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Decided to opt out of at home hospice after six weeks
I feel good. I do not even feel sick. I still am on strong pain meds, but I no longer need the walker (the enhertu infusion from hell). The nurse comes twice a week at first and I said No, not necessary. So they cut it down to once a week. It is ridiculous. The nurse writes to her boss (the doctor
I feel good. I do not even feel sick. I still am on strong pain meds, but I no longer need the walker (the enhertu infusion from hell). The nurse comes twice a week at first and I said No, not necessary. So they cut it down to once a week. It is ridiculous. The nurse writes to her boss (the doctor
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
Rapid onset of burning in joints at rest and worse when moving
My conditions are in my bio (plus a new one… granulamatosis angiitis of the brain and cns). I’ve had pain in some of my joint (hands and feet) that are easily attributed to swelling and nerve damage. Nothing new there. But over the past month I started feeling burning in most of my major joints (shoulders
My conditions are in my bio (plus a new one… granulamatosis angiitis of the brain and cns). I’ve had pain in some of my joint (hands and feet) that are easily attributed to swelling and nerve damage. Nothing new there. But over the past month I started feeling burning in most of my major joints (shoulders
TiredNerd
in
NRAS
2 years ago
Pain in right hip and leg
I have been getting pain & tingling in my right hip and leg since June 2022. I though it was sciatica at first but when I went to my GP she sent me for an MRI which showed Spinal Stenosis. No amount of pain killers help & still waiting for physio. GPS has suggested Amiltripline, has anyone used
I have been getting pain & tingling in my right hip and leg since June 2022. I though it was sciatica at first but when I went to my GP she sent me for an MRI which showed Spinal Stenosis. No amount of pain killers help & still waiting for physio. GPS has suggested Amiltripline, has anyone used
195536
in
PMRGCAuk
2 years ago
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Lesions on the Bowel
Hi there, I have recently undergone laparoscopic excision of endometriosis and adhesiolysis at the end of January. So over a week post op. My surgeon found deep and well established lesions from my Sigmoid, lower part of my bowel to the wall of my left ovary. All of my peritoneum was excised completely
Hi there, I have recently undergone laparoscopic excision of endometriosis and adhesiolysis at the end of January. So over a week post op. My surgeon found deep and well established lesions from my Sigmoid, lower part of my bowel to the wall of my left ovary. All of my peritoneum was excised completely
Freddylove33
in
Endometriosis UK
2 years ago
Long term IBS sufferer being referred to rapid dignostic clinic
Hi, I have had IBS(C) for over 30 years following surgery for Appendicitis aged 10 (which nobody believed me about and I had it for 1.5 years with everyone saying I was a time waster/attention seeker, until I nearly died). I get horrific pain, bloating, all the usual stuff, but also I can become so
Hi, I have had IBS(C) for over 30 years following surgery for Appendicitis aged 10 (which nobody believed me about and I had it for 1.5 years with everyone saying I was a time waster/attention seeker, until I nearly died). I get horrific pain, bloating, all the usual stuff, but also I can become so
Metallimel
in
Colon Cancer Connected
2 years ago
Can anyone tell me anything I can do for the pain in left leg
Hey im in excruciating pain going straight into my ankle I can’t handle it constantly waking up in tears because the pain i can barely walk on it I just need remedies or something I don’t know what to do the pain killers the doctors have given me isn’t helping 😔
Hey im in excruciating pain going straight into my ankle I can’t handle it constantly waking up in tears because the pain i can barely walk on it I just need remedies or something I don’t know what to do the pain killers the doctors have given me isn’t helping 😔
Dlousie1996
in
Fibromyalgia Action UK
2 years ago
Struggling to get comfortable when sleeping
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Derek1uk
in
PSP Association
2 years ago
ongoing symptoms ..
Wednesday I had a colonoscopy to a reason of a positive FIT test of 184. Very relieved to find nothing sinister just my very sluggish and constipated bowels. Fast forward to this morning .. and the upper GI. Worst procedure ever, spent whole time gagging. However reason for pain etc was found in minutes
Wednesday I had a colonoscopy to a reason of a positive FIT test of 184. Very relieved to find nothing sinister just my very sluggish and constipated bowels. Fast forward to this morning .. and the upper GI. Worst procedure ever, spent whole time gagging. However reason for pain etc was found in minutes
Bizzyissy
in
Multiple System Atrophy Trust
2 years ago
pain pain go away
I have two round swollen lumps on both sides near my hips but in the
groin
part and my back is another level of
pain
with it radiating up towards my shoulders and down my left arm. I feel like such a wimp for crying but this evening endo and adeno have definitely got the better of me :(
I have two round swollen lumps on both sides near my hips but in the
groin
part and my back is another level of
pain
with it radiating up towards my shoulders and down my left arm. I feel like such a wimp for crying but this evening endo and adeno have definitely got the better of me :(
Kieraface
in
Endometriosis UK
11 months ago
pain relief for headache/sore throats after AF
hi all. I am new to this group. Pleased to join you all. I have just reverted back to sinus after 8 days in AF. This is the 3rd time in 6 months. Each time reverted back in about a week. Unfortunately this time I’ve gone back to sinus but have contracted a stinking cold/flu. Are there any pain killers
hi all. I am new to this group. Pleased to join you all. I have just reverted back to sinus after 8 days in AF. This is the 3rd time in 6 months. Each time reverted back in about a week. Unfortunately this time I’ve gone back to sinus but have contracted a stinking cold/flu. Are there any pain killers
OscarN
in
AF Association
2 years ago
Hqve you heard this... 'Pregnancy can cure it we don't know why'
