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Haemolytic anaemia
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How easy is it to get toxic levels of B12
I take a weekly shot. It seems like the effects start to wear off after a few days and my last two shots were late bringing all sorts of symptoms. Should I ask about increasing frequency to every few days instead or will I run the risk of getting too much now? My last levels drawn were in the proper
I take a weekly shot. It seems like the effects start to wear off after a few days and my last two shots were late bringing all sorts of symptoms. Should I ask about increasing frequency to every few days instead or will I run the risk of getting too much now? My last levels drawn were in the proper
Sgboyd
in
Pernicious Anaemia Society
3 years ago
Low Oxalate Diet, an explanation for why it works
More than six years ago I found that I could turn my RLS discomforts on and off by controlling the amount of oxalate in my diet. My original breakthrough in understanding came after about 5 years of closely monitoring my diet and my daily discomfort level. Many people who conscientiously follow a
More than six years ago I found that I could turn my RLS discomforts on and off by controlling the amount of oxalate in my diet. My original breakthrough in understanding came after about 5 years of closely monitoring my diet and my daily discomfort level. Many people who conscientiously follow a
notnowdad
in
Restless Legs Syndrome
3 years ago
Help required please with my recent blood results.
Hello, I haven't posted a question here about my bloods yet but I can see that there's so many of you here who have an idea while I'm all new to thyroid issues. I've got my 2 Endo appointment today which will be my firsts one Face 2 face with him but if like to have an idea on what my bloods mean. I've
Hello, I haven't posted a question here about my bloods yet but I can see that there's so many of you here who have an idea while I'm all new to thyroid issues. I've got my 2 Endo appointment today which will be my firsts one Face 2 face with him but if like to have an idea on what my bloods mean. I've
bajmon
in
Thyroid UK
3 years ago
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NICE MORNING
Quest Blood workup was posted this morning to me .. the 3 Items that are in RED for White Blood count and Total Monocytes and Absolute lymphocytes are down substantially White went From 30 to 23 !! absolute mono from 4081 to 1152 Absolute lymphocyte from 16650 to 14700.... thats 14 days on IMBRUVICA.
Quest Blood workup was posted this morning to me .. the 3 Items that are in RED for White Blood count and Total Monocytes and Absolute lymphocytes are down substantially White went From 30 to 23 !! absolute mono from 4081 to 1152 Absolute lymphocyte from 16650 to 14700.... thats 14 days on IMBRUVICA.
lacroixx1
in
CLL Support
3 years ago
Vitamin and mineral advice please - edited and added thyroid results
Hi everyone. I was hoping someone could comment on my latest vitamin and mineral results please? I am currently taking 125mcg levothyroxine and have a blood test this morning at 9am so will post those results later today/tomorrow as still symptomatic. I have added thyroid results below too now. But for
Hi everyone. I was hoping someone could comment on my latest vitamin and mineral results please? I am currently taking 125mcg levothyroxine and have a blood test this morning at 9am so will post those results later today/tomorrow as still symptomatic. I have added thyroid results below too now. But for
A2C3
in
Thyroid UK
3 years ago
ferritin levels dropping fast
my ferritin levels have dropped from 110 to 64 in a month. Also positive for gastric parietal cells ab. hemoglobin dropping slowly. Worried this could be gastric cancer. others experience is appreciated.
my ferritin levels have dropped from 110 to 64 in a month. Also positive for gastric parietal cells ab. hemoglobin dropping slowly. Worried this could be gastric cancer. others experience is appreciated.
marigold111
in
Pernicious Anaemia Society
3 years ago
Help with blood test results
Hi again Had my bloods tested again due to low platelets and iron. Have been taking 80mg iron tablets every day for a few months now. Any insight would be appreciated. Thanks in advance! Had to translate from French so hope I’m right. Leukocytes. 4,59 (4-10) Red blood cells 3,93 (4-5,20
Hi again Had my bloods tested again due to low platelets and iron. Have been taking 80mg iron tablets every day for a few months now. Any insight would be appreciated. Thanks in advance! Had to translate from French so hope I’m right. Leukocytes. 4,59 (4-10) Red blood cells 3,93 (4-5,20
Shenow
in
Thyroid UK
3 years ago
A phone call this evening
.....from the Colonoscopy Dept. They are arranging a visit from the community nurse to carry out a Covid PCR test first this Sunday and an appointment for next Tuesday. Now that was quick, only referred Friday 9th just gone, along with a blood test, which I take must have been okay even though I don't
.....from the Colonoscopy Dept. They are arranging a visit from the community nurse to carry out a Covid PCR test first this Sunday and an appointment for next Tuesday. Now that was quick, only referred Friday 9th just gone, along with a blood test, which I take must have been okay even though I don't
2greys
in
Lung Conditions Community Forum
3 years ago
Low BMI, fatigue, and PA?
Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from being a very active and competitive runner (30-45 miles per week, though admittedly that became impossible shortly before my diagnosis) to being
Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from being a very active and competitive runner (30-45 miles per week, though admittedly that became impossible shortly before my diagnosis) to being
still_elsewhere
in
Pernicious Anaemia Society
3 years ago
CONUNDRUM
Hello, this is my first post. Here's a conundrum. Can anyone out there please help out? A 22 year old patient who last month tested positive for intrinsic factor antibodies in keeping with pernicious anaemia has remained symptomatic for B12 deficiency despite 7 months of oral cyanocobalamin 50 mcg per
Hello, this is my first post. Here's a conundrum. Can anyone out there please help out? A 22 year old patient who last month tested positive for intrinsic factor antibodies in keeping with pernicious anaemia has remained symptomatic for B12 deficiency despite 7 months of oral cyanocobalamin 50 mcg per
Chenders
in
Pernicious Anaemia Society
3 years ago
A past post regarding how important it is to test for Pernicious Anaemia if we have symptoms.
