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Giant axonal neuropathy
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Fantastic Book for PMR and GCA
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
Andymegv
in
PMRGCAuk
1 year ago
Steroid sparing agents
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Janeval
in
PMRGCAuk
1 year ago
Short vs long protocol
Hi guys, I’ve got another conundrum 😖 I’ve had two failed rounds of IVF on the short protocol. Both cycles resulted in far fewer than expected eggs collected and only ever one low quality embryo transferred each time. Only difference between the two cycles was my gonal f dose was doubled for the second
Hi guys, I’ve got another conundrum 😖 I’ve had two failed rounds of IVF on the short protocol. Both cycles resulted in far fewer than expected eggs collected and only ever one low quality embryo transferred each time. Only difference between the two cycles was my gonal f dose was doubled for the second
ccsea
in
Fertility Network UK
1 year ago
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Mitoxantrone
Has anyone used this for chemo? What is the likelihood of it helping where Docetaxel and Cabazitaxel did not work at all? Thank you
Has anyone used this for chemo? What is the likelihood of it helping where Docetaxel and Cabazitaxel did not work at all? Thank you
spw1
in
Advanced Prostate Cancer
1 year ago
13 days pasts trigger negative test today trigger ovitral stayed in my system right up to 3 days ago now there all clear negatives
I no I have a few more days to wait to take a dearer test , I had high hopes this month ,but this morning on the cheap test strips, I'm really edging towards IVF treatment, it's been years and I don't no if I can take any more gonal f injections as they are so hard mentally and physically , I do have
I no I have a few more days to wait to take a dearer test , I had high hopes this month ,but this morning on the cheap test strips, I'm really edging towards IVF treatment, it's been years and I don't no if I can take any more gonal f injections as they are so hard mentally and physically , I do have
Dashound1
in
Fertility Network UK
1 year ago
Gonal F 900 IU pens - do they have more than 900 in them?
Hi All, This is my first cycle using Gonal F 900 pens and have used 3 of them so far. I have read instructions several times and triple checking the dosage before injecting but after each pen is completed there is more left than it should, around 80-90 IU more for each. I am really confused if there
Hi All, This is my first cycle using Gonal F 900 pens and have used 3 of them so far. I have read instructions several times and triple checking the dosage before injecting but after each pen is completed there is more left than it should, around 80-90 IU more for each. I am really confused if there
Lily_82
in
Fertility Network UK
1 year ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
10 months ago
bowel endo issues
Hi all, I have deep infiltrated endo on my bowel (diagnosed via scan and mri 3 years ago) and superficial on my uterus but my bowel issues have been getting worse lately probably after all the pain medications and hormone treatment i’ve been trialling to avoid surgery! It’s to the point now I can
Hi all, I have deep infiltrated endo on my bowel (diagnosed via scan and mri 3 years ago) and superficial on my uterus but my bowel issues have been getting worse lately probably after all the pain medications and hormone treatment i’ve been trialling to avoid surgery! It’s to the point now I can
Karen_92
in
Endometriosis UK
10 months ago
spasmonal (alverine citrate for constipation
hi has anyone tried this for constipation as I’m still struggling with constipation which leans on my bowel due to long redundant loops if my bowel. Apparently Spasmonal helps with spasms for the bowel and uterus I haven’t got a uterus anymore but might help bladder spasms too?? But I’m wary as I thought
hi has anyone tried this for constipation as I’m still struggling with constipation which leans on my bowel due to long redundant loops if my bowel. Apparently Spasmonal helps with spasms for the bowel and uterus I haven’t got a uterus anymore but might help bladder spasms too?? But I’m wary as I thought
Nerissa
in
IBS Network
10 months ago
Creatine (as opposed to Creatinine): Pros & Cons Regarding Prostate Cancer & CD4 T-Cell levels
Dr. Myers used to prescribe Creatine to his prostate cancer patients and patients who had low CD4 T-Cell levels. Is anyone here currently taking, or consciously not taking, CD4 T-Cells. What are your opinions, pro and con, about Creatine? Any opinions generally about low CD4 T-Cell levels from prostate
Dr. Myers used to prescribe Creatine to his prostate cancer patients and patients who had low CD4 T-Cell levels. Is anyone here currently taking, or consciously not taking, CD4 T-Cells. What are your opinions, pro and con, about Creatine? Any opinions generally about low CD4 T-Cell levels from prostate
cesces
in
Advanced Prostate Cancer
