering... Read this link: http
art4949
in
British Liver Trust
8 years ago
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Harvoni ribavirin
Hi can anyone offer me some reassurance, had hep c 35 years. Stage 4 fibrosis, non respond interferon. Have just completed 12 week Harvoni / Ribavirin VL at start 2.5 million after 2 weeks 100, after 4 weeks 27,after 8 weeks 12, was hoping for undetected, but now kind of worried that the last 4 weeks
Hi can anyone offer me some reassurance, had hep c 35 years. Stage 4 fibrosis, non respond interferon. Have just completed 12 week Harvoni / Ribavirin VL at start 2.5 million after 2 weeks 100, after 4 weeks 27,after 8 weeks 12, was hoping for undetected, but now kind of worried that the last 4 weeks
fenderjazz
in
British Liver Trust
8 years ago
HFI Patient Connect Request
In 1981, Wendy F. received a blood transfusion during hip surgery and contracted hepatitis C. She was diagnosed in 1991. Wendy underwent two attempts to rid her body of the virus which included interferon and then interferon plus ribavirin which failed. Wendy continued therapy and a 3rd attempt with
In 1981, Wendy F. received a blood transfusion during hip surgery and contracted hepatitis C. She was diagnosed in 1991. Wendy underwent two attempts to rid her body of the virus which included interferon and then interferon plus ribavirin which failed. Wendy continued therapy and a 3rd attempt with
HFIAdmin
in
HFI Connect - Hepatitis
8 years ago
Friday weigh in
Last week 12.5st, this week 12.8st ! Eek that wasn't supposed to happen. It's been an unusual week this week. My youngest off on Monday and then I was off on Wednesday as I had an emergency dental procedure. Do anti biotics put on weight? Probably the wine and comfort food on Wednesday eve didn't help
Last week 12.5st, this week 12.8st ! Eek that wasn't supposed to happen. It's been an unusual week this week. My youngest off on Monday and then I was off on Wednesday as I had an emergency dental procedure. Do anti biotics put on weight? Probably the wine and comfort food on Wednesday eve didn't help
Hidden
2 stone
in
Weight Loss Support
8 years ago
Liver Biopsy Results today.....
Tonight i learned i have PBC and Autoimmune Hepatitis overlapping each other. Crazy, I know. I've read a lot about Ursodiol /Actigall drug. I have been on it two weeks. It is supposed to help with the bile and relieve the itching. It will not stop progression of PBC since there is not a cure. If
Tonight i learned i have PBC and Autoimmune Hepatitis overlapping each other. Crazy, I know. I've read a lot about Ursodiol /Actigall drug. I have been on it two weeks. It is supposed to help with the bile and relieve the itching. It will not stop progression of PBC since there is not a cure. If
SmileSun69
in
PBC Foundation
8 years ago
Giant cell hepatitis
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Rueben13
in
Children's Liver Disease Foundation
8 years ago
Increases in Acute Hepatitis B Virus Infections — Kentucky, Tennessee, and West Virginia, 2006–2013
http://www.cdc.gov/mmwr/volumes/65/wr/mm6503a2.htm
http://www.cdc.gov/mmwr/volumes/65/wr/mm6503a2.htm
HFIAdmin
in
HFI Connect - Hepatitis
8 years ago
Hepatitis B Carrier
Hello, I live in Strathmiglo, a wee village in Fife Scotland, I'm 58 years old I got hep b virus , from blood transfusion I was given as a newborn baby, my mum and dad never said to me that I had it, because back in the 60s when I was growing up, anything could have been done to our house or myself attacked
Hello, I live in Strathmiglo, a wee village in Fife Scotland, I'm 58 years old I got hep b virus , from blood transfusion I was given as a newborn baby, my mum and dad never said to me that I had it, because back in the 60s when I was growing up, anything could have been done to our house or myself attacked
Rachel843012
in
HepCBC Hepatitis C Education & Prevention Society
8 years ago
Interferon
I was treated and cured from hepC 4 years ago. Until I discovered I had the condition my health was fine. As soon as I started treatment my health plummeted and I have been ill ever since. Interferon has destroyed my life, I have cryoglobunemia, aches, pains, brain fog and extreme fatigue. I was
I was treated and cured from hepC 4 years ago. Until I discovered I had the condition my health was fine. As soon as I started treatment my health plummeted and I have been ill ever since. Interferon has destroyed my life, I have cryoglobunemia, aches, pains, brain fog and extreme fatigue. I was
Alvess123
in
British Liver Trust
8 years ago
Autoimmune hepatitis in a baby - any info?
