Dry achey eyes

[Pippapot]

I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?

[Doxy46]

I have dry eyes and eye pain. The pain is infrequent, but when it hits, wow. When it happens, my eyes will be fine until I touch one of them. Then there is a sharp pain. It can happen in either eye. I wonder if it is related to my sinuses since I have frequent sinus drainage from allergies.

[GardNerd]

I’ve had a lot of dry eye issues as I’ve gotten older, along with clogged glands along the eye lid. I finally gave in to the doctor’s recommendation to use lid wipes and a warm/moist compress twice a day - in addition to eye drops. It has been helping quite a bit, as much as I hate building this into the daily routine. I use Systane lid wipes and the Bruder moist heat eye compress. These things really take little time, and the difference is encouraging me to keep it going. Good luck! These eye issues can be extremely bothersome.

[Pippapot in reply to GardNerd]

Thank you for your reply, I havnt heard of the wipes but will give them a go. I have invested in electric heat pads for eyes, so will see if they help.One more thing to add to routine!

[ritaandscooter1]

Hi, I'm not on HU or any other drug except daily aspirin. I've struggled with plugged eyelids, frequent styes and on-going eyelid problems since my 40's. Have a combination of things I do to keep it from completely faring up but it has been a pain in the butt! I massage my eye lids with baby shampoo in the shower, use frequent warm hand towels, oral & direct antibiotics, eyelid wipes, avenova, and have an eye mask that heats up. I've basically tried everything but am now looking into ILUX which is a laser treatment for the eyelids. I'm told I have ocular rosacea and had bad acne when I was younger. I've always had great luck with lasers (IPL) on face and even used laser for Lichen Scerosis. All issues responded great to Lasers. Good luck.......Totally empathetic with the eyelid problem.......not fun to keep up with this daily. Kerry

[Pippapot in reply to ritaandscooter1]

Thank you for your help, it's nice to know we are not dealing with these things alone. Hope the laser treatment is successful for you. 😊

[hunter5582]

I have a significant case of dry eye. It is not directly related to the MPN nor to any medication side effect. I tried OTC eye drops. Restasis, Xiidra - none of which worded. My eye doc suggested Cequa, which works great. No more dry eye at all. Suggest consulting an ophthalmologist regarding this issue. There is likely relief available.

[Pippapot in reply to hunter5582]

Thank you, I will give it a try.

[Mirror368]

My ophthalmologist recommended Genteal Gel. You put It on your lower lids at night, I have not used it yet. I have increased my use of Systane Ultr eye drops.