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First post - help please 😊
Hi everyone, I was diagnosed in May this year with Pernicious Anaemia (I had actually contacted the doctor as I had deteriorating memory- I’m 45years old) I had 2 weeks of loading b12 doses then yesterday I had my first 3 month b12 shot. I asked the doctor if I could go to 2 monthly but they aren’t keen
Hi everyone, I was diagnosed in May this year with Pernicious Anaemia (I had actually contacted the doctor as I had deteriorating memory- I’m 45years old) I had 2 weeks of loading b12 doses then yesterday I had my first 3 month b12 shot. I asked the doctor if I could go to 2 monthly but they aren’t keen
Sassybob
in
Pernicious Anaemia Society
3 years ago
How high fat diet and exercise can affect myelin sheaths production by oligodendrocytes while the person is on high dose of B12 vitamin l
I'm wondering how to get our damaged nerves get repaired faster by oligodendrocytes which are responsible in most vertebrates for production of damaged myelin sheaths. Based on Mayo clinic research high fat diet and exercise catalyzes this repair process but saturated fat and sugar damage this process
I'm wondering how to get our damaged nerves get repaired faster by oligodendrocytes which are responsible in most vertebrates for production of damaged myelin sheaths. Based on Mayo clinic research high fat diet and exercise catalyzes this repair process but saturated fat and sugar damage this process
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Ghost: for those who feel invisible
This is an eggshell mosaic on slate called Ghost. It depicts the weird trickling sensation just under your skin with the delightful name of formication: to me, this felt like a physical depletion of self, trickling down to my fingertips and soles of my feet- always started when exhausted (a supermarket
This is an eggshell mosaic on slate called Ghost. It depicts the weird trickling sensation just under your skin with the delightful name of formication: to me, this felt like a physical depletion of self, trickling down to my fingertips and soles of my feet- always started when exhausted (a supermarket
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
3 years ago
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Can anyone tell me what these blood results mean
I have pernicious anaemia and have been suffering really badly with head shaking, arm shaking and weakness also im really tired. Could this be B12 related? Here are my results Full blood count - FBC Haemoglobin estimation131 g/L115 - 160 g/L Total white cell count4.15 10*9/L4.00 - 11.00 10*9/L Platelet
I have pernicious anaemia and have been suffering really badly with head shaking, arm shaking and weakness also im really tired. Could this be B12 related? Here are my results Full blood count - FBC Haemoglobin estimation131 g/L115 - 160 g/L Total white cell count4.15 10*9/L4.00 - 11.00 10*9/L Platelet
Cultivate
in
Pernicious Anaemia Society
3 years ago
Not sure if having a flare
Hi all - need advice: Diagnosed with PMR Feb 2017. I have Mast Cell Activation Syndrome on top of the PMR. Seems that I probably have had it for a long time - but getting viral pneumonia in Dec 2018 along with the meds for that - just made it truly haywire! Do I have been happily reducing over a long
Hi all - need advice: Diagnosed with PMR Feb 2017. I have Mast Cell Activation Syndrome on top of the PMR. Seems that I probably have had it for a long time - but getting viral pneumonia in Dec 2018 along with the meds for that - just made it truly haywire! Do I have been happily reducing over a long
Slosh
in
PMRGCAuk
3 years ago
Dream job
Hello British liver trust,am hepatitis carrier on Tenofovir, my question is i want to study nursing, is that possible or there is restrictions on hepatitis b carrier
Hello British liver trust,am hepatitis carrier on Tenofovir, my question is i want to study nursing, is that possible or there is restrictions on hepatitis b carrier
adexbola86
in
British Liver Trust
3 years ago
Short of breath
I've have had pernicious anaemia since March 2019, I take 100mg of thiamine 1 three times a day,1 5mg of folic acid once a day, just before my last injection two weeks ago I became short of breath, what could be causing this please I'm due to receive my blood test to see if I still need to take the folic
I've have had pernicious anaemia since March 2019, I take 100mg of thiamine 1 three times a day,1 5mg of folic acid once a day, just before my last injection two weeks ago I became short of breath, what could be causing this please I'm due to receive my blood test to see if I still need to take the folic
LisaNewb
in
Pernicious Anaemia Society
3 years ago
How long before an oral B12 tablet affects your Active/Serum B12 level?
Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet): 1) How long does it take an oral B12 tablet to be absorbed, such that it raises an Active B12 blood test result (or failing that, a Serum B12
Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet): 1) How long does it take an oral B12 tablet to be absorbed, such that it raises an Active B12 blood test result (or failing that, a Serum B12
Katanaqui
in
Pernicious Anaemia Society
3 years ago
What can a do to help with a very sore tongue?
I was diagnosed with anaemia a few years ago and have B12 injections every 10 weeks. My folate levels were also abnormal but I don’t take anything for this. The last couple of months my tongue has started to get so sore down one side. I guess it’s related to PA and wanted to see if you had any suggestions
I was diagnosed with anaemia a few years ago and have B12 injections every 10 weeks. My folate levels were also abnormal but I don’t take anything for this. The last couple of months my tongue has started to get so sore down one side. I guess it’s related to PA and wanted to see if you had any suggestions
Outinthesun
in
Pernicious Anaemia Society
3 years ago
Homocysteine after supplementation
Hello! Does anyone know how fast homocysteine levels are affected by supplementation? I took 1mg sublingual methylcobalamin a day for two weeks, then ceased using it for two weeks before testing (poor planing on my end i know). Both serum b12 and homocysteine levels tested normal. I know that serum b12
Hello! Does anyone know how fast homocysteine levels are affected by supplementation? I took 1mg sublingual methylcobalamin a day for two weeks, then ceased using it for two weeks before testing (poor planing on my end i know). Both serum b12 and homocysteine levels tested normal. I know that serum b12
SebastianB
in
Pernicious Anaemia Society
3 years ago
My neurogical symptoms are new after injections
I was totally confused and afraid about the increased burning and numbness ( totally new for me) after starting B12 injections. My symptoms are light like itching and slight tingli. No anemia. This article helped me to have some relief http://b12vitaminetekortpodium.blogspot.com/2011/12/vitb12-symptoms-might-get-worse-at.html
I was totally confused and afraid about the increased burning and numbness ( totally new for me) after starting B12 injections. My symptoms are light like itching and slight tingli. No anemia. This article helped me to have some relief http://b12vitaminetekortpodium.blogspot.com/2011/12/vitb12-symptoms-might-get-worse-at.html
Gettingbette
in
Pernicious Anaemia Society
3 years ago
Iron Infusions in Northern Ireland?
Hi everyone, I’m new here and currently seeking someone that can direct me in the right direction for an iron infusion in Northern Ireland/Republic of Ireland?? I had one in Australia two years ago and it helped me tremendously! I was always dizzy and nauseous. Had trouble focusing and when I got the
Hi everyone, I’m new here and currently seeking someone that can direct me in the right direction for an iron infusion in Northern Ireland/Republic of Ireland?? I had one in Australia two years ago and it helped me tremendously! I was always dizzy and nauseous. Had trouble focusing and when I got the
Bee911
in
Restless Legs Syndrome
3 years ago
RLS
Manerva. I had the Iron panel done for the first time. I value your opinion, since the test was marginal. My Fe iron was 114(range 65-175) (TC) TIBC 221 (Range 250-450 LOW Iron Sat 52 (Range 11-46)HIGH. Ferritin, Serum 150(Range 30-400) RBC 3.78(Range 4.40-100) Hemoglobin 13.1 (Range 14-18.) Hemqtocrit
Manerva. I had the Iron panel done for the first time. I value your opinion, since the test was marginal. My Fe iron was 114(range 65-175) (TC) TIBC 221 (Range 250-450 LOW Iron Sat 52 (Range 11-46)HIGH. Ferritin, Serum 150(Range 30-400) RBC 3.78(Range 4.40-100) Hemoglobin 13.1 (Range 14-18.) Hemqtocrit
bill54321
in
Restless Legs Syndrome
3 years ago
Doc says I’m ok ? Advice please?