Hi everyone, I'm new to all this, this is my first post! My daughter was diagnosed with autoimmune hepatitis (liver biopsy 2 weeks before Christmas) she was 14 and a half months old, she's only 16 months now. She's on prednesol, Imuran (started 3 wks ago) She finally started to respond to treatment
Hi everyone, I'm new to all this, this is my first post! My daughter was diagnosed with autoimmune hepatitis (liver biopsy 2 weeks before Christmas) she was 14 and a half months old, she's only 16 months now. She's on prednesol, Imuran (started 3 wks ago) She finally started to respond to treatment
DonCus
in
Children's Liver Disease Foundation
8 years ago
My results
Thanks everyone, these are my most recent results (while I was on the levothyroxine) SUPPLEMENTS RECOMMENDED (in addition to NDT) • Vitamin D3 5000 IU per day • Vitamin E 2-3 drops per day • Omega 3 2000mg per day • Mito Q 2 per day • Double X once per day – am • Melatonin
Thanks everyone, these are my most recent results (while I was on the levothyroxine) SUPPLEMENTS RECOMMENDED (in addition to NDT) • Vitamin D3 5000 IU per day • Vitamin E 2-3 drops per day • Omega 3 2000mg per day • Mito Q 2 per day • Double X once per day – am • Melatonin
KateLDB
in
Thyroid UK
8 years ago
ESA
I have just applied for esa, liver disease hepatitis C virus. I don't feel very optimistic. Also I have high cholesterol the doc didn't give me statin because of liver does anyone know of something else I can lower my cholesterol please ????.
I have just applied for esa, liver disease hepatitis C virus. I don't feel very optimistic. Also I have high cholesterol the doc didn't give me statin because of liver does anyone know of something else I can lower my cholesterol please ????.
Phil_7
in
British Liver Trust
8 years ago
To woman worried about 67-yr. old mom
I am doing research on liver disease and transplant for a novel and certainly don't want to appear insensitive to people dealing with serious health issues. I noticed a post on this forum from a woman whose mother who is very ill (suffering from Hepatitis from a blood transfusion years ago, and now end-stage
I am doing research on liver disease and transplant for a novel and certainly don't want to appear insensitive to people dealing with serious health issues. I noticed a post on this forum from a woman whose mother who is very ill (suffering from Hepatitis from a blood transfusion years ago, and now end-stage
MichelleWK
in
British Liver Trust
8 years ago
FibroScan result
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Amena1610
in
British Liver Trust
8 years ago
Hepatitis A Virus and Hepatitis E Virus: Different Viruses With Similar Stories
http://www.inpractice.com/Textbooks/Hepatology/ch2_Hepatitis_A_and_E/Summary.aspx
http://www.inpractice.com/Textbooks/Hepatology/ch2_Hepatitis_A_and_E/Summary.aspx
HFIAdmin
in
HFI Connect - Hepatitis
8 years ago
Awaiting liver biopsy ? AIH/PBC crossover
Hi everyone, me again.... Had a busy few weeks. Started on thyroxine as been diagnosed with hypothyroidism now. Following consultant apt she wants to organise a liver biopsy, my blood results are not quite behaving as PURE PBC apparently, my consultant wants biopsy to check for AIH crossover. I have
Hi everyone, me again.... Had a busy few weeks. Started on thyroxine as been diagnosed with hypothyroidism now. Following consultant apt she wants to organise a liver biopsy, my blood results are not quite behaving as PURE PBC apparently, my consultant wants biopsy to check for AIH crossover. I have
Mumoftwo81
in
PBC Foundation
8 years ago
Hepatitis B information - anyone living with it?
Hi I'm trying to find some information for my partner who was diagnosed with chronic Hepatitis B 7 years ago. He's hoping to speak to someone who has been living and managing their condition? Otherwise does anyone know of any support or online counselling services? Thanks so much, Zena
Hi I'm trying to find some information for my partner who was diagnosed with chronic Hepatitis B 7 years ago. He's hoping to speak to someone who has been living and managing their condition? Otherwise does anyone know of any support or online counselling services? Thanks so much, Zena
zena1986
in
HepCBC Hepatitis C Education & Prevention Society
8 years ago
Abbvie Viekira Pak
I have just been refused Harvoni and told I will start treatment in January on Abbvie Pak no Ribavirin. As I have borderline cirrhosis Fibroscan 11.5 genotype 1b. I worry about the side effects and long term damage the toxic drugs might due to me...seems a lot of pills when Harvoni would be simpler
I have just been refused Harvoni and told I will start treatment in January on Abbvie Pak no Ribavirin. As I have borderline cirrhosis Fibroscan 11.5 genotype 1b. I worry about the side effects and long term damage the toxic drugs might due to me...seems a lot of pills when Harvoni would be simpler
art4949
in
British Liver Trust
8 years ago
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