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Haemolytic anaemia
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A question about Thyroid blood tests.
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Bubydizer
in
Thyroid UK
2 years ago
Was wondering about anemia?
I just had blood work taken by my rheumatologist, and it shows that I am getting anemic again. This happens every 6 months or so. I had all kinds of tests to see if I have cancer, but it is negative (thank goodness). I have had tests to see if I am losing blood (endoscopy and colonoscopy). Both show
I just had blood work taken by my rheumatologist, and it shows that I am getting anemic again. This happens every 6 months or so. I had all kinds of tests to see if I have cancer, but it is negative (thank goodness). I have had tests to see if I am losing blood (endoscopy and colonoscopy). Both show
Willow7733
in
LUPUS UK
2 years ago
Which Magnesium?
I have been taking magnesium glycinate for the past 3 months,, but unfortunately bought some with extra rubbish! I was looking for a better alternative and came across a 'which magnesium' site . It said magnesium glycinate was good for depression, anxiety and general well being. Well thats me! It also
I have been taking magnesium glycinate for the past 3 months,, but unfortunately bought some with extra rubbish! I was looking for a better alternative and came across a 'which magnesium' site . It said magnesium glycinate was good for depression, anxiety and general well being. Well thats me! It also
carnation
in
Thyroid UK
2 years ago
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Can you insist on a Pernicious Anaemia Test with low B12?
I was diagnosed with Pernicious Anaemia at 27 by a specialist after having various tests for other things, and have been on B12 injections ever since and am now in my 60's. My daughter is 28yrs old and her blood test has just come back with 'low B12'. She told her GP that I was diagnosed in my 20's
I was diagnosed with Pernicious Anaemia at 27 by a specialist after having various tests for other things, and have been on B12 injections ever since and am now in my 60's. My daughter is 28yrs old and her blood test has just come back with 'low B12'. She told her GP that I was diagnosed in my 20's
Mel434
in
Pernicious Anaemia Society
2 years ago
Patient Experiences on DTE
This is useful narrative paper on why how and when patients prefer NDT (DTE) over other therapies. It might have been posted before, but the journal is obscure. Downloadable paper: Patient Experiences and Perceptions Associated with the Use of Desiccated Thyroid Extract
Freddy J. K. Toloza 1,2,
This is useful narrative paper on why how and when patients prefer NDT (DTE) over other therapies. It might have been posted before, but the journal is obscure. Downloadable paper: Patient Experiences and Perceptions Associated with the Use of Desiccated Thyroid Extract
Freddy J. K. Toloza 1,2,
diogenes
in
Thyroid UK
2 years ago
Confused again, do I stop B12 injections ?
Had bloods done (Thyroid) , by Bluehorizon included were vitamins mineral and ferritin B12 and folate have been self injecting B12 for a few months, and supplementing magnesium, vit D, C, E, A, B6, Zinc, Selenium. B12 GP test last year Serum vit B12 354.0 ng/L no reference range included
Had bloods done (Thyroid) , by Bluehorizon included were vitamins mineral and ferritin B12 and folate have been self injecting B12 for a few months, and supplementing magnesium, vit D, C, E, A, B6, Zinc, Selenium. B12 GP test last year Serum vit B12 354.0 ng/L no reference range included
Polo22
in
Pernicious Anaemia Society
2 years ago
B12 and iron deficient
I had pyloric stenosis surgery at 3 months old where they take out some of the deodenum which is the area that absorbs iron and b12. I’ve had to get b12 injections and now am iron deficient. Curious if anyone else had the same surgery as a baby and now have the same vitamin and mineral malabsorption
I had pyloric stenosis surgery at 3 months old where they take out some of the deodenum which is the area that absorbs iron and b12. I’ve had to get b12 injections and now am iron deficient. Curious if anyone else had the same surgery as a baby and now have the same vitamin and mineral malabsorption
OonaSt
in
Pernicious Anaemia Society
2 years ago
Malar rash diagnosis/confirmation
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999
in
LUPUS UK
2 years ago
How to monitor injection results
I was diagnosed with B12 deficiency in May 2021, on the basis of low serum B12 (74 ng/L), some loss of sensation in my feet, and nerve conduction assessment in my legs. Due to physician confusion regarding treatment with B12 (cyanocobalamin) injection, I bounced around with injection frequency, with
I was diagnosed with B12 deficiency in May 2021, on the basis of low serum B12 (74 ng/L), some loss of sensation in my feet, and nerve conduction assessment in my legs. Due to physician confusion regarding treatment with B12 (cyanocobalamin) injection, I bounced around with injection frequency, with
WiscGuy
in
Pernicious Anaemia Society
2 years ago
5th Covid vaccine
I know this topic has been covered recently but I’m still confused about the 5th Covid vaccine. I’ve just rang 119 and spoken to a guy who has said they are not inviting anyone for a 5th vaccine. They are currently working on people eligible for the spring booster as set out in the NHS guidelines.
I know this topic has been covered recently but I’m still confused about the 5th Covid vaccine. I’ve just rang 119 and spoken to a guy who has said they are not inviting anyone for a 5th vaccine. They are currently working on people eligible for the spring booster as set out in the NHS guidelines.
Tiggy70
in
PMRGCAuk
2 years ago
Should Doctor have prescribed B12 injections?
Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test showed small red blood cells, very low iron and borderline B12 deficiency. Prescribed iron tablets twice a day. Nothing prescribed for low B12.
Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test showed small red blood cells, very low iron and borderline B12 deficiency. Prescribed iron tablets twice a day. Nothing prescribed for low B12.
lardycake
in
Pernicious Anaemia Society
2 years ago
CLL with AIHA
I have been on W&W for just over 2 years then became unwell a few weeks ago and was admitted to hospital with Auto Immune
Haemolytic
Anaemia
(AIHA). It is unsure if one triggered the other as my CLL with AIHA have moved to a more active state with both now are undergoing treatment.
I have been on W&W for just over 2 years then became unwell a few weeks ago and was admitted to hospital with Auto Immune
Haemolytic
Anaemia
(AIHA). It is unsure if one triggered the other as my CLL with AIHA have moved to a more active state with both now are undergoing treatment.
Wen_dy
in
CLL Support
3 years ago
B12 injections and iron
Had labs done today in preparation for my hematology check up next week. My ferritin has increased slightly, but my iron , TIBC, and sat % have all decreased slightly. Also my MCV increased and my WBC decreased. Most are still in range, but I know ranges aren't always optimal (and my hematologist
Had labs done today in preparation for my hematology check up next week. My ferritin has increased slightly, but my iron , TIBC, and sat % have all decreased slightly. Also my MCV increased and my WBC decreased. Most are still in range, but I know ranges aren't always optimal (and my hematologist
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
Blood tests
Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron might be low but wondering what else I should get checked . I’m in Portugal so not sure if they know much about PA and requires blood tests.
Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron might be low but wondering what else I should get checked . I’m in Portugal so not sure if they know much about PA and requires blood tests.
lifegems
in
Pernicious Anaemia Society
2 years ago
When to take iron
It seems, from what I have read, that iron has to be taken without food. But also not close to when I take other minerals such as calcium or magnesium, or certain medicines like my thyroid medicine. Is it OK then to take iron at the same time I take my RLS medicine, which at this time is still ropinerole
It seems, from what I have read, that iron has to be taken without food. But also not close to when I take other minerals such as calcium or magnesium, or certain medicines like my thyroid medicine. Is it OK then to take iron at the same time I take my RLS medicine, which at this time is still ropinerole
KickininAz
in
Restless Legs Syndrome
2 years ago
Before You Book (or recommend) That Iron Infusion
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Hidden
in
Restless Legs Syndrome
2 years ago
Blood test results - please help!
So I had my bloods taken this week as I'm still struggling really bad with constipation and hair loss, as well as cold legs and feet. Here are my results. I think I need to up my iron, B12 and folate but if anyone can spot anything else that would be really helpful. My iron does look in range but i know
So I had my bloods taken this week as I'm still struggling really bad with constipation and hair loss, as well as cold legs and feet. Here are my results. I think I need to up my iron, B12 and folate but if anyone can spot anything else that would be really helpful. My iron does look in range but i know
Annieza
in
Thyroid UK
2 years ago
Where to buy?
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
Polo22
in
Pernicious Anaemia Society
2 years ago
Olaparib induced anaemia and walking probs, anyone?
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Trickysite
in
My Ovacome
2 years ago
Raised mcv
Morning all. I have pv and taking hydroxycarbomide and apixaban. I've been struggling with breathlessness for some time now but haematologist says it's not down to the mpn and referred me back to gp for more investigation. The gp did more blood tests and called me the day after to go for another blood
Morning all. I have pv and taking hydroxycarbomide and apixaban. I've been struggling with breathlessness for some time now but haematologist says it's not down to the mpn and referred me back to gp for more investigation. The gp did more blood tests and called me the day after to go for another blood
poly2
in
MPN Voice
2 years ago
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