Pseudomonas colonised.

[falcon68]

Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length of time and l am out of breath. I have decided to invest in a wheelchair so my family and friends can at least take me out when the weather gets better.I am only 70 but feel like a really old woman since having this Pseudomonas infection.

Is there anyone else feeling like l do and how do you cope from day to day. I am a widow so live on my own which makes the situation doubly hard.

[helenlw7]

I feel just the same as you. I’m 68 and feel as if an 88 year old. I have bronchiectstasis, and get breathless easily, even putting my shoes on! I collapsed from exhausts year, and as a result of that I walk using crutches. I decided to buy a wheelchair. I’m living with my daughter at the moment, was housebound before the wheelchair. Even hospital appointments were a challenge on crutches because car park is so far from the main building!

Since getting the wheelchair I’ve had more freedom, even though I can’t go out on my own.

I’m staying with my daughter until changes to my house are completed. I know it will be hard on my own (my husband has dementia and is in a care home), mainly the loneliness I think

[Morrison10]

Hi, I have pseudomonas, because I was born with PCD. I’m widow 88 years old, live alone, nebulise twice daily. Due to have IV treatment at home in about month, hope this clears pseudo and I feel better and can then go out. Good luck and best wishes, Jean x

[Hidden]

I'm afraid that your breathlessness may be due to your lungs reacting to the colomycin and going into spasm. I have come to the point that this happens with all of the nebulised antibiotics and so an exacerbation now means I will need IV. I think that you need to speak to your bronch specialist about it. Once the nebulised antibiotics are stopped, it shouldn't take long for you to get your breath back. I nebulised 0.9,% saline which calms the lungs down after I became reactive to nebbed antibiotics.

Now I nebulise salbutamol and ipatropium followed by saline and then very rigorous emptying of the lungs to keep the pseudo down.

You shouldn't be so breathless with bronch that you need a wheelchair. I am 73. Do talk to your bronch specialist about it. Not your GP. They know very little about bronch and the effects of nebbed antibiotics.

[Keep-positive]

Hi Falcon68, I've had bronchiectasis since childhood and now colonised with pseudo , I've been on nebulised colomycin for 6 months, had a trial at Spirometry first , and was able to tolerate it. I am also very breathless, but I also have asthma, I have been put on Trimbow inhaler.

Hearing what you have said Littlepom, did you tolerate the Colomycin at the beginning ? Like someone said , I struggle to put on shoes / socks because of the breathlessness, I am 61 year's old .

I've been putting the breathlessness down to my asthma , now I'm curious.

I've been thinking of one of those motor scooters , think this would give you lots of independence.

Good luck