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Giant axonal neuropathy
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Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
2 months ago
Still no diagnosis and feeling dosheartened
I felt so certain I had PA but my gp has told me both tests done were normal. My B12 has been between 190 and 246 and that was with supplements but it has always dropped down over the past few years. I’ve been given a 3 monthly B12 and had my first dose but my GP has declined me loading doses even though
I felt so certain I had PA but my gp has told me both tests done were normal. My B12 has been between 190 and 246 and that was with supplements but it has always dropped down over the past few years. I’ve been given a 3 monthly B12 and had my first dose but my GP has declined me loading doses even though
Curiouselephant
in
Pernicious Anaemia Society
6 months ago
My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
6 months ago
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Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
2 months ago
Neuropathy in feet, stopping Cymbalta - try more natural?
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
Shomacco
in
Neuropathy Support
6 months ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
3 months ago
What I use for my neuropathy
Certain alt treatment I am taking has temporary neuropathy as a listed side effect treatable with daily dosage of Benfotiamine, R-Lipoic-Acid- and optional use of Acetyl-L-Carnitine all suppliments and to add to this list I will be adding Lions Mane mushroom , having a neuroregenerative effect. also
Certain alt treatment I am taking has temporary neuropathy as a listed side effect treatable with daily dosage of Benfotiamine, R-Lipoic-Acid- and optional use of Acetyl-L-Carnitine all suppliments and to add to this list I will be adding Lions Mane mushroom , having a neuroregenerative effect. also
85745
in
Advanced Prostate Cancer
7 months ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
3 months ago
foot pain
Does anyone have horrendous pain in the ball of their feet and sometimes in toes. Sometimes on one or the other and sometimes on both? It’s affecting me walking :(
Does anyone have horrendous pain in the ball of their feet and sometimes in toes. Sometimes on one or the other and sometimes on both? It’s affecting me walking :(
Merc19
in
Fibromyalgia Action UK
7 months ago
Secondary Cancers after CAR-T Cell Therapy
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
Jm954
Administrator
in
CLL Support
7 months ago
SI - opinion valued
Have been SI sub cut EOD since late July 2023, (due to neuropathy and have a formal diagnosis from neurologist of Short Fibre Neuropathy). I had been using Panpharma but due to supply issues have secured a delivery of Pasco Hydoxocobalamin instead. So my question is: Shall I carry on EOD with the
Have been SI sub cut EOD since late July 2023, (due to neuropathy and have a formal diagnosis from neurologist of Short Fibre Neuropathy). I had been using Panpharma but due to supply issues have secured a delivery of Pasco Hydoxocobalamin instead. So my question is: Shall I carry on EOD with the
JanCymru
in
Pernicious Anaemia Society
7 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
7 months ago
Peripheral neuropathy
Just researching vitamin K2 and found this..... Peripheral neuropathy (PN) Diabetic peripheral neuropathy is a frequent and severe complication of diabetes. A recent study aimed to evaluate factors associated with sensitive diabetic neuropathy in Type 2 Diabetes, and, in particular, dephospho-uncarboxylated
Just researching vitamin K2 and found this..... Peripheral neuropathy (PN) Diabetic peripheral neuropathy is a frequent and severe complication of diabetes. A recent study aimed to evaluate factors associated with sensitive diabetic neuropathy in Type 2 Diabetes, and, in particular, dephospho-uncarboxylated
tomdickharry
in
Pernicious Anaemia Society
7 months ago
Dicyclomine will work with Docetaxel ?
Will this work ? https://www.genengnews.com/topics/cancer/ibs-drug-restores-chemotherapy-effectiveness-against-resistant-prostate-cancer/
Will this work ? https://www.genengnews.com/topics/cancer/ibs-drug-restores-chemotherapy-effectiveness-against-resistant-prostate-cancer/
Manilo
in
Advanced Prostate Cancer
7 months ago
Transitioning to Gabapentin Enacarbil
I need some advice when it comes to starting Horizant while moving away from Pramipexole. I've been on Pram for about 12 years and although it still works generally, it's getting less an less effective. So it's time to move on. Gabapentin Enacarbil (Horizant) is what I'm moving to. My question
I need some advice when it comes to starting Horizant while moving away from Pramipexole. I've been on Pram for about 12 years and although it still works generally, it's getting less an less effective. So it's time to move on. Gabapentin Enacarbil (Horizant) is what I'm moving to. My question
grizzly99
in
Restless Legs Syndrome
7 months ago
Creatine
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
amt50
in
PBC Foundation
7 months ago
peripheral neuropathy
Hello, I am on R and V as a second line treatment having relapsed after a short number of months following two years of I and V on the FLAIR trial. I am having problems with peripheral neuropathy pains which medications aren’t really helping with……and the cold weather definitely doesn’t help! I am
Hello, I am on R and V as a second line treatment having relapsed after a short number of months following two years of I and V on the FLAIR trial. I am having problems with peripheral neuropathy pains which medications aren’t really helping with……and the cold weather definitely doesn’t help! I am
hector66
in
CLL Support
7 months ago
Something to celebrate
I just needed somewhere to share my elation!! I've been having regular flare ups of both lupus and rheumatoid even though I'm on the highest doses of medication I can be on. Everytime I've been for bloods everything has pretty much come back within normal range. I've been experiencing altered sensations
I just needed somewhere to share my elation!! I've been having regular flare ups of both lupus and rheumatoid even though I'm on the highest doses of medication I can be on. Everytime I've been for bloods everything has pretty much come back within normal range. I've been experiencing altered sensations
Sunshine634
in
LUPUS UK
7 months ago
Interesting Article: Promising new remedies for Parkinson's disease
Update:
I read and researched as I was posting this. I am happy they put NR and PEA in their article, but I think they got a little over their skis stating they had found a "
A dynamic quartet
" [u]
Update Again! Please see Park Bear's Citicoline Warning
[/u] https://healthunlocked.com
Update:
I read and researched as I was posting this. I am happy they put NR and PEA in their article, but I think they got a little over their skis stating they had found a "
A dynamic quartet
" [u]
Update Again! Please see Park Bear's Citicoline Warning
[/u] https://healthunlocked.com
Bolt_Upright
in
Cure Parkinson's
7 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
4 months ago
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