1 year ago
Indomethacin - resenisitize to Enza
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
Hidden
in
Fight Prostate Cancer
11 months ago
Been Recently Diagnosed With Having MGUS But Don’t Fully Understand This New Diagnosis
Any Body Heard Of This Diagnosis As Well As An APS Sufferer My paraproteinaemia has Raised To 20 it Was 16 in August Obviously Another Blood Test In 3 Months Time , Obviously I’m Under Hematology At Our Local Hospital
Any Body Heard Of This Diagnosis As Well As An APS Sufferer My paraproteinaemia has Raised To 20 it Was 16 in August Obviously Another Blood Test In 3 Months Time , Obviously I’m Under Hematology At Our Local Hospital
Markgammon06
in
Hughes Syndrome APS Forum
1 year ago
Chronic constipation
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
Liv12b
in
IBS Network
11 months ago
Mitochondrial Dysfunction and Parkinson’s Disease—Near-Infrared Photobiomodulation as a Potential Therapeutic Strategy
This article references the 830 nm near infrared that is in the inexpensive red light hat I posted about earlier. https://www.frontiersin.org/articles/10.3389/fnagi.2020.00089/full The red light LEDs are 660 nm and the article references 670 nm, but hey it's half of them that are to the nm. https
This article references the 830 nm near infrared that is in the inexpensive red light hat I posted about earlier. https://www.frontiersin.org/articles/10.3389/fnagi.2020.00089/full The red light LEDs are 660 nm and the article references 670 nm, but hey it's half of them that are to the nm. https
TomandDon
in
Cure Parkinson's
1 year ago
Creatine Clearance while on Edoxaban
I’m sitting in Spain today ( bright sunshine and frost - lovely ) and idly checked my NHS record. I was interested to see on my record that today while I was climbing on a mountain I had had a consultation at my surgery and my Creatine Clearance had been calculated without any notification, without
I’m sitting in Spain today ( bright sunshine and frost - lovely ) and idly checked my NHS record. I was interested to see on my record that today while I was climbing on a mountain I had had a consultation at my surgery and my Creatine Clearance had been calculated without any notification, without
Hidden
in
AF Association
1 year ago
Gonal F protocol
Hi Lovely people, Apparently there’s a UK national shortage of menopur and I am to start a gonal F short protocol in the next few days. I 41 and to start changing protocols is worrying. Has anyone one else used only gonal F? If so please, share your stories good or bad xxx
Hi Lovely people, Apparently there’s a UK national shortage of menopur and I am to start a gonal F short protocol in the next few days. I 41 and to start changing protocols is worrying. Has anyone one else used only gonal F? If so please, share your stories good or bad xxx
Anonymou5
in
Fertility Network UK
1 year ago
Fibro pain or nerve damage?
I was diagnosed with fibro about a year ago and have had RA for about 5 years (which is currently in clinical remission). Over the last couple of years at random intervals I've been experiencing excruciating electric shock like pains in the outer side of my right foot, always in the exact same spot.
I was diagnosed with fibro about a year ago and have had RA for about 5 years (which is currently in clinical remission). Over the last couple of years at random intervals I've been experiencing excruciating electric shock like pains in the outer side of my right foot, always in the exact same spot.
mjrminor
in
Fibromyalgia Action UK
1 year ago
helped needed on how to treat internal tremors in arms and legs
I was diagnosed with PD over 3 years ago and prescribed Rasagiline and Madopar. Sorted RLS with TruNiagen. Nicotinamide Riboside Sorted most PD symptoms with B1 sublingual. Eg balance, arm swing, smile, energy etc. My problem now is internal tingling down arms and legs without visible movement.
I was diagnosed with PD over 3 years ago and prescribed Rasagiline and Madopar. Sorted RLS with TruNiagen. Nicotinamide Riboside Sorted most PD symptoms with B1 sublingual. Eg balance, arm swing, smile, energy etc. My problem now is internal tingling down arms and legs without visible movement.
Windermere1
in
Cure Parkinson's
1 year ago
NAD+, NMN, SARM1 and neuroprotection.
FOR INFORMATIONAL PURPOSES ONLY ………..Wallerian Degeneration……………. Axons are considered to be a particularly vulnerable component of the nervous system; impairment of a neuron's axon leads to an effective silencing of a neuron's ability to communicate with other cells. 1 The nervous system has therefore
FOR INFORMATIONAL PURPOSES ONLY ………..Wallerian Degeneration……………. Axons are considered to be a particularly vulnerable component of the nervous system; impairment of a neuron's axon leads to an effective silencing of a neuron's ability to communicate with other cells. 1 The nervous system has therefore
House2
in
Cure Parkinson's
1 year ago
Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
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