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Gaucher disease type 2 (GD2)
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Diagnosed last Friday AF
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Anticoagulation Support
5 months ago
My Kardia has arrived.
Good morning - if you are in a similar time zone!My Kardia arrived yesterday morning so of course I took many readings to try it out. I also tried it on my husband to see if it was working properly and it appears to be fine. My own readings however are all over the shop, so I wondered if other people
Good morning - if you are in a similar time zone!My Kardia arrived yesterday morning so of course I took many readings to try it out. I also tried it on my husband to see if it was working properly and it appears to be fine. My own readings however are all over the shop, so I wondered if other people
Ilovedogs12
in
Atrial Fibrillation Support
5 months ago
Help with Keto
Hi everyone. I'm Paul from Birmingham. I'm new to this group. Following recent bloods (I have RA) my Rheumatology nurse called me and advised that I was pre diabetic. She told me about a low carb diet and sent me some information to get me started. I was quite alarmed by the diagnosis and decided to
Hi everyone. I'm Paul from Birmingham. I'm new to this group. Following recent bloods (I have RA) my Rheumatology nurse called me and advised that I was pre diabetic. She told me about a low carb diet and sent me some information to get me started. I was quite alarmed by the diagnosis and decided to
SoulmanPaul
in
Weight Loss Support
1 year ago
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Muscle wasting?
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
kaypeeoh
in
Cure Parkinson's
8 months ago
Is inflammatory arthritis affecting your daily life?
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Aribah-NRAS
NRAS
in
NRAS
6 months ago
I have hypothyroidism…have I got autoimmune pancreatitis?
Thanks in advance to all you good people, who’ve already been so helpful. Since 2012, when diagnosed with Hypothyroidism after years of illness, I was never referred to an Endo. I assume I have Hashimoto’s… From childhood, I’ve had recurrent GI symptoms to alcohol and fatty foods. Last August, I had
Thanks in advance to all you good people, who’ve already been so helpful. Since 2012, when diagnosed with Hypothyroidism after years of illness, I was never referred to an Endo. I assume I have Hashimoto’s… From childhood, I’ve had recurrent GI symptoms to alcohol and fatty foods. Last August, I had
BlueMoon65
in
Thyroid UK
6 months ago
Positive results after five months
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
Pisces101
in
Early CKD Support
8 months ago
Watching House
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
Willow7733
in
LUPUS UK
6 months ago
Medichecks results
Hello all, I have just received the above thyroid test results and would appreciate some advice. I am feeling a bit underactive and wondered if I should increase my levothyroxine slightly? Thanks in advance
Hello all, I have just received the above thyroid test results and would appreciate some advice. I am feeling a bit underactive and wondered if I should increase my levothyroxine slightly? Thanks in advance
Pinkisland
in
Thyroid UK
6 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
7 months ago
Very High blood pressure
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
Freshairfiend
in
PMRGCAuk
5 months ago
Sjogren's Syndrome
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Bothan
in
PMRGCAuk
6 months ago
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
5 months ago
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
5 months ago
The arrhythmia nurse wants me to reduce my bisoprolol dose after my cardioversion - fear of early relapse.
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
Belle11
in
Atrial Fibrillation Support
5 months ago
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus?
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
Shewulf
Administrator
in
LDN Research Trust
6 months ago
What other tests
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
JCM1992
in
LUPUS UK
6 months ago
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
https://www.science.org/doi/10.1126/scisignal.adi9018 "Editor’s summary: The cell death that occurs in neurodegenerative diseases is due partly to decreased
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
https://www.science.org/doi/10.1126/scisignal.adi9018 "Editor’s summary: The cell death that occurs in neurodegenerative diseases is due partly to decreased
Bolt_Upright
in
Cure Parkinson's
8 months ago
Role of Luteolin in overcoming Parkinson's disease 2021
Role of Luteolin in overcoming Parkinson's disease 2021
https://sci-hub.ru/10.1002/biof.1706 "The incidence of life threating neurodegenerative diseases such as PD is increasing day by day. Sporadic as well as genetic causes are well documented. Due to the decline in the dopaminergic neurons,
Role of Luteolin in overcoming Parkinson's disease 2021
https://sci-hub.ru/10.1002/biof.1706 "The incidence of life threating neurodegenerative diseases such as PD is increasing day by day. Sporadic as well as genetic causes are well documented. Due to the decline in the dopaminergic neurons,
Bolt_Upright
in
Cure Parkinson's
8 months ago
New research
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
EllsBells591
in
LUPUS UK
6 months ago
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