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Giant axonal neuropathy
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helped needed on how to treat internal tremors in arms and legs
I was diagnosed with PD over 3 years ago and prescribed Rasagiline and Madopar. Sorted RLS with TruNiagen. Nicotinamide Riboside Sorted most PD symptoms with B1 sublingual. Eg balance, arm swing, smile, energy etc. My problem now is internal tingling down arms and legs without visible movement.
I was diagnosed with PD over 3 years ago and prescribed Rasagiline and Madopar. Sorted RLS with TruNiagen. Nicotinamide Riboside Sorted most PD symptoms with B1 sublingual. Eg balance, arm swing, smile, energy etc. My problem now is internal tingling down arms and legs without visible movement.
Windermere1
in
Cure Parkinson's
1 year ago
NAD+, NMN, SARM1 and neuroprotection.
FOR INFORMATIONAL PURPOSES ONLY ………..Wallerian Degeneration……………. Axons are considered to be a particularly vulnerable component of the nervous system; impairment of a neuron's axon leads to an effective silencing of a neuron's ability to communicate with other cells. 1 The nervous system has therefore
FOR INFORMATIONAL PURPOSES ONLY ………..Wallerian Degeneration……………. Axons are considered to be a particularly vulnerable component of the nervous system; impairment of a neuron's axon leads to an effective silencing of a neuron's ability to communicate with other cells. 1 The nervous system has therefore
House2
in
Cure Parkinson's
1 year ago
Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
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Do l have Peripheral Neuropathy?
I am a diabetic, last 10 years on Metformin 500 mg twice daily with Glimipride 2mg. Now having hot sensations, tingling in the legs, some times fingers, and wondering if its neuropathy due to B12 deficiency? Surprising none of the expert docs told me check out blood B12 levels! Realised need after reading
I am a diabetic, last 10 years on Metformin 500 mg twice daily with Glimipride 2mg. Now having hot sensations, tingling in the legs, some times fingers, and wondering if its neuropathy due to B12 deficiency? Surprising none of the expert docs told me check out blood B12 levels! Realised need after reading
ramkya
in
Pernicious Anaemia Society
1 year ago
Tricky biopsy results
Greetings to all dear fellows. I received the dreaded biopsy results and my physician just touched on the lack of gastric dysplasia or malignancy but did not fully explain the medical report.Its reads as follows 'The biospsies show fragments of generally thinned gastric antral mucosa with a moderate
Greetings to all dear fellows. I received the dreaded biopsy results and my physician just touched on the lack of gastric dysplasia or malignancy but did not fully explain the medical report.Its reads as follows 'The biospsies show fragments of generally thinned gastric antral mucosa with a moderate
Matebele
in
Pernicious Anaemia Society
1 year ago
Rutin / Senolytics
New paper below [1]. In 1995, Edward Giovannucci was responsible for triggering the PCa lycopene craze. "Of 46 vegetables and fruits or related products, four were significantly associated with lower prostate cancer risk; of the four--tomato sauce, tomatoes, and pizza, but not strawberries--were
New paper below [1]. In 1995, Edward Giovannucci was responsible for triggering the PCa lycopene craze. "Of 46 vegetables and fruits or related products, four were significantly associated with lower prostate cancer risk; of the four--tomato sauce, tomatoes, and pizza, but not strawberries--were
pca2004
in
Fight Prostate Cancer
11 months ago
Dual ARi in mCRPCa - Antonarakis = 'Combo of 2 AR-directed agents should not be utilized in clinical practice at this time', MedPage 7/20/23
Posted without comment for the SOC crowd. [i]
Emmanuel Antonarakis, MD, on Dual Androgen Receptor Inhibition in Metastatic Castration-Resistant Prostate Cancer– 'Combination of two androgen-directed agents should not be utilized in clinical practice at this time', MedPage Today, ASCO > Prostate Cancer
Posted without comment for the SOC crowd. [i]
Emmanuel Antonarakis, MD, on Dual Androgen Receptor Inhibition in Metastatic Castration-Resistant Prostate Cancer– 'Combination of two androgen-directed agents should not be utilized in clinical practice at this time', MedPage Today, ASCO > Prostate Cancer
cujoe
in
Fight Prostate Cancer
11 months ago
Petrified !!!!
