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Giant axonal neuropathy
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CMT carrier
I have genetic testing stating I am a CMT4j carrier. But I believe I have CMT symptoms. Typical high arches with 8 hammer toes. Peripheral neuropathy. Pain in hands, weak hands and respiratory issues. Is it possible to be a carrier WITH symptoms? My neuromuscular doctor says no.
I have genetic testing stating I am a CMT4j carrier. But I believe I have CMT symptoms. Typical high arches with 8 hammer toes. Peripheral neuropathy. Pain in hands, weak hands and respiratory issues. Is it possible to be a carrier WITH symptoms? My neuromuscular doctor says no.
Moonshadows
in
Charcot-Marie-Tooth UK
4 years ago
Is VERU-111 (Novel Oral Tubulin Inhibitor) similar to Fenbendazole or Mebendazole?
Does anyone have enough background to tell me if this looks like something similar to fenbendazole and/or mebendazole? VERU-111 is an oral, next-generation, first-in-class selective small molecule that targets and binds to the alpha and beta-tubulin subunits of microtubules in cells. Microtubules are
Does anyone have enough background to tell me if this looks like something similar to fenbendazole and/or mebendazole? VERU-111 is an oral, next-generation, first-in-class selective small molecule that targets and binds to the alpha and beta-tubulin subunits of microtubules in cells. Microtubules are
cigafred
in
Advanced Prostate Cancer
4 years ago
Ivf & smear test at the same time.
Hi all! I was wondering if anyone could help me. When we decided to go ahead with ivf, I asked the doctor whether I’d need a more update smear result...as it was July and my smear was due November. He said because we were starting ivf end of September we would be fine. Last Wednesday when I was due to
Hi all! I was wondering if anyone could help me. When we decided to go ahead with ivf, I asked the doctor whether I’d need a more update smear result...as it was July and my smear was due November. He said because we were starting ivf end of September we would be fine. Last Wednesday when I was due to
Nmhbaxy
in
Fertility Network UK
4 years ago
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Pbc
Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm finding working my shift pattern difficult hes reply was your bloods are ok also your liver scan so he said I cant understand why your fealing tired
Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm finding working my shift pattern difficult hes reply was your bloods are ok also your liver scan so he said I cant understand why your fealing tired
Purdy2017
in
PBC Foundation
4 years ago
Cancelled cycle due to cyst
Hello ladies my cycle was cancelled last week after 8 day stimmimg I was reacting quite well to the bureslin and gonal f apart from the cyst not letting one ovary produce any follicles. I need to have an operation to remove it before we try again. Has anyone experienced this and had to wait a long time
Hello ladies my cycle was cancelled last week after 8 day stimmimg I was reacting quite well to the bureslin and gonal f apart from the cyst not letting one ovary produce any follicles. I need to have an operation to remove it before we try again. Has anyone experienced this and had to wait a long time
Jadey36
in
Fertility Network UK
4 years ago
Day 5 stims
Hi everyone just an update, so I am on a longer protocol this time. I have taken bc for 21 days and 7 other tablets mainly multi's. Well really glad I have finished with decapeptyal the needle is really long and painful injection. Now just on gonal f and luveris. Headaches are back!! Goodluck to you
Hi everyone just an update, so I am on a longer protocol this time. I have taken bc for 21 days and 7 other tablets mainly multi's. Well really glad I have finished with decapeptyal the needle is really long and painful injection. Now just on gonal f and luveris. Headaches are back!! Goodluck to you
Pittapatta
in
Fertility Network UK
4 years ago
IVF - buserelin and gonal-f
Hi folks Hoping someone can put my mind at rest. I’ve been injecting buserelin since 1st October and had a scan on the 14th. I started bleeding on the 11th which was a relief as i could them attend my scan as planned. All looked good bar my right ovary. The sonographer said that I had what he thought
Hi folks Hoping someone can put my mind at rest. I’ve been injecting buserelin since 1st October and had a scan on the 14th. I started bleeding on the 11th which was a relief as i could them attend my scan as planned. All looked good bar my right ovary. The sonographer said that I had what he thought
Swampy_time
in
Fertility Network UK
4 years ago
Colestyramine for Mal absortion of Bile
Does anyone have experience of Colestyramine? When not taking it, has resulted in diarrhea. Suggestions would be appreciated.
Does anyone have experience of Colestyramine? When not taking it, has resulted in diarrhea. Suggestions would be appreciated.
Eastbourne11
in
IBS Network
4 years ago
First time at 40! I'm clueless!
Hi all, I have recently found this forum and loving all the advice, support and love everyone shares. I am just 40 and just started our first round of IVF. Owing to COVID-19, we have never met with the consultants but spoken online etc which, in my opinion, is a little harder to ask questions etc.
Hi all, I have recently found this forum and loving all the advice, support and love everyone shares. I am just 40 and just started our first round of IVF. Owing to COVID-19, we have never met with the consultants but spoken online etc which, in my opinion, is a little harder to ask questions etc.
Goose12345
in
Fertility Network UK
4 years ago
Occasional sore tongue
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
Karenjaninaz
in
PMRGCAuk
4 years ago
A question for my most knowledgeable friends around the world.
