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Haemolytic anaemia
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self injections- feeling worse
New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he prescribed cyanocobalamin and I am now self injecting at home with 1000mcg . After two weeks, I’m feeling so much worse. I’m in so much pain, with inability
New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he prescribed cyanocobalamin and I am now self injecting at home with 1000mcg . After two weeks, I’m feeling so much worse. I’m in so much pain, with inability
Deirdre118
in
Pernicious Anaemia Society
11 months ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
Correctly written prescription...do they exist? 🫤
My pharmacist requested that I get my prescription altered to state Vencamil now that Aristo has been dropped by Alliance to stave of future confusion ( it currently mentions both)... I did say that I had tried in the past to get it named but they say that they can't... So I spoke with the Surgery and
My pharmacist requested that I get my prescription altered to state Vencamil now that Aristo has been dropped by Alliance to stave of future confusion ( it currently mentions both)... I did say that I had tried in the past to get it named but they say that they can't... So I spoke with the Surgery and
TiggerMe
in
Thyroid UK
10 months ago
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b12 and Anxiety
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
84withb12d
in
Pernicious Anaemia Society
1 year ago
Good news re. blood tests
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
gillsky8
in
PMRGCAuk
10 months ago
New Pernicious Anemia diagnosis
Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What can I be doing to help myself get out from under the duvet and the cat? I can't seem to think beyond basic single tasks. Everything is so overwhelming
Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What can I be doing to help myself get out from under the duvet and the cat? I can't seem to think beyond basic single tasks. Everything is so overwhelming
Oneash
in
Pernicious Anaemia Society
11 months ago
Low UIBC result from bloodwork?
Hi, All. I had bloodwork done recently and I'm wondering if anyone knows if the low UIBC might be affecting my RLS/PLMD. Ferritin was 169 (down from very high values after a blood infusion for rls in April 2021). The UIBC was flagged as Low at 126, Iron Saturation was flagged as high: Iron 172 UIBC
Hi, All. I had bloodwork done recently and I'm wondering if anyone knows if the low UIBC might be affecting my RLS/PLMD. Ferritin was 169 (down from very high values after a blood infusion for rls in April 2021). The UIBC was flagged as Low at 126, Iron Saturation was flagged as high: Iron 172 UIBC
TeddiJ
in
Restless Legs Syndrome
1 year ago
Should we lobby for modern healthcare to be a blend of Conventional Medicine AND Functional Medicine?
This is my question of the day... We are all suffering, horribly. From ignorance, mainly. Sorry to point it out... Management of B12, of gut health, of everything that happens to a body from a deficiency relies on the study of functional medicine. It is not the domain of conventional medicine, e.g
This is my question of the day... We are all suffering, horribly. From ignorance, mainly. Sorry to point it out... Management of B12, of gut health, of everything that happens to a body from a deficiency relies on the study of functional medicine. It is not the domain of conventional medicine, e.g
Pickle500
in
Pernicious Anaemia Society
1 year ago
I'm Alive!
I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional, with a severe case of iron deficiency. I apologize for not posting what was going on with me sooner. But the severe, severe fatigue just did
I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional, with a severe case of iron deficiency. I apologize for not posting what was going on with me sooner. But the severe, severe fatigue just did
Rexz
in
Pernicious Anaemia Society
1 year ago
B12 deficiency and Metformin
The following is likely of interest to people on Metformin https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk Of special interest is the following excerpt: * administer corrective treatment for vitamin B12 deficiency in line with
The following is likely of interest to people on Metformin https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk Of special interest is the following excerpt: * administer corrective treatment for vitamin B12 deficiency in line with
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Some blood test results
Good afternoon Could I have someones Opinion on my test results please all were taken as a fasting with no levothyroxine taken until after my blood was drawn at 8.05am. I did ask for T3 but not there Thank you for looking. Full blood count Total white blood count: 8.3 10*9/L [4.0 - 10.0] Haemoglobin
Good afternoon Could I have someones Opinion on my test results please all were taken as a fasting with no levothyroxine taken until after my blood was drawn at 8.05am. I did ask for T3 but not there Thank you for looking. Full blood count Total white blood count: 8.3 10*9/L [4.0 - 10.0] Haemoglobin
ENGLISHTEA
in
Thyroid UK
1 year ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
10 months ago
Key Vitamin test results and assistance with others...
Evening, Would people be so kind as to comment on my vitamin test results and help me understand others? B12: 616 ng/l - Range 145.00 - 914.00 Folate: 22.72 ug/l - 3.00 - 20.00 (just swapped over to methyl folate). Vit D: 80 nmol HbA1c level (DCCT aligned) 5.5 % HbA1c level 36 mnol/mol range
Evening, Would people be so kind as to comment on my vitamin test results and help me understand others? B12: 616 ng/l - Range 145.00 - 914.00 Folate: 22.72 ug/l - 3.00 - 20.00 (just swapped over to methyl folate). Vit D: 80 nmol HbA1c level (DCCT aligned) 5.5 % HbA1c level 36 mnol/mol range
joey82
in
Thyroid UK
1 year ago
MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
Reaction to B12 injection?
Hi there, I was recently diagnosed with PA (April this year) and had my 6 loading doses. Last Tuesday afternoon I had my first injection after 3 months and on Friday I woke up and felt light headed, dizzy, naseous and just completely exhausted. Im improved but still not feeling back to my normal self
Hi there, I was recently diagnosed with PA (April this year) and had my 6 loading doses. Last Tuesday afternoon I had my first injection after 3 months and on Friday I woke up and felt light headed, dizzy, naseous and just completely exhausted. Im improved but still not feeling back to my normal self
Amymyla87
in
Pernicious Anaemia Society
1 year ago
how long after beginning injections did you feel better?
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
Merlotponty
in
Pernicious Anaemia Society
1 year ago
Advice on latest ferritin, VitD, vitB12 please
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Insomania
in
Thyroid UK
1 year ago
cholesterol supplements and testing
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Lindsayf
in
Thyroid UK
1 year ago
B12 levels while on 8 weekly injections
Hi all I’m in the UK and am wondering what your B12 levels should be when on 8 weekly injections. After loading doses I started on 12 weekly jabs. After a few years I had symptoms again so it was agreed that I move to every 8 weeks. I started having Symptoms again and my doctor has agreed that if
Hi all I’m in the UK and am wondering what your B12 levels should be when on 8 weekly injections. After loading doses I started on 12 weekly jabs. After a few years I had symptoms again so it was agreed that I move to every 8 weeks. I started having Symptoms again and my doctor has agreed that if
cec57
in
Pernicious Anaemia Society
1 year ago
iron supplements
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
Kowbie
in
Pernicious Anaemia Society
10 months ago
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