does anybody else end up with their pain coming out of nowhere to just kick them right back down to the ground?
I’ve been coping pretty well with my pain recently. I may have done a little more than usual and the whole of today has been pretty horrific, pain wise, to the point that I burst into tears this evening with what can only be described as someone trying to empale me on spikes and trying to gut me. I have two round swollen lumps on both sides near my hips but in the groin part and my back is another level of pain with it radiating up towards my shoulders and down my left arm.
I feel like such a wimp for crying but this evening endo and adeno have definitely got the better of me
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Kieraface
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Yes I have cried many times whilst in pain and also because I have Adeno/endo like you, very hard to live with at times.
You think you may be having a good day until the pain starts all of a sudden, I am on naproxen for the first sign of pain and when it gets stronger like labour pains i take tramadol which makes me feel 🤮
I’ve got some diclofenic: I was offered codeine but due to kink in my bowel I can’t have that as it ‘blocks you up’ and I already have toilet issues, then they offered morphine - I’m allergic to it 🙈 so only diclofenic and paracetamol can be used and it’s not even touching the sides. Still bad today but at work because I can’t afford not to be hope you’re ok x
Hi All that glitters. I too take tramadol for pain. I have been prescribed cyclazine by my gp for the nausea which works really well for me. After about half an hour it kicks in for me and I can eat again. It does however have the potential side effect of making you sleepy. For me this is a plus when I take it in the evening as it can help me drift off even when I’m in a lot of pain.
Thank you I have never heard of this anti sickness drug 😊tramadol use to knock me completely out but now it makes me so alert. Maybe my body is too use to it now x
You’re definitely not a wimp Kieraface. I had one of these days yesterday when I woke up in pain and just sat on the sofa all day and had a good cry. I was giving myself a hard time for ‘wasting the day’ even though I couldn’t help the pain. There’s only so much we can take and trying to stay brave everyday is hard work! Don’t give yourself a hard time in those moments. I hope you’re feeling a little better 🥰 xx
everyday is so hard! As horrible as it is to say it’s nice knowing I’m not alone in this and someone understands what it’s like. Obviously, I wish none of us did but it’s nice to have someone understand you and your circumstances. I hope you’re ok today. I am still suffering pretty badly xx
I know I felt exactly the same when I joined here not that long ago. It’s awful that we have to suffer but reassuring to know you’re not going through it alone. I’m feeling slightly better pain wise today but my mood feels super low at the moment with it all. We just have to take each day as it comes and try not to give ourselves a hard time ♥️ xx
I’m so sorry it’s taking so long to get seen. Nhs is so strapped atm and with the strikes it seems to be so hard for anybody to get seen/treated/get answers. I hope you get seen sooner but if pain is really bad it maybe worth speaking to your gp for some relief. I can’t take any due to the kink in my bowel. It will cause constipation pain which is an issue already but you may find it helpful x
You poor love. It is so debilitating. The best thing I bought was a plug in heat pad from Argos. Like you say, the strong painkillers help but cause other side effects. I also find dispersible Paracetamol works better/faster for some reason. I also find Epsom bath salts helpful too. I hope you find some relief soon 💕💕
Thank you, I’m on day 3 of crying pain so it’s not great. Just counting down the days to surgery and praying that that helps!
I may give the bath salts a go. Thank you for that! Although I’ve been sweating really bad past few days - I’m struggling to control my temperature- I’ve had a fever so a bath might not be ideal atm for me.
Thanks for tip about the paracetamol! Hope you’re ok x
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