Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see him till December.
Thanks
HiScarlett500, it might help you to watch the vlogcast we published last week, this is an interview with Dr Patrick Harrington, Consultant Haematologist, Guy's & St Thomas' Hospital, this vlogcast is about Covid vaccines and boosters for people with MPNs
I am on peg and aspirin and am classed as vulnerable as get offered jabs etc early before the general population. However i managed to avoid covid till March this year and had a very mild case luckily
I'm still waiting to catch it . Not in a hurry!!!!
Youve done well to avoid it.
I'm totally unvaxxed and unboosted. Have had covid twice, but built up my immune system and it was no big deal. I never had fever and never had difficulty breathing. At the first symptom I hit it immediately with Ivermectin and extra vitamins. I have a good supply of the necessary meds and vitamins for this winter if needed. So glad I don't have to deal with side effects from the jabs! By the way, I'm 77 years old and my husband, who also had covid and did the same things I did, is 82.
Had Covid end of August both of us (husband 76) myself 78- felt horrid for 4 days but still tested positive upto 7 days. Have had all our jabs (flu also).
Asked about 111 on the day it was found I had covid (tested myself) it was such an arduous task getting anywhere -also not knowing side effects of anti virals !! So I took paracetamol till felt better plenty of hot drinks and water, waited till felt more like myself took a while!
yes you are vulnerable. I’ve had 7 boosters!
You will find various recommendations from different sources. The recommendation from all of my various docs is to get the vaccine the same as anyone else. We are not necessarily at higher risk than anyone else in terms of contracting COVID unless our immune system is compromised by the MPN or the treatment being used.
When I contracted COVID in January 2022, the MPN specialist stated that I was not at higher risk in terms of managing the MPN due to the PV. My immune system was not affected enough by the IFN treatment for it to matter. I did not qualify for monoclonal antibody treatment based on the PV, but did qualify based on age > 65. I did opt for the treatment. I have also opted to stay up-to-date on COVID vaccines, but do not attempt anything other than what is recommended for everyone else.
Considering the vaccines is like all other treatment decisions. We each have to do our own risk/benefit analysis and decide what to do based on our treatment preferences.
Wishing you all the best.
Feel like I am hitting my head against a brick wall
Should I have had an at risk letter
open to other cancers?
