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Newly diagnosed and needing help
Hi, I was diagnosed with a 6cm cyst which they thought might be cancer but now they're saying it's endometriosis. The gyne unit at the hospital have said they'll put me on the "very long" waiting list to see the endo team - in the meantime I should take paracetamol when the pain is bad and consider
Hi, I was diagnosed with a 6cm cyst which they thought might be cancer but now they're saying it's endometriosis. The gyne unit at the hospital have said they'll put me on the "very long" waiting list to see the endo team - in the meantime I should take paracetamol when the pain is bad and consider
Jenn2022
in
Endometriosis UK
2 years ago
Relief in pain since mirena coil removed
Hi Just wondering if anyone else has had similar experiences…I had pelvic pain for around 7 months and the mirena coil inserted to help with suspected endo however it caused the worst pain I have ever experienced for the first two weeks then around 20 days of random varying pain through the month and
Hi Just wondering if anyone else has had similar experiences…I had pelvic pain for around 7 months and the mirena coil inserted to help with suspected endo however it caused the worst pain I have ever experienced for the first two weeks then around 20 days of random varying pain through the month and
0Jasmine
in
Endometriosis UK
3 years ago
Mini Pill vs Hormonal Coil
When will the mini pull become affective. I’ve been on the mini pill for about 3 1/2 months after being discharged from hospital and I’m bleeding everyday. I’ve been passing large clumps of tissue and clots the size of my hand. The pain is still there and I’m constantly exhausted as I’ve been bleeding
When will the mini pull become affective. I’ve been on the mini pill for about 3 1/2 months after being discharged from hospital and I’m bleeding everyday. I’ve been passing large clumps of tissue and clots the size of my hand. The pain is still there and I’m constantly exhausted as I’ve been bleeding
Littlebug77
in
Endometriosis UK
3 years ago
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Coil
Hi all, just in two minds whether to have a coil fitted in. Can you tell me where you had yours done I.e sexual health clinic within the hospital or just a local gp/clinic. my specialist recommended to get it within the hospital as the nurses are better at inserting.
Hi all, just in two minds whether to have a coil fitted in. Can you tell me where you had yours done I.e sexual health clinic within the hospital or just a local gp/clinic. my specialist recommended to get it within the hospital as the nurses are better at inserting.
BrightLights88
in
Endometriosis UK
3 years ago
Endo/coil
Hi everyone, don't know wether I'm coming or going. Had laparoscopy in October & had endo removed along with a merina coil inserted. Not felt right since. My body aches, I had a normal period November but this month its never fully arrived I just seem to be bleeding a little but the cramps are something
Hi everyone, don't know wether I'm coming or going. Had laparoscopy in October & had endo removed along with a merina coil inserted. Not felt right since. My body aches, I had a normal period November but this month its never fully arrived I just seem to be bleeding a little but the cramps are something
mo222
in
Endometriosis UK
3 years ago
Hyperplasia
Hello ladies, I've recently been diagnosed with hyperplasia and need to have treatment. So I have had the merina coil fitted on the 1st of Nov. Started bleeding on the 7th Nov and haven't stopped yet... keep going through cycles of heaviness, has anyone had the same experience? Tia xx
Hello ladies, I've recently been diagnosed with hyperplasia and need to have treatment. So I have had the merina coil fitted on the 1st of Nov. Started bleeding on the 7th Nov and haven't stopped yet... keep going through cycles of heaviness, has anyone had the same experience? Tia xx
Carla90xx
in
Women's Health
3 years ago
Confused about surgery
Hi all I am really confused and really need some advise. I am 46 years old and have been suffering with Endometriosis since 2010 . I have have had 2 laparoscopy excisions over the years and have tried Zoladex and merina coil . Unfortunately nothing has really helped long term term. I have serve
Hi all I am really confused and really need some advise. I am 46 years old and have been suffering with Endometriosis since 2010 . I have have had 2 laparoscopy excisions over the years and have tried Zoladex and merina coil . Unfortunately nothing has really helped long term term. I have serve
Faithstar
in
Endometriosis UK
3 years ago
Visanne - where do I buy it?
Hi all, I was recently diagnosed via lap in Oct (Stage 2). I can't handle Progesterone-only or the combined pill because I have had migraines with both, so bizarrely; my consultant has prescribed Visanne (another progesterone?!) as a last option as I won't get the coil. She told me that the NHS won't
Hi all, I was recently diagnosed via lap in Oct (Stage 2). I can't handle Progesterone-only or the combined pill because I have had migraines with both, so bizarrely; my consultant has prescribed Visanne (another progesterone?!) as a last option as I won't get the coil. She told me that the NHS won't
katgem
in
Endometriosis UK
3 years ago
Lost and with little hope
I have been bleeding for 14 days. I was diagnosed with endometriosis after having a laparoscopy for a cyst on the 19th of September. They found widespread endometriosis and the 30 mins intended for the surgery lasted 3 and a half hours. Since then I have been put on the pill. It worked until 14 days
I have been bleeding for 14 days. I was diagnosed with endometriosis after having a laparoscopy for a cyst on the 19th of September. They found widespread endometriosis and the 30 mins intended for the surgery lasted 3 and a half hours. Since then I have been put on the pill. It worked until 14 days
JMID
in
Endometriosis UK
3 years ago
Am I imagining things?
Does anyone else get flu like symptoms before your period is due to start? I have a coil but it's not working too well now and so get a few symptoms again now and getting a drs appointment due to covid is nigh on impossible. I have been doing lateral flow and pcr tests to check symptoms recently but
Does anyone else get flu like symptