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Mind and Body Syndrome
I have suffered RLS for more than 20 years and currently take Gabapentin. I have also had long covid since March 22- chronic fatigue type symptoms (14 different symptoms in all) which waxed and waned but hadn’t improved. So debilitating that I took early retirement and rarely left the house. I have
I have suffered RLS for more than 20 years and currently take Gabapentin. I have also had long covid since March 22- chronic fatigue type symptoms (14 different symptoms in all) which waxed and waned but hadn’t improved. So debilitating that I took early retirement and rarely left the house. I have
Edengirl58
in
Restless Legs Syndrome
6 months ago
Covid treatment
Hi all. Has anyone had treatment for Covid recently (since guidelines changed and you don’t automatically get referred). I am Covid positive and really struggling with symptoms. Have recently had treatment for a PE. The called 111 to arrange Covid treatment and they are sending a non urgent ambulance
Hi all. Has anyone had treatment for Covid recently (since guidelines changed and you don’t automatically get referred). I am Covid positive and really struggling with symptoms. Have recently had treatment for a PE. The called 111 to arrange Covid treatment and they are sending a non urgent ambulance
Pink75928
in
NRAS
6 months ago
Shingles Vaccination
Hi folks, just been sent a link for the Shingles Vaccine, is this something anyone else has had. I wasn't aware that when taking Methotrexate this was possible. Unfortunately I can never get through to my surgery to ask the question. Thank you
Hi folks, just been sent a link for the Shingles Vaccine, is this something anyone else has had. I wasn't aware that when taking Methotrexate this was possible. Unfortunately I can never get through to my surgery to ask the question. Thank you
Ports
in
NRAS
8 months ago
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New valve- but now afib and thinner
female, 49yrs old (almost 50) Ive had an aortic valve, root and ascending aorta replacement 9 months ago. Bovine valve to avoid thinners for a better life. Im still recovering, a was symptomatic too long i think ( 3 years really struggling but a known lifelong long valve leak) … and since the
female, 49yrs old (almost 50) Ive had an aortic valve, root and ascending aorta replacement 9 months ago. Bovine valve to avoid thinners for a better life. Im still recovering, a was symptomatic too long i think ( 3 years really struggling but a known lifelong long valve leak) … and since the
Bebop2023
in
Heart Valve Voice
6 months ago
New to deaf
Hi, I had a virus (according to my doctor), told my instant deafness would return...... 6 months later, course of steroids and steroid injections into my eardrum, almost no hearing in 1 ear and tinnitus that goes from slightly annoying at the start of the day to OK you've beat me by the end of the day
Hi, I had a virus (according to my doctor), told my instant deafness would return...... 6 months later, course of steroids and steroid injections into my eardrum, almost no hearing in 1 ear and tinnitus that goes from slightly annoying at the start of the day to OK you've beat me by the end of the day
Molbel
in
Tinnitus UK
7 months ago
INVOLVEMENT OPPORTUNITY – CENTRAL LONDON (Hepatitis B)
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
[u]
Share your experiences to help researchers improve care for hepatitis B in the UK
[/u]
Do you live with hepatitis B and want to make the way it is diagnosed, monitored, and treated in the UK better for patients?
The British Liver Trust are working with researchers and clinicians to
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
8 months ago
Update
Hi all. It has been 3 yrs now since my brother came out of ICU and then to a ward and into a home to clear space in Hospital during Covid. Unfortunately his muscles wasted away within a month of being in ICU and the inability to move from the neck down . He is classed as quadrapleagic. His legs have
Hi all. It has been 3 yrs now since my brother came out of ICU and then to a ward and into a home to clear space in Hospital during Covid. Unfortunately his muscles wasted away within a month of being in ICU and the inability to move from the neck down . He is classed as quadrapleagic. His legs have
Twoblu
in
ICUsteps
7 months ago
T4, T3 and TSH results
Recent results: My T4 is 14.3 (9.0 to 19.0) T3 4.6 (2.4 to 6) TSH 1.2 (0.4 to 4.9) A & E result few days prior was 2.2. My symptoms lately have been palpitations but more of a feeling of slow heart rate (so feels more under-active). Also, heaviness in legs and flu like feelings Palpitations
Recent results: My T4 is 14.3 (9.0 to 19.0) T3 4.6 (2.4 to 6) TSH 1.2 (0.4 to 4.9) A & E result few days prior was 2.2. My symptoms lately have been palpitations but more of a feeling of slow heart rate (so feels more under-active). Also, heaviness in legs and flu like feelings Palpitations
Sailing14
in
Thyroid UK
7 months ago
new here
Hi everyone, I was signposted to this group by my GP so just sighed up. My T started after having covid. I was diagnosed with long covid this year which has been terribly life altering. I Have not been able to return to my job as a nurse which is sad. I suddenly developed tinnitus in just one ear
Hi everyone, I was signposted to this group by my GP so just sighed up. My T started after having covid. I was diagnosed with long covid this year which has been terribly life altering. I Have not been able to return to my job as a nurse which is sad. I suddenly developed tinnitus in just one ear
Jb2309
in
Tinnitus UK
7 months ago
Anxiety or hormones?
I've been feeling light headed and off balance since being diagnosed hypothyroid years ago, could be meds side effects or the gland itself. I'm also post menopausal so low oestrogen. Allergies bung up the eustachian tunes cause imbalance. All of these can cause disequilibrium leading to anxiety. I had
I've been feeling light headed and off balance since being diagnosed hypothyroid years ago, could be meds side effects or the gland itself. I'm also post menopausal so low oestrogen. Allergies bung up the eustachian tunes cause imbalance. All of these can cause disequilibrium leading to anxiety. I had
celticlady
in
Anxiety Support
7 months ago
UTI issues
Hi all, Is it quite common to see blood in the urine with a UTI? My doctor says so but Googling has me believe it’s a kidney infection and I’m on the wrong antibiotics. I’ve had a UTI in the past and had the burning and pain but no visible blood? Thanks
Hi all, Is it quite common to see blood in the urine with a UTI? My doctor says so but Googling has me believe it’s a kidney infection and I’m on the wrong antibiotics. I’ve had a UTI in the past and had the burning and pain but no visible blood? Thanks
Kimbad1990
in
Women's Health
8 months ago
Navage?
Many of us (most?) suffer from sinus issues and we have our own tools to deal with these issues. My weapons of choice are Saline spray followed by Flonase before I go to bed. Works pretty well except for right now during allergy season. However, I've been hearing many advertisements for the Navage
Many of us (most?) suffer from sinus issues and we have our own tools to deal with these issues. My weapons of choice are Saline spray followed by Flonase before I go to bed. Works pretty well except for right now during allergy season. However, I've been hearing many advertisements for the Navage
hhk50
in
CLL Support
1 year ago
Finally got an endocrinology appointment
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
Hi there everyone!In early January this year I caught COVID and was really rough with it even though I have had all my jabs, come February I was still feeling rough, tired, always cold, brain fog... The list goes on. I went to the GP and explained my symptoms but didn't say I'd had COVID (expecting
unlucky-angler
in
Thyroid UK
7 months ago
Covid and Blood Tests
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
Hello lovely people. I wasn't given the jab this year and I've recently had a pretty bad dose of Covid (four days of fever at 102, oxygen sats down to 92% at one point) and my heart rate went crazy and I had one episode of SVT briefly the first time I got out of bed after the fever. Only one, mind
SilverSavvy
in
Thyroid UK
7 months ago
Dizziness / Vertigo whilst on Pred
I’ve been suffering with nausea and dizziness whilst on Pred, whilst this has been awful it’s not as bad as the PMR pain I was experiencing. My GP and an a nurse have suggested this could be to do with the inner ear. I do suffer from travel sickness and avoid roller coasters / waltzers because they
I’ve been suffering with nausea and dizziness whilst on Pred, whilst this has been awful it’s not as bad as the PMR pain I was experiencing. My GP and an a nurse have suggested this could be to do with the inner ear. I do suffer from travel sickness and avoid roller coasters / waltzers because they
SpaghettiWestern99
in
PMRGCAuk
8 months ago
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
lankisterguy
Volunteer
in
CLL Support
7 months ago
Overactive Bladder Syndrome
Bit strange to post this here but bear with me please. It seems that many of the med's for OAB have a side effect of high heart rate. I've been diagnosed with Paroxysmal Tachycardia and am trying Tolterodine for my OAB (which increased my comfort level considerably) but have had to stop as my monthly
Bit strange to post this here but bear with me please. It seems that many of the med's for OAB have a side effect of high heart rate. I've been diagnosed with Paroxysmal Tachycardia and am trying Tolterodine for my OAB (which increased my comfort level considerably) but have had to stop as my monthly
Oggy99
in
AF Association
8 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
7 months ago
Shingles vaccination - or not?
Hi all, hope to get some helpful advice on subject of shingles vaccination. Shingrix is available in my country (Norway) so I enquired of my GP about any recommendation in the light of my long-term polymyalgia (7+ years, maintained on 2.5 mg daily pred for about a year but unbelievably resistant to even
Hi all, hope to get some helpful advice on subject of shingles vaccination. Shingrix is available in my country (Norway) so I enquired of my GP about any recommendation in the light of my long-term polymyalgia (7+ years, maintained on 2.5 mg daily pred for about a year but unbelievably resistant to even
11541stella
in
PMRGCAuk
8 months ago
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