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Peg and Ear infection
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Fabfam5
in
MPN Voice
5 months ago
Advice re covid jab
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
Ana-16
in
PMRGCAuk
7 months ago
Covid vaccine during tapering down PMR?
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
kangaroojohn
in
PMRGCAuk
7 months ago
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Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
2 months ago
Rising PSA last Lutetium 177 December 2022
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
Janhpr
in
Advanced Prostate Cancer
7 months ago
Quinoric side effects
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
BloominUterus
in
LUPUS UK
5 months ago
Puzzled
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
Blackwitch
in
NRAS
2 months ago
MRI's
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
BenHall1
in
Atrial Fibrillation Support
2 months ago
Ovulation induction
I was extremely lucky and had a last minute cancellation for NHS fertility appointment (original was for October this year - would’ve been 10 months post GP referral). It was actually a really good appointment with lots of time given to discuss options and made me feel more hopeful. I am likely to
I was extremely lucky and had a last minute cancellation for NHS fertility appointment (original was for October this year - would’ve been 10 months post GP referral). It was actually a really good appointment with lots of time given to discuss options and made me feel more hopeful. I am likely to
Melsunshine
in
Fertility Network UK
2 months ago
angular cheilitis
I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people
I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people
Ladybitsandbobs
in
NRAS
5 months ago
is this a flare
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
Mumdadlove
in
PMRGCAuk
2 months ago
Appointment Update
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Mitziecat
in
Glaucoma UK
2 months ago
Should I suspend my methotrexate and hydroxychloroquine until my covid is over?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
Hellerup
in
NRAS
7 months ago
Lunch chat about vaccines
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
oldtimer2
in
NRAS
7 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
7 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
5 months ago
Osteoarthritis in knee
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
completely-zero654
in
Couch to 5K
2 months ago
From Prednisone to Morphine
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
Chelseadog
in
PMRGCAuk
2 months ago
COVID, Pneumonia and healthcare
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
shazie
in
CLL Support
3 months ago
Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
lankisterguy
Volunteer
in
CLL Support
7 months ago
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