Hi , I had my pernicious anaemia test at the GP and all negative but they didn’t test B12 as said I don’t need that as my full blood count was in normal to high in range aswell . I said that my medichecks Active B12 was 62 so slightly low low but he just said I don’t need a B12 test as the tests don’
Hi , I had my pernicious anaemia test at the GP and all negative but they didn’t test B12 as said I don’t need that as my full blood count was in normal to high in range aswell . I said that my medichecks Active B12 was 62 so slightly low low but he just said I don’t need a B12 test as the tests don’
Blackpanther46
in
Pernicious Anaemia Society
3 years ago
Iron blood test
I've ordered a full iron panel test from medichecks, but just wondering presumably I should stop my b vitamin complex a week ahead, but what about my iron supplements? Should I stop these as with any thyroid test?
I've ordered a full iron panel test from medichecks, but just wondering presumably I should stop my b vitamin complex a week ahead, but what about my iron supplements? Should I stop these as with any thyroid test?
Molly161018
in
Thyroid UK
3 years ago
Buying Hydroxocobalamin from Germany.
Hi to you all, thanks to the advice I received on here a few months ago I was able to purchase Hydroxocobalamin quite easily from a German supplier, it's has made a huge difference to my health. I'm self injecting once a month , supplementing my 3 monthly NHS dose. My problem now is that I am unable
Hi to you all, thanks to the advice I received on here a few months ago I was able to purchase Hydroxocobalamin quite easily from a German supplier, it's has made a huge difference to my health. I'm self injecting once a month , supplementing my 3 monthly NHS dose. My problem now is that I am unable
CyclingPete
in
Pernicious Anaemia Society
3 years ago
Can anyone help with test results
Hi there any help I would gratefully appreciate. Below are my recent test results. I am currently taking 2 Metavive ll and 1 Metavive l supplements. I took the test late in afternoon but fasted from meds and food the whole day. pB TSH ! 0.07 mU/L [ 0.30
Hi there any help I would gratefully appreciate. Below are my recent test results. I am currently taking 2 Metavive ll and 1 Metavive l supplements. I took the test late in afternoon but fasted from meds and food the whole day. pB TSH ! 0.07 mU/L [ 0.30
alex232
in
Thyroid UK
3 years ago
New blood test after speaking to a doctor about stomach problem.
Any help understand these blood works please. Would be helpful. I’d spoke to GP on Monday and she said she run blood test, and go for a scan as well to see what’s going on. Blood test came back the same day. (But used to this by now) but would be interested to know what is going on. Thanks for any
Any help understand these blood works please. Would be helpful. I’d spoke to GP on Monday and she said she run blood test, and go for a scan as well to see what’s going on. Blood test came back the same day. (But used to this by now) but would be interested to know what is going on. Thanks for any
Haze1975
in
Thyroid UK
3 years ago
Result Interpretation Help please
Hello Could I ask some advice on my results please: TSH 0.01 (0.27- 4.20) FT4 18.7 (11.0 - 25.0) FT3 4.8 (3.1 - 6.8) Folate 21 (0-60.8) B12 200 (0-300) Ferritin 48 (15-300) April 41 (0-400) March 29 (15-300) I asked for a blood test because I was feeling really
Hello Could I ask some advice on my results please: TSH 0.01 (0.27- 4.20) FT4 18.7 (11.0 - 25.0) FT3 4.8 (3.1 - 6.8) Folate 21 (0-60.8) B12 200 (0-300) Ferritin 48 (15-300) April 41 (0-400) March 29 (15-300) I asked for a blood test because I was feeling really
missrees
in
Thyroid UK
3 years ago
Ongoing complaint Advice
Good morning, I slightly touched on this subject with a previous post but wanted to put a bit more detail on in regards to my complaint to my Dr. So after years of going back and forth to Drs with Depression, extreme fatigue, Brain fog (so bad I thought I had dementia) after numerous blood tests over
Good morning, I slightly touched on this subject with a previous post but wanted to put a bit more detail on in regards to my complaint to my Dr. So after years of going back and forth to Drs with Depression, extreme fatigue, Brain fog (so bad I thought I had dementia) after numerous blood tests over
Purpleloulou27
in
Pernicious Anaemia Society
3 years ago
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