Hello , I am 52 yrs old and this will be my first colonoscopy . For about a year I have has haemorrhoids on and off very itchy and sore bottom that goes with it. Felt the lump/s when I have had the attacks. No lumps present now. Have had some constipation lately and have seen a little blood when
Hello , I am 52 yrs old and this will be my first colonoscopy . For about a year I have has haemorrhoids on and off very itchy and sore bottom that goes with it. Felt the lump/s when I have had the attacks. No lumps present now. Have had some constipation lately and have seen a little blood when
Hidden
in
IBS Network
11 months ago
Radiation CAT scan mapping
I’m starting radiation and scheduled for CAT scan mapping of pelvic floor. Any advice on how to ensure maximum accuracy of this process? The clinic wants me to take gas-x and milk of magnesia a week prior. Assume this is to prevent full bowels to ensure that the mapping is accurate and won’t affect
I’m starting radiation and scheduled for CAT scan mapping of pelvic floor. Any advice on how to ensure maximum accuracy of this process? The clinic wants me to take gas-x and milk of magnesia a week prior. Assume this is to prevent full bowels to ensure that the mapping is accurate and won’t affect
plato123
in
Advanced Prostate Cancer
1 year ago
Breakthrough episode (Update)
My EP only put me on a miniscule dosage of sotalol as I was doing it out of hospital and couldn't be directly monitored (40mg twice a day). I feel 1000 times better, no kidding, since starting the sotalol even at this low dose. No more daily PVCs, no more extreme fatigue. After checking my QTC to
My EP only put me on a miniscule dosage of sotalol as I was doing it out of hospital and couldn't be directly monitored (40mg twice a day). I feel 1000 times better, no kidding, since starting the sotalol even at this low dose. No more daily PVCs, no more extreme fatigue. After checking my QTC to
ChasMartin
in
AF Association
1 year ago
bubbling feeling, feeling of fluid moving
See title - is this normal? Have started with thigh swelling following radical hysterectomy and pelvic surgery- feel like fluid trickling in legs but also around buttocks and feeling very scared. It is now the weekend so no help available. Had an mld the other day. Been complaining of burning and nerve
See title - is this normal? Have started with thigh swelling following radical hysterectomy and pelvic surgery- feel like fluid trickling in legs but also around buttocks and feeling very scared. It is now the weekend so no help available. Had an mld the other day. Been complaining of burning and nerve
Rosado22
in
LSN
1 year ago
Hello all
I am 41 and just started IVF. I am on day 8 of my injections ( Gonal F and menopur from day 1 and Fyremadel added from day 6). I had a scan today, however my follicles are on the small sides between 6-10cm. Has anyone been in this position around that time. How long did you have to take the injections
I am 41 and just started IVF. I am on day 8 of my injections ( Gonal F and menopur from day 1 and Fyremadel added from day 6). I had a scan today, however my follicles are on the small sides between 6-10cm. Has anyone been in this position around that time. How long did you have to take the injections
Tour_girl
in
Fertility Network UK
1 year ago
Colestyramine
I have recently had a colonoscopy which resulted in all biopsies being clear. So have had a diagnosis of ibs d and possible Bile Acid Malabsorption. My consultant started me on 1x 4g sachet once a day for a week and increased to two sachets a day for a week.But I’m still having very loose, frequent stools
I have recently had a colonoscopy which resulted in all biopsies being clear. So have had a diagnosis of ibs d and possible Bile Acid Malabsorption. My consultant started me on 1x 4g sachet once a day for a week and increased to two sachets a day for a week.But I’m still having very loose, frequent stools
Yoga82
in
IBS Network
11 months ago
SI Help and Info