Recently, three years after my diagnosis, after I stopped mirapexin, I switched to an effervescent formulation of levodopa called Sirio 25/100. I take half a tablet in the morning and a half after lunch (plus 1 mg of rasagiline in the evening). Why is the best time of the day in the evening from 5pm
Recently, three years after my diagnosis, after I stopped mirapexin, I switched to an effervescent formulation of levodopa called Sirio 25/100. I take half a tablet in the morning and a half after lunch (plus 1 mg of rasagiline in the evening). Why is the best time of the day in the evening from 5pm
Lucal
in
Cure Parkinson's
4 years ago
6 days stim
Just had my scan after 6 days of stimming gonal f (375) and got 9 follies at approx 9mm one ovary not producing. Im awaiting a message from doctors for next step. Anyone know if this is good and had the same results ish ?
Just had my scan after 6 days of stimming gonal f (375) and got 9 follies at approx 9mm one ovary not producing. Im awaiting a message from doctors for next step. Anyone know if this is good and had the same results ish ?
Jadey36
in
Fertility Network UK
4 years ago
Alternative to Prednisolone
PMR 3rd day Prednisolone hair began falling out. Now stopped. Am considering naturopathy. Has anyone had any success with this or anything else?
PMR 3rd day Prednisolone hair began falling out. Now stopped. Am considering naturopathy. Has anyone had any success with this or anything else?
19741977
in
PMRGCAuk
4 years ago
First tracking scan on Gonal F
Hi, i have my first tracking scan on Friday, one week into taking Gonal F. Can someone tell me what type of scan this is? Is it an ultrascan, internal scan or both? Not sure if i have to turn up with a full bladder. Thanks in advance :)
Hi, i have my first tracking scan on Friday, one week into taking Gonal F. Can someone tell me what type of scan this is? Is it an ultrascan, internal scan or both? Not sure if i have to turn up with a full bladder. Thanks in advance :)
Nlm27
in
Fertility Network UK
4 years ago
Preparing for FET
Hi Ladies I hope some know my situation. Im 32 with 2 miscarriages in my past from ivf and IUI. In my second cycle ivf I was put on gonal f 450 and had poor response. Only 2 embryos a 4AA fresh transfer failed. One 3AB left . I wanted to have endometrial scratching, my doctor ignored my request saying
Hi Ladies I hope some know my situation. Im 32 with 2 miscarriages in my past from ivf and IUI. In my second cycle ivf I was put on gonal f 450 and had poor response. Only 2 embryos a 4AA fresh transfer failed. One 3AB left . I wanted to have endometrial scratching, my doctor ignored my request saying
Babyhope8
in
Fertility Network UK
4 years ago
1st tracking scan-IVF
so went in for my first tracking scan today. At baseline they said i had 14 follicles, today at CD9 she said there were 7 😔 im assuming she means 7 that have responded, not that 7 have dissappeared! Well my gonal f was due to finish on sunday, but they want me to continue on the Gonal F 300units and
so went in for my first tracking scan today. At baseline they said i had 14 follicles, today at CD9 she said there were 7 😔 im assuming she means 7 that have responded, not that 7 have dissappeared! Well my gonal f was due to finish on sunday, but they want me to continue on the Gonal F 300units and
Lissydoll_88
in
Fertility Network UK
4 years ago
Stimming!
2nd day of gonal f today still on the bitch bureslin . Scan on Wednesday to see how its going. My first ivf cycle Any cycle buddies? 😊
2nd day of gonal f today still on the bitch bureslin . Scan on Wednesday to see how its going. My first ivf cycle Any cycle buddies? 😊
Jadey36
in
Fertility Network UK
4 years ago
Medications & fiber capsules
I take 2 psyllium fiber capsules with 8 ounces of water, twice a day because if I didn't, I'd be making *hard bricks* and they would hurt like heck when they get... eliminated. The psyllium fiber capsule part gets dissolved and the psyllium turns into a gel that goes through my system and does it's
I take 2 psyllium fiber capsules with 8 ounces of water, twice a day because if I didn't, I'd be making *hard bricks* and they would hurt like heck when they get... eliminated. The psyllium fiber capsule part gets dissolved and the psyllium turns into a gel that goes through my system and does it's
Doggiemomma
in
Atrial Fibrillation Support
4 years ago
Articles on the status of immunotherapy in PCa and infomation about AMG-160-BiTE therapy.
Hello FPC members, I found an interesting article on the status of immunotherapies in PCa which I found mentally and spiritually stimulating. I believe when you read this article, you will be surprised at all the studies that are ongoing for immunotherapy drugs alone or in combo. It includes tables
Hello FPC members, I found an interesting article on the status of immunotherapies in PCa which I found mentally and spiritually stimulating. I believe when you read this article, you will be surprised at all the studies that are ongoing for immunotherapy drugs alone or in combo. It includes tables
NPfisherman
in
Fight Prostate Cancer
4 years ago
Pebble poo, should it be dark
I've had this issue for a while now and it's constantly on and off. To try and improve it I've been eating fruit, exercising in the morning and drinking like 6 to 7 glasses of water a day. But in the days of doing that I've had 2 days of not needing to go and today having little dark pellets again. The
I've had this issue for a while now and it's constantly on and off. To try and improve it I've been eating fruit, exercising in the morning and drinking like 6 to 7 glasses of water a day. But in the days of doing that I've had 2 days of not needing to go and today having little dark pellets again. The
0879
in
Healthy Eating
4 years ago
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