how often for a Fibroscan

[DonnaBoll]

Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is.

I strongly encourage everyone - especially newly diagnosed folks - to purchase this book. Dr. Jones is the leading expert in PBC. There is a first and second edition.. I would encourage you to purchase both. They are available on Amazon. Patients who have cirrhosis may need one more often to detect the amount of fibrosis (stiffness) in the liver. The name of the book is PBC The Definitive Guide for Patients with Primary Biliary Cholangitis. So much information here for everyone to read!

[Chris21]

i was diagnosed in 2006 with PBC by blood tests alone and have never had a fibroscan. since taking urso my bloods have shown everything in range. it makes me wonder if iactually have PBC.

[Skypony in reply to Chris21]

Hi Chris, did you have raised ALP and positive AMA on diagnosis? If so and your ALP has come down, sounds like you’re an Urso responder, great news! PBC is considered a lifelong disease, and you should be monitored, which usually includes occasional imaging. Could you ask for a fibroscan and ultrasound? Probably PBC Foundation will have the good practice guidelines on their website so you can check out what you should expect. Best wishes