Hi All My preps continue...not buying anything yet though...just getting ready.. A few questions on SI if you dont mind. The advice / experience on using hypo needles that I have gleaned from some of our wise friends in here - for subcutaneous injection - is to use G30 1/2 (half inch) needles (
Hi All My preps continue...not buying anything yet though...just getting ready.. A few questions on SI if you dont mind. The advice / experience on using hypo needles that I have gleaned from some of our wise friends in here - for subcutaneous injection - is to use G30 1/2 (half inch) needles (
Treesong2023
in
Pernicious Anaemia Society
1 year ago
total fertilisation failure with icsi
Hi Everyone, Sorry I haven’t written anything for an year.I had an ivf 2021 long protocol care and 11eggs Collected and 8were mature.It was total fertilisation failure.So we went to crgh and did a short protocol and only 9eggs collected out of so many follicles and did ICSI and picsi and AOA and imsi
Hi Everyone, Sorry I haven’t written anything for an year.I had an ivf 2021 long protocol care and 11eggs Collected and 8were mature.It was total fertilisation failure.So we went to crgh and did a short protocol and only 9eggs collected out of so many follicles and did ICSI and picsi and AOA and imsi
Sheela2021
in
Fertility Network UK
1 year ago
Treating symptoms causes more issues.
So if I use a medication to fix a symptom, I can end up worse off. Recently I took mebeverine to slow motility as I pass a lot of bowel movements a day. It was to help with morning cramps. I just felt sore, constipated and couldn’t eat as normal after. So the mebeverine fixes one problem and causes
So if I use a medication to fix a symptom, I can end up worse off. Recently I took mebeverine to slow motility as I pass a lot of bowel movements a day. It was to help with morning cramps. I just felt sore, constipated and couldn’t eat as normal after. So the mebeverine fixes one problem and causes
Mumof31983
in
IBS Network
1 year ago
Urine Calcium Test tips?
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
Regenallotment
in
Thyroid UK
1 year ago
Anti-MAG peripheral neuropathy
Has anybody been diagnosed with Anti-MAG peripheral neuropathy? I was told I had this yesterday by letter from my Neurologist after many blood tests and nerve conduction tests. Must admit I am really scared as apparently it is a rare form of neuropathy. Has anybody heard of it?
Has anybody been diagnosed with Anti-MAG peripheral neuropathy? I was told I had this yesterday by letter from my Neurologist after many blood tests and nerve conduction tests. Must admit I am really scared as apparently it is a rare form of neuropathy. Has anybody heard of it?
Karjade
in
Neuropathy Support
1 year ago
Gonal f trigger and timed intercourse missed folicle and ovulation so couldn't take my trigger injection
Hi I was taking my usual gonal f this cycle , and had day 21 day blood test came back that I had already ovulated a week ago, progesterone and estrogen are really high, so we missed a folicle somewer and completely missed the chance to trigger as I have pcos I don't ovulate myself sometimes the folicle
Hi I was taking my usual gonal f this cycle , and had day 21 day blood test came back that I had already ovulated a week ago, progesterone and estrogen are really high, so we missed a folicle somewer and completely missed the chance to trigger as I have pcos I don't ovulate myself sometimes the folicle
Dashound1
in
Fertility Network UK
1 year ago
DOES ANYONE WITH PARKINSON'S DISEASE EXPERIENCE FESTINATION?
How do you cope? I am overwhelmed with falling everyday, two to three falls daily. Do you think the specialized PD WALKER called '' STEP 2 YOU will help to reduce or prevent the falls? Please reply if you have used this walker ,before I invest my hard earned money in it.
How do you cope? I am overwhelmed with falling everyday, two to three falls daily. Do you think the specialized PD WALKER called '' STEP 2 YOU will help to reduce or prevent the falls? Please reply if you have used this walker ,before I invest my hard earned money in it.
OREOLU
in
Cure Parkinson's
1 year ago
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