Search
Search
About
Log in
Join
Experiences with
Gallbladder and bile duct diseases
Posts
Communities
78,419 public posts
Filter results
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Any comment on cortisol/aldosterone results please
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
PotatoFan
in
Thyroid UK
6 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
6 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Cholesterol
Hi further to my cholesterol test etc yesterday and thanks for the comments and advice I managed to have a chat with my Dr albeit not my usual Dr he said my cholesterol readings were fine the lower the better didn't seen concerned when I said my good cholesterol HDL was way low so god knows.
Hi further to my cholesterol test etc yesterday and thanks for the comments and advice I managed to have a chat with my Dr albeit not my usual Dr he said my cholesterol readings were fine the lower the better didn't seen concerned when I said my good cholesterol HDL was way low so god knows.
Bridkid67
in
Thyroid UK
26 days ago
Tilt Table Test
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Wewo01
in
MPN Voice
27 days ago
Cholesterol levels
Hi iam currently on 75mcg of levothyroxine I signed up to the new Our future health scheme been today to the unit had a finger tip cholesterol test down nurse said my total cholesterol was low results as follows any help advice please thank.
Hi iam currently on 75mcg of levothyroxine I signed up to the new Our future health scheme been today to the unit had a finger tip cholesterol test down nurse said my total cholesterol was low results as follows any help advice please thank.
Bridkid67
in
Thyroid UK
27 days ago
18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
6 months ago
Update: NEPC Treatment
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
antisocialsocialwrkr
in
Advanced Prostate Cancer
4 months ago
Horrible anxiety
anxi spikes blood pressure to dangerous levels. Dr did ecg and blood work. Everything ok. Doubled medication for blood pressure. Any experience this? Some please answe
anxi spikes blood pressure to dangerous levels. Dr did ecg and blood work. Everything ok. Doubled medication for blood pressure. Any experience this? Some please answe
Randsam2
in
Anxiety Support
29 days ago
Horrible anxiety
anxi spikes blood pressure to dangerous levels. Dr did ecg and blood work. Everything ok. Doubled medication for blood pressure. Any experience this? Some please answe
anxi spikes blood pressure to dangerous levels. Dr did ecg and blood work. Everything ok. Doubled medication for blood pressure. Any experience this? Some please answe
Randsam2
in
Anxiety Support
29 days ago
My dad has CLL with TP53 mutation
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
Ornate2001
in
CLL Support
4 months ago
cisplatin
Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin for my 5 session. I am wondering if someone has been on Cisplatin and what’s yours experience with Cisplatin?
Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin for my 5 session. I am wondering if someone has been on Cisplatin and what’s yours experience with Cisplatin?
Green999
in
My Ovacome
2 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
6 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Is it possible to build up a tolerance to liothyronine?
I’ve found myself in the midst of an interesting, if somewhat unpleasant accidental experiment these last few days. Having had some issues in obtaining my usual supply of Thybon Henning, I’ve now gone 9 days without medication. This was very much unintentional, and I am aware is not medically advisable
I’ve found myself in the midst of an interesting, if somewhat unpleasant accidental experiment these last few days. Having had some issues in obtaining my usual supply of Thybon Henning, I’ve now gone 9 days without medication. This was very much unintentional, and I am aware is not medically advisable
JonnyA
in
Thyroid UK
1 month ago
Eliquis
This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor
This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor
Vmarti
in
Hughes Syndrome APS Forum
1 month ago
Atrial Fibrillation (AF) Fact File
Atrial fibrillation (also referred to as AF) is an abnormality in the rhythm of the heart (an arrhythmia). For a full overview of AF from types of AF, diagnosis to managing symptoms, medication, cardioversion, catheter ablation …. And much more! Have you read our Atrial Fibrillation (AF) Fact File?
Atrial fibrillation (also referred to as AF) is an abnormality in the rhythm of the heart (an arrhythmia). For a full overview of AF from types of AF, diagnosis to managing symptoms, medication, cardioversion, catheter ablation …. And much more! Have you read our Atrial Fibrillation (AF) Fact File?
TracyAdmin
Partner
in
Atrial Fibrillation Support
1 month ago
Eliquis
Good Afternoon,I didn't want to hijack Calypso' s post but I also have an enquiry re Eliquis. I recently bit the bullet and as advised by my Cardiologist have started taking Eliquis. I am on PIP - Flecainide and Metropolol. As time has gone on, it's taking longer for me to revert to sinus rhythm.
Good Afternoon,I didn't want to hijack Calypso' s post but I also have an enquiry re Eliquis. I recently bit the bullet and as advised by my Cardiologist have started taking Eliquis. I am on PIP - Flecainide and Metropolol. As time has gone on, it's taking longer for me to revert to sinus rhythm.
Bhoyo
in
Atrial Fibrillation Support
1 month ago
1
...
95
96
97
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
8353 results
Advanced Prostate Cancer
7576 results
British Liver Trust
4852 results
View top 10 communities
Sort by
Most Relevant
Newest