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Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
3 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
3 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
3 months ago
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Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
3 months ago
Covid & Flu Vaccinations
Can anyone please tell me if you have had both the flu and Covid vaccinations at the same time please. If you have did you suffer any worse side effects from having them at the same time? I have both booked at my GP's but am not happy to have both together as I think this is a first time it has happened
Can anyone please tell me if you have had both the flu and Covid vaccinations at the same time please. If you have did you suffer any worse side effects from having them at the same time? I have both booked at my GP's but am not happy to have both together as I think this is a first time it has happened
Bailybiscuit
in
NRAS
10 months ago
Very fast onset of Pneumonia! It’s a long story; are you comfortable…
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned. Was still coughing up green mucus abit but he wasn’t concerned (I was and told him but … well, he felt better he said) Day before Christmas Eve
Tpdnotts
in
CLL Support
7 months ago
evening update
I don’t have head lice or covid! My nurse checked my head and I took a covid test this morning. I am congested but I think it’s just allergies. I’m a little nervous though bc my temp has been around 99 all day today. Usually I run a little cooler. Today felt much better than the past few days, so I hope
I don’t have head lice or covid! My nurse checked my head and I took a covid test this morning. I am congested but I think it’s just allergies. I’m a little nervous though bc my temp has been around 99 all day today. Usually I run a little cooler. Today felt much better than the past few days, so I hope
Daisy425
in
Anxiety and Depression Support
10 months ago
anyone else had genetic testing?
Hi well I’m back after a long break after previously having 2 BFN when we tried donor eggs with icsi. We’ve saved up again and decided to give it one last shot and this time the consultant recommended we try genetic screening before having any embryos implanted. Just wondered if there is anyone else
Hi well I’m back after a long break after previously having 2 BFN when we tried donor eggs with icsi. We’ve saved up again and decided to give it one last shot and this time the consultant recommended we try genetic screening before having any embryos implanted. Just wondered if there is anyone else
Miaow1975
in
Fertility Network UK
3 months ago
What changes did you make between Cycle 1 and 2?
BFN today following our one and only embryo transfer from Cycle 1, so beginning to think about our next (and last) cycle. It all started off quite well, 18 eggs collected but unfortunately only two fertilised via ICSI. I'm 39. But do have a 6 year old daughter from a previous relationship. We are having
BFN today following our one and only embryo transfer from Cycle 1, so beginning to think about our next (and last) cycle. It all started off quite well, 18 eggs collected but unfortunately only two fertilised via ICSI. I'm 39. But do have a 6 year old daughter from a previous relationship. We are having
Porridge98
in
Fertility Network UK
3 months ago
Absolutely heartbroken 💔
Hi ladies, as the post says really my heart is shattered! A little bit more about my story, we had our first ever round of icsi and managed to get 2 good quality eggs which were then frozen, fast forward to 1 month later I had my egg transfer on the 20th of March and got told to take a test on the 2nd
Hi ladies, as the post says really my heart is shattered! A little bit more about my story, we had our first ever round of icsi and managed to get 2 good quality eggs which were then frozen, fast forward to 1 month later I had my egg transfer on the 20th of March and got told to take a test on the 2nd
Babyluck95
in
Fertility Network UK
3 months ago
ICSI and lifestyle changes - help
Hi everyone - I really need your amazing advice… My OH’s sperm sample results were great but we did the DNA frag test which came back high (there was a trial at our clinic). Our consultant told us to make lifestyle changes for 3 months and take impryl before our next round - which would be ICSI. I
Hi everyone - I really need your amazing advice… My OH’s sperm sample results were great but we did the DNA frag test which came back high (there was a trial at our clinic). Our consultant told us to make lifestyle changes for 3 months and take impryl before our next round - which would be ICSI. I
WHeatherW
in
Fertility Network UK
3 months ago
covid
has anyone had covid recently and what were your symptoms, did it affect your AFIB at all, I am interested to know what other people’s experience have been.
has anyone had covid recently and what were your symptoms, did it affect your AFIB at all, I am interested to know what other people’s experience have been.
Electricblue1
in
AF Association
10 months ago
anxious
I woke up feeling somewhat less anxious this morning, which is great. However, my head started really itching so now I have to go to the school nurse to check to see if it’s head lice. My boyfriend also texted me saying he’s stuffy and his throat hurts a little. I really don’t want him to have covid.
I woke up feeling somewhat less anxious this morning, which is great. However, my head started really itching so now I have to go to the school nurse to check to see if it’s head lice. My boyfriend also texted me saying he’s stuffy and his throat hurts a little. I really don’t want him to have covid.
Daisy425
in
Anxiety and Depression Support
10 months ago
Stuck cough on the throat
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Candor8
in
PSP Association
3 months ago
using propranolol during pregnancy
Hi all, I very recently found out I am pregnant through ICSI , we are only 4weeks and 5 days. I take 80mg of propranolol daily for migraines. I'm a little cautious as I read it can get through the placenta? Does anyone have experience with this medication while being pregnant? Thank you
Hi all, I very recently found out I am pregnant through ICSI , we are only 4weeks and 5 days. I take 80mg of propranolol daily for migraines. I'm a little cautious as I read it can get through the placenta? Does anyone have experience with this medication while being pregnant? Thank you
Choccypie90
in
Fertility Network UK
3 months ago
Cold Calling
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
Tykelady
in
Lung Conditions Community Forum
3 months ago
Cold weather trigger?
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Garaidh
in
Atrial Fibrillation Support
3 months ago
Paxlovid and Lagevrio Benefit COVID Outpatients in Omicron Era September 19, 2023
The American College of Physicians has issued an updated version of its living, rapid practice point guideline on the best treatment options for outpatients with confirmed COVID-19 in the era of the dominant Omicron variant of SARS-CoV-2. - The recommendations in version 2 ( the MedScape version is
The American College of Physicians has issued an updated version of its living, rapid practice point guideline on the best treatment options for outpatients with confirmed COVID-19 in the era of the dominant Omicron variant of SARS-CoV-2. - The recommendations in version 2 ( the MedScape version is
lankisterguy
Volunteer
in
CLL Support
10 months ago
Covid booster and thyroid blood test
I am due to get my annual thyroid blood test in October. Have just realised that I get my autumn Covid booster the day before. Is it likely to have any effect on the test results?
I am due to get my annual thyroid blood test in October. Have just realised that I get my autumn Covid booster the day before. Is it likely to have any effect on the test results?
DoDoc
in
Thyroid UK
10 months ago
Illness and taking T3 - something to consider?
just a thought I wanted to put out there and see what everyone else thinks… I am now prescribed T4 and T3 and it has been a bit of a life changer for me. Previous to the T3 being added, I was on mono T4 for years. To get out of bed and function, I had to have my T4 over range, whilst my T3 was scrapping
just a thought I wanted to put out there and see what everyone else thinks… I am now prescribed T4 and T3 and it has been a bit of a life changer for me. Previous to the T3 being added, I was on mono T4 for years. To get out of bed and function, I had to have my T4 over range, whilst my T3 was scrapping
Gilbo72
in
Thyroid UK
9 months ago
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