I have posted this link in the past and it reveals what a serious deficiency in B12 can do to one's health but - again - it seems the knowledge isn't with GPs or other doctors. The
last video
in this link is of a doctor with unknown B12 deficiency who had been very crippled with an undiagnosed
I have posted this link in the past and it reveals what a serious deficiency in B12 can do to one's health but - again - it seems the knowledge isn't with GPs or other doctors. The
last video
in this link is of a doctor with unknown B12 deficiency who had been very crippled with an undiagnosed
shaws
Administrator
in
Thyroid UK
3 years ago
Levothyroxine sodium pentahydrate tablets - formulation considerations
Levothyroxine is reaching retirement! It has been available for just over sixty-five years. :-) Despite that, we still have to accept formulations which are problematic. This review paper summarises in its abstract two major causes of these problems. It then identifies shortcomings in the United States
Levothyroxine is reaching retirement! It has been available for just over sixty-five years. :-) Despite that, we still have to accept formulations which are problematic. This review paper summarises in its abstract two major causes of these problems. It then identifies shortcomings in the United States
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Iron supplement & other vitamins on CLL patients?
Can patients of CLL use iron supplements when the hemogram shows lower than normal values of hemoglobin and hematocrit?
Can patients of CLL use iron supplements when the hemogram shows lower than normal values of hemoglobin and hematocrit?
Gerardo1959_go
in
CLL Support
3 years ago
Are my side effects from adalimumab normal and will they fade?
I’ve recently been put on adalimumab for my RA. The first injection seemed like a wonder drug as I could feel the difference almost immediately and was moving in ways I haven’t for years. The second injection doesn’t seem to have done anything except show me some unfortunate side effects. Racing heart
I’ve recently been put on adalimumab for my RA. The first injection seemed like a wonder drug as I could feel the difference almost immediately and was moving in ways I haven’t for years. The second injection doesn’t seem to have done anything except show me some unfortunate side effects. Racing heart
Blkstaffy
in
NRAS
3 years ago
Where to get private testing done
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
Hi I just wondered is anyone can tell me where I could get more in depth testing done for B12 deficiency and pernicious anaemia as my GP only orders the standard serum B12 test and intrinsic factor test Thank you in advance 😊
BEE2019
in
Pernicious Anaemia Society
3 years ago
Increased tingling and burning feet AFTER B12 injections
Hi all, I’m hoping to gather experiences from the group to see if other people seem to get the same sensations as me after a B12 injection. I seem to get increased sensation of tingling/electric current through my legs and burning soles of feet after B12 injections alongside a gnawing ache in my calves
Hi all, I’m hoping to gather experiences from the group to see if other people seem to get the same sensations as me after a B12 injection. I seem to get increased sensation of tingling/electric current through my legs and burning soles of feet after B12 injections alongside a gnawing ache in my calves
User2020-1
in
Pernicious Anaemia Society
3 years ago
Can it take up to 3 months to feel benefit of iron infusion?
Hi. After noticing my RLS symptoms were getting worse, I had my ferritin checked and found that it was only 5, so this led to me having an iron infusion 3 weeks ago. I had my ferritin checked again 2 weeks after the infusion, and found out yesterday that my ferritin has now risen to 363. However, this
Hi. After noticing my RLS symptoms were getting worse, I had my ferritin checked and found that it was only 5, so this led to me having an iron infusion 3 weeks ago. I had my ferritin checked again 2 weeks after the infusion, and found out yesterday that my ferritin has now risen to 363. However, this
oceanred
in
Restless Legs Syndrome
3 years ago
Why is my B12 and folate always on lower end of normal even with injections/supplements
27m, non-smoker, no drugs etc I had been experiencing extreme tiredness for years and my blood tests were always normal. I asked that they check my vitamins and my B12 was 184 (range starting at 180+) and my folate is always borderline too. This was in 2015. I still felt unwell and eventually had a private
27m, non-smoker, no drugs etc I had been experiencing extreme tiredness for years and my blood tests were always normal. I asked that they check my vitamins and my B12 was 184 (range starting at 180+) and my folate is always borderline too. This was in 2015. I still felt unwell and eventually had a private
thyroidorwhat
in
Pernicious Anaemia Society
3 years ago
Advice please
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
loutomaio
in
Thyroid UK
3 years ago
Iron
Hi all, I just wanted to say that when my Iron was very low back in 2016 I decided to take Floradix liquid iron and my result went up from 73 to 111 in 5months The hospital were considering a blood transfusion when it was 73 but decided to prescribe iron tablets which I did not take but took Floradix
Hi all, I just wanted to say that when my Iron was very low back in 2016 I decided to take Floradix liquid iron and my result went up from 73 to 111 in 5months The hospital were considering a blood transfusion when it was 73 but decided to prescribe iron tablets which I did not take but took Floradix
ginid
in
Thyroid UK
3 years ago
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