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Hi new here
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
nannynett
in
Thyroid UK
7 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
2 months ago
Skull met!
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
docbulldog
in
Advanced Prostate Cancer
2 months ago
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Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
2 months ago
Companies that test liver biospy tissue to see what immunotherapy, parp inhibitors or ATK inhibitors would work?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Anticoagulation Support
4 months ago
At what psa is PCa suspected?
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
CousinGrandpa
in
Advanced Prostate Cancer
5 months ago
Worsening back pain after treatment?
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
Jpburns
in
Advanced Prostate Cancer
2 months ago
Disappointed
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Thank you Angela for sharing your story!
“I have never really been a sun worshipper but I have used sunbeds in the past. I used to hire one for use at home in my late teens/early 20’s then used the stand-up ones on and off at tanning salons a few years after that. I never thought there was any harm in using sunbeds and I can’t remember seeing
“I have never really been a sun worshipper but I have used sunbeds in the past. I used to hire one for use at home in my late teens/early 20’s then used the stand-up ones on and off at tanning salons a few years after that. I never thought there was any harm in using sunbeds and I can’t remember seeing
SkcinHQ
Partner
in
Skin Cancer UK
2 months ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
2 months ago
Androlic acid
8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me to start androlic acid to help my bones after a dexa scan showed I had oastiopenia . I really do not want to start the meds and am very anxious
8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me to start androlic acid to help my bones after a dexa scan showed I had oastiopenia . I really do not want to start the meds and am very anxious
SjDexDolly
in
PMRGCAuk
2 months ago
My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
24 days ago
Radiation PSA, Orgovyx, Bone density Update 2/18/24
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
alperk
in
Advanced Prostate Cancer
5 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
6 months ago
Suboptimal Cortisol levels following Synacthen test
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
Heucera1
in
PMRGCAuk
5 months ago
Pred dose post hip operation
Hi, and thank you in advance to all who have the patience to read this long story, and the kindness to offer advice: I have so many things going on at the moment! Currently, PMR seems like the least of my problems, and I’m hoping I can ride the other medical turmoil I’m in without it raising it’s head
Hi, and thank you in advance to all who have the patience to read this long story, and the kindness to offer advice: I have so many things going on at the moment! Currently, PMR seems like the least of my problems, and I’m hoping I can ride the other medical turmoil I’m in without it raising it’s head
calibriel
in
PMRGCAuk
5 months ago
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, [i][b] also developing for neuroendocrine prostate cancer[/b][/i]
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
Scout4answers
in
Advanced Prostate Cancer
2 months ago
Father’s CRPCa Failed chemo (Cabazitaxel,Docetaxel) and Failed LU177
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Vishwa1890
in
Advanced Prostate Cancer
5 months ago
Bayer Starts Phase I Study With Novel Targeted Radionuclide Therapy 225Ac-PSMA-Trillium in Advanced Metastatic Prostate Cancer
225Ac-PSMA-Trillium (BAY 3563254) is an investigational next-generation PSMA-targeted alpha therapy with potential to treat patients with advanced metastatic prostate cancer Prostate cancer is the second most commonly diagnosed cancer in men1, with less than three years median survival among metastatic
225Ac-PSMA-Trillium (BAY 3563254) is an investigational next-generation PSMA-targeted alpha therapy with potential to treat patients with advanced metastatic prostate cancer Prostate cancer is the second most commonly diagnosed cancer in men1, with less than three years median survival among metastatic
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
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