nephrectomy

[Sickey]

I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia

[Trueblue8]

Hi, I have ET and also had a partial nephrectomy following a routine scan last year, which identified a tumour on my left kidney.I had a biopsy and thankfully the tumour was an oncocytoma (benign). However, it was decided to remove it as the surgeon said that it could still contain cancer cells.

The op went well but unfortunately I suffered a pneumothorax post surgery. The stomach is inflated with gas to make it easier to get access to the tumour and gas escaped into my chest cavity causing a partial lung collapse. I must stress that this is extremely rare!!

I had a few extra days in hospital but am now fully recovered.

If you need any further information please let me know.

Ian

[Sickey in reply to Trueblue8]

hi ian thank u for replying how long did ur surgery take and did u get ur haematology to talk to ur surgeon

[Trueblue8 in reply to Sickey]

The op took 4-5 hours and was done by robotics. Just a few small scars in the abdomen, nothing horrendous.I'm not actually sure if there was any discussions between haematologists and the surgeon, however, I was told to carry on taking hydroxycarbamide and daily low dose aspirin.

I think hospital stay should be about 3 days or so, mine was 5 due to problems I mentioned before.

Ian

[Sickey in reply to Trueblue8]

thank u very ian having surgery done on mon 18 I will let u know how opp goes 👍

[Trueblue8 in reply to Sickey]

Good luck, I'm sure it will be fine.

[Sickey in reply to Trueblue8]

thank u very much

[Sickey in reply to Trueblue8]

hi I had biopsy results results last week suergon said it was a very aggressive tumour lucky I was found when I was they will monitor me for five years do ct scan every six months and blood tests

[hunter5582 in reply to Sickey]

Glad to hear they got it out. Prayers to non-recurrence. 🙏

[Sickey in reply to hunter5582]

thanks hunter for ur reply🙏

[Sickey in reply to Trueblue8]

hi reporting in had surgery done on 18 September everything went well surgery took 5 hours home now slowly recovering thank u

[Wyebird]

I’m sorry to hear you have to undergo this surgery. Wishing you a speedy recovery

[Sickey in reply to Wyebird]

thank you 👍🙏

[Sickey in reply to Wyebird]

thank you

[Ayla13]

Hi , I had a partial nephrectomy in 2020. I had a 4 cm malignant tumour discovered incidentally as we were searching for a reason for my high platelets. ( 1.1 million at the time ) I was not diagnosed as having ET when I had my surgery . It was a 4 hour extensive surgery due to the position of my tumour and was not done robotically . I was in the hospital for 5 days . It was during the height of the Covid pandemic so I was very isolated . Thank goodness for FaceTime ! I have a 20 cm diagonal scar on my right side . I will not lie, the recovery was painful especially in the first two weeks . The surgeons were aware I had high platelets so I received blood thinner shots for two days after surgery . But everything went well . Incidentally , I also have surgery next week like you ( on the 19th a day after yours) to remove an ovary with a tumor in it . During my preop appointment last week , the surgeon said it will be laparoscopic so will only involve 3 small cuts and that the recovery should only take 2 weeks . I was also told to stop taking aspirin and Hydroxyurea 5 days prior to surgery . (I was not on meds before my kidney surgery .) I’m wishing you all the best and a speedy recovery ! 🤞🙏🏻 if you have any questions feel free to contact me .

[Sickey in reply to Ayla13]

so sorry to hear hear u had such a horrible time recovering from ur surgery I’m glad u recovered well from first surgery I feel sorry u have to go through another surgery so soon after ur last surgery I wish u well with ur surgery and I hope u have a speedy recovery u deserve it 👍🙏

[Sickey in reply to Ayla13]

hi reporting in had surgery on 18 sept everything went well surgery took 5hours slowely recoverign

[Sickey in reply to Ayla13]

hi sorry I haven’t been in touch how did ur surgery go I hope everything went well

[Ayla13]

The worst is over ! Glad you’re slowly recovering . You’ll feel much better in another couple weeks . Was your tumor benign ? I’m also doing very well after my robotic surgery . I’m able to walk very well so that helps with moving that blood around . Just waiting till pathology comes back in a month, but it looked benign 🤞. Stay well and speedy recovery !

[Sickey in reply to Ayla13]

surgeon said he was 100 per cent sure it was cancerous said he seen enough of it in his 30 years as a suergeon glad to hear u are making a nice recovery 👍🙏

[Ayla13 in reply to Sickey]

Yes kidney Tumors are rarely benign I was told too by my nephrologist. . It’s been 3 years since mine was removed and I am being followed every half year by a full torso ultrasound etc . For the next 5 years . I keeps my mind totally at ease ! I’m so happy you had yours removed ! 🤞

[Sickey in reply to Ayla13]

thank you I hope everything goes well for u in the future 👍🙏

[Sickey in reply to Ayla13]

hi had biopsy results it was a very aggressive tumour lucky it was found in time going to monitor me for five years do ct scan every six months and blood tests

[Ayla13 in reply to Sickey]

so good to hear they were able to rid you of an aggressive tumor ! You will feel so much relief knowing you are closely monitored ! I got great news- my tumor on the ovary was benign ! 🙏🏻 wishing you a wonderful Christmas time !

[Sickey in reply to Ayla13]

that’s brilliant news I’m glad everything worked out well for you I hope u have a lovely Christmas and a happy new year👍🙏