I've been told from a scan it is expected I have adenomyosis.They've done a lap and it was negative to endo, and they're going to do an MRI. Theyve said if the MRI is clear then I should maybe have a baby as it has been shown to help and potentially stop all symptoms of the condition. Anyone else been
I've been told from a scan it is expected I have adenomyosis.They've done a lap and it was negative to endo, and they're going to do an MRI. Theyve said if the MRI is clear then I should maybe have a baby as it has been shown to help and potentially stop all symptoms of the condition. Anyone else been
Bluehusky96
in
Endometriosis UK
2 years ago
Xeloda/Cape-Hand/Foot & Essential Oil Help
For those experiencing sore feet with cape: I had responded to BettyBucket with info about Topical Heparin Gel, but now also have some info about essential oil use for help if you need it. I realize not everyone believes in essential oil use, or has a stock....but for those who are interested, after
For those experiencing sore feet with cape: I had responded to BettyBucket with info about Topical Heparin Gel, but now also have some info about essential oil use for help if you need it. I realize not everyone believes in essential oil use, or has a stock....but for those who are interested, after
doulos21
in
SHARE Metastatic Breast Cancer
2 years ago
Roller Coaster Ride
I haven’t been very present in the group this last week. It’s been a very up and down time. Briefly I’ve had an awful time, feeling confused, exhausted and abandoned. One doctor on a telephone call upped my pred dose from 15 to 30, increased my painkillers for the better. After several bad nights both
I haven’t been very present in the group this last week. It’s been a very up and down time. Briefly I’ve had an awful time, feeling confused, exhausted and abandoned. One doctor on a telephone call upped my pred dose from 15 to 30, increased my painkillers for the better. After several bad nights both
BigEric
in
PMRGCAuk
2 years ago
painkiller recommendations?
hi all, I hope everyone is okay. I’ve been struggling with chronic daily pain, I have severe endo which has caused one of my kidneys to fail and so I have a stent in my left kidney to help it drain. This contributes to my pain but it is mainly a deep ache in my hip, pelvis and abdomen which I’m sure
hi all, I hope everyone is okay. I’ve been struggling with chronic daily pain, I have severe endo which has caused one of my kidneys to fail and so I have a stent in my left kidney to help it drain. This contributes to my pain but it is mainly a deep ache in my hip, pelvis and abdomen which I’m sure
TashaBarry
in
Endometriosis UK
2 years ago
Feeling a bit down. Slipped disc and just been told that I should start treatment soon.
The start to 2023 has not been great for me. Diagnosed with an L5/S1 prolapse last week. The sciatic pain has literally had me in spasms on our sofa, unable to speak. I am on a cocktail of painkillers and see the consultant next Tuesday to decide on options. I know that I can't continue with this level
The start to 2023 has not been great for me. Diagnosed with an L5/S1 prolapse last week. The sciatic pain has literally had me in spasms on our sofa, unable to speak. I am on a cocktail of painkillers and see the consultant next Tuesday to decide on options. I know that I can't continue with this level
FairweatherSailor
in
CLL Support
2 years ago
It Is NOT just Prednisolone
I have just posted this on another thread. How our bodies and muscles in particular, react to this drug is critical to the way we need to address dosage and approach. Here is my take on how this condition moulds us and progresses. Confusing symptoms occur and they are similar to many conditions so
I have just posted this on another thread. How our bodies and muscles in particular, react to this drug is critical to the way we need to address dosage and approach. Here is my take on how this condition moulds us and progresses. Confusing symptoms occur and they are similar to many conditions so
cycli
in
PMRGCAuk
2 years ago
Any ideas?
It comes in waves, dull ache increasing to sharp
pain
that goes round side and down into
groin
. Went to A and E today and he has no red flags showing, they don't think its kidneys bit don't know what it is.
It comes in waves, dull ache increasing to sharp
pain
that goes round side and down into
groin
. Went to A and E today and he has no red flags showing, they don't think its kidneys bit don't know what it is.
Ewife
in
British Liver Trust
9 months ago
Pain from ribs to knees with added extras
I have developed nerve damage to my left side, odd as pain started on the right, leg goes numb cant lift foot properly, back problems, weakness in hand and arm, dizzyness, changes to my vision, hip pains,
groin
and vaginal
pain
.
I have developed nerve damage to my left side, odd as pain started on the right, leg goes numb cant lift foot properly, back problems, weakness in hand and arm, dizzyness, changes to my vision, hip pains,
groin
and vaginal
pain
.
rubine7521
in
Women's Health
1 year ago
Pain from ribs to knees with added extras
I have developed nerve damage to my left side, odd as pain started on the right, leg goes numb cant lift foot properly, back problems, weakness in hand and arm, dizzyness, changes to my vision, hip pains,
groin
and vaginal
pain
.
I have developed nerve damage to my left side, odd as pain started on the right, leg goes numb cant lift foot properly, back problems, weakness in hand and arm, dizzyness, changes to my vision, hip pains,
groin
and vaginal
pain
.
rubine7521
in
Pelvic Pain Support Network
1 year ago
? increase Pred
I have just come back from skiing, which I only did for a couple of days we were away and didn't over do it at all. I feel sore all over, bilaterally and pain killers don't make a difference so I am assuming it is polymyalgia. I am exhausted too and just had a row with my daughter over babysitting (
I have just come back from skiing, which I only did for a couple of days we were away and didn't over do it at all. I feel sore all over, bilaterally and pain killers don't make a difference so I am assuming it is polymyalgia. I am exhausted too and just had a row with my daughter over babysitting (
Bubble56
in
PMRGCAuk
2 years ago
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