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Gaucher disease type 2 (GD2)
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Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
6 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
6 months ago
thyroid results need advice
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
elwins
in
Thyroid UK
6 months ago
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NKF launches educational video series for lupus, lupus nephritis
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
cirrhosis and rheumatoid arthritis
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
Rshc
in
British Liver Trust
7 months ago
Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
5 months ago
AST/ALT Ratio
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
Mack89
in
British Liver Trust
3 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
5 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
8 months ago
Blue Badge
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
DebbyJ1
in
British Liver Trust
8 months ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
5 months ago
A tooth with a life of it's own!
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
orangemax
in
PMRGCAuk
8 months ago
This is perplexing - Coffee's effectiveness on Parkinson prevention
I drank a lot of coffee from my teens until diagnosis at age 48. Yet study after study appears to support the efficacy of coffee in Parkinsons prevention. https://neurosciencenews.com/caffeine-genetics-parkinsons-24920/
I drank a lot of coffee from my teens until diagnosis at age 48. Yet study after study appears to support the efficacy of coffee in Parkinsons prevention. https://neurosciencenews.com/caffeine-genetics-parkinsons-24920/
pdpatient
in
Cure Parkinson's
8 months ago
Best UK substitue for US Synthroid
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
SeedSensation
in
Thyroid UK
6 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
6 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
8 months ago
Bisoprolol again!
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
Be-still-my-heart
in
AF Association
5 months ago
update
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
Harriet-sarah
in
British Liver Trust
8 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
8 months ago
Woot💙PSA dropped after being the same for two consecutive months
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
dockam
in
Advanced Prostate Cancer
8 months ago
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