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Priorities for achalasia research
One of the exercises we have been undertaking in Achalasia Action is trying to work out what research would gain most support from those with achalasia. After all, people with achalasia are the ones most affected! So this is a brief summary of our work so far, and we would value any comments, suggestions
One of the exercises we have been undertaking in Achalasia Action is trying to work out what research would gain most support from those with achalasia. After all, people with achalasia are the ones most affected! So this is a brief summary of our work so far, and we would value any comments, suggestions
Alan_M
Partner
in
Achalasia Action
3 years ago
Accute Pain In Shins And Ankles
Legs! Recently my legs have been in severe pain. After a few hundred yards walking on the street my ankles develop a pain, further on and the pain moves to my shin bones and muscles. Then I have to rest and lean on something unless a seat is nearby. Purchased disolving pain killers from Pharmacy. Chemist
Legs! Recently my legs have been in severe pain. After a few hundred yards walking on the street my ankles develop a pain, further on and the pain moves to my shin bones and muscles. Then I have to rest and lean on something unless a seat is nearby. Purchased disolving pain killers from Pharmacy. Chemist
Cavallo
in
Headway
3 years ago
Continuous leg pain especially at night
I have suffered with severe leg pains especially at nights. Usually I get very little sleep. Sometimes the pain is very severe. The doctors have given me very strong pain killers but they don't always work. Actually mostly they don't work. I do get fed up with this. Also my husband as I very seldom to
I have suffered with severe leg pains especially at nights. Usually I get very little sleep. Sometimes the pain is very severe. The doctors have given me very strong pain killers but they don't always work. Actually mostly they don't work. I do get fed up with this. Also my husband as I very seldom to
Megan111243
in
Pain Concern
3 years ago
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Hip/pelvic aches 8DP6DT? Has anyone ever experienced this?
It’s not
pain
, it’s just achy. I’m getting it across the
groin
(both sides) and outer hips, down into the thighs a little. Even feels a bit tender deep in the pelvis between the vagina and anus.
It’s not
pain
, it’s just achy. I’m getting it across the
groin
(both sides) and outer hips, down into the thighs a little. Even feels a bit tender deep in the pelvis between the vagina and anus.
KC8990
in
Fertility Network UK
3 years ago
Pain relief
Just been prescribed nortriptyline for pain due to nerve pain that is causing headaches and such , has anyone used these and and are they good at relieving the pain or is it another tablet to make you feel weird and funky. Can honestly say I’m now a nervous paranoid wreck after going through encephalitis
Just been prescribed nortriptyline for pain due to nerve pain that is causing headaches and such , has anyone used these and and are they good at relieving the pain or is it another tablet to make you feel weird and funky. Can honestly say I’m now a nervous paranoid wreck after going through encephalitis
Heavychunky1
in
Encephalitis International
3 years ago
Getting stronger
Tomorrow it will be 2 weeks I have been home. I have had a fantastic follow up by a cardiac nurse,who gave me a right bollocking. Firstly for doing too much walking and for not taking the right amount of pain killers. I am now doing 2x15 min walks and started the full paracetamol and codeine dosage.
Tomorrow it will be 2 weeks I have been home. I have had a fantastic follow up by a cardiac nurse,who gave me a right bollocking. Firstly for doing too much walking and for not taking the right amount of pain killers. I am now doing 2x15 min walks and started the full paracetamol and codeine dosage.
Carluke
in
British Heart Foundation
3 years ago
Failed Right Wrist Ulna Resection Surgery,Fusion w/ Tendon transfer at 32
I'm new here and I would like to share about my severely eroded & fused right wrist. It took almost 8 years before I was diagnosed with R.A and it all started with a right wrist pain that got worse over the years. Finally got great health insurance and a great Orthopaedic surgeon that tried his best
I'm new here and I would like to share about my severely eroded & fused right wrist. It took almost 8 years before I was diagnosed with R.A and it all started with a right wrist pain that got worse over the years. Finally got great health insurance and a great Orthopaedic surgeon that tried his best
Hannahdeezy
in
NRAS
3 years ago
Total shambles
I was due to have an operation on my foot on Tuesday. Have had the pre op and it was identified that my platelets are low as are my white cells. They said they would order up platelets. Upshot is the condition of my sleen which is enlarged has been an issue from day 1. I understand that this is a feature
I was due to have an operation on my foot on Tuesday. Have had the pre op and it was identified that my platelets are low as are my white cells. They said they would order up platelets. Upshot is the condition of my sleen which is enlarged has been an issue from day 1. I understand that this is a feature
Violet74
in
British Liver Trust
3 years ago
Mail Africa.
Good morning, I have had a wound on the top of my foot since last year in August, of which it has been a bother, as I have been to several Doctors, who have given me the same sort of treatment, such as antibiotics and pain killers. I went to our family
Good morning, I have had a wound on the top of my foot since last year in August, of which it has been a bother, as I have been to several Doctors, who have given me the same sort of treatment, such as antibiotics and pain killers. I went to our family
Gertzm
in
Pain Concern
3 years ago
Aches and pains but not PMR/GCA
I’m now down to 10mg pred , having come down from 60mg, and I’ve started to ache all over and painkillers are pretty useless. Spoke to the GP, who immediately got me in for a blood test which has shown that my ESR is still down to a wonderful 2 but my white blood cell count is higher than before. She
I’m now down to 10mg pred , having come down from 60mg, and I’ve started to ache all over and painkillers are pretty useless. Spoke to the GP, who immediately got me in for a blood test which has shown that my ESR is still down to a wonderful 2 but my white blood cell count is higher than before. She
PuttyPenguin
in
PMRGCAuk
3 years ago
Do I have endometriosis? Ovarian cysts.
Hi everyone, I’m new to this group and I haven’t been diagnosed with endometriosis but I really don’t know where to turn right now, I’m at a bit of a loss. I was wondering if anyone could give me reassurance that I’m not being a dramatic hypochondriac and also how do you broach the subject of endometriosis
Hi everyone, I’m new to this group and I haven’t been diagnosed with endometriosis but I really don’t know where to turn right now, I’m at a bit of a loss. I was wondering if anyone could give me reassurance that I’m not being a dramatic hypochondriac and also how do you broach the subject of endometriosis
jodiefoster1977
in
Endometriosis UK
3 years ago
Should I still be taking Omeprazole when the only pain killer I now take is paracetamol?
Good afternoon, Not posted before but have been thinking about reviewing my medication and am still on omeprazole as was taking NSAIDs for chronic back and neck pain. I have been unable to take NSAIDs since being diagnosed with AF in 2017 so wonder if I need to take them I take maybe 4 a day now as
Good afternoon, Not posted before but have been thinking about reviewing my medication and am still on omeprazole as was taking NSAIDs for chronic back and neck pain. I have been unable to take NSAIDs since being diagnosed with AF in 2017 so wonder if I need to take them I take maybe 4 a day now as
dezi
in
Pain Concern
3 years ago
How do you deal with liver pain?
Given that we all here see specialists and do tests, I want to ask you how you deal with liver pain. We can't have painkillers because they aggravate the liver. What do we do while waiting for doctors answer which I can't get any way... according to hundreds of imaging tests and fibroscan I am fine,
Given that we all here see specialists and do tests, I want to ask you how you deal with liver pain. We can't have painkillers because they aggravate the liver. What do we do while waiting for doctors answer which I can't get any way... according to hundreds of imaging tests and fibroscan I am fine,
Elenaevent
in
British Liver Trust
3 years ago
Any Experiences with Palliative Care?
Any folks have experience with palliative care. I have had MBC for slightly over 5 years and currently taking Faslodex andt recently (4 months ago) added Ibrance. I've been given many painkillers from Tramadol to Oxy and even CBD and Medical Maraj. but all of them make my pain more intense. I'm miserable
Any folks have experience with palliative care. I have had MBC for slightly over 5 years and currently taking Faslodex andt recently (4 months ago) added Ibrance. I've been given many painkillers from Tramadol to Oxy and even CBD and Medical Maraj. but all of them make my pain more intense. I'm miserable
sunnyday3
in
SHARE Metastatic Breast Cancer
3 years ago
Few questions
Hi all I just been reading comments on Facebook pmr page about gca symptoms. There was a few I wondered if they were right. So going to ask. That pain both side of head just above/behind where yr glasses would go but worse on 1 side? Head pain comes and go and is on and off over several days or wks
Hi all I just been reading comments on Facebook pmr page about gca symptoms. There was a few I wondered if they were right. So going to ask. That pain both side of head just above/behind where yr glasses would go but worse on 1 side? Head pain comes and go and is on and off over several days or wks
Hidden
in
PMRGCAuk
3 years ago
THE IKEA TEST?
The following conversation took place about 17 years ago between myself and a Orthopaedic Guy ( I have never met an Orthopaedic Gal, have you?) about my first TKR - Total Knee Replacement. Consultant: "You do realise that the knee op I am recommending is an analgesic procedure, which should relieve
The following conversation took place about 17 years ago between myself and a Orthopaedic Guy ( I have never met an Orthopaedic Gal, have you?) about my first TKR - Total Knee Replacement. Consultant: "You do realise that the knee op I am recommending is an analgesic procedure, which should relieve
RaySyl
in
AF Association
3 years ago
My life with RLS, and the lengths I will go to for relief!
I am 58, and I have had RLS for 13 years. Or I was diagnosed 13 years ago. My story is crazy , and I'm sure some won't believe it. About 15 years ago I started having bad panic attacks! I would go to the ER. Several times a week. I was treated with Xanax. It worked well for me. But then I started getting
I am 58, and I have had RLS for 13 years. Or I was diagnosed 13 years ago. My story is crazy , and I'm sure some won't believe it. About 15 years ago I started having bad panic attacks! I would go to the ER. Several times a week. I was treated with Xanax. It worked well for me. But then I started getting
1Master11
in
Restless Legs Syndrome
3 years ago
Zoladex just not helping?
Hi, Has anyone else had any experience of Zoladex just not helping? I’ve just had my 4th injection and I’m still in constant pain and on regular strong pain killers just to live! Aside from not having periods, which is the only silver lining, I’ve just not got any better - and it was almost promised
Hi, Has anyone else had any experience of Zoladex just not helping? I’ve just had my 4th injection and I’m still in constant pain and on regular strong pain killers just to live! Aside from not having periods, which is the only silver lining, I’ve just not got any better - and it was almost promised
Hidden
in
Endometriosis UK
3 years ago
Help to deal with osteoarthritis.
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers This’s affecting my daily
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers This’s affecting my daily
TM_Mansaray
in
Arthritis Action
3 years ago
Possible polyneuropathy
Hi your sore feet could be the above which I have from RA. Symptoms include stabbing pain, heat, poss numbness. Particularly bad at night and resistant to normal painkillers. Check it out.
Hi your sore feet could be the above which I have from RA. Symptoms include stabbing pain, heat, poss numbness. Particularly bad at night and resistant to normal painkillers. Check it out.
Shonkie
in
FieryBones - RA Community
3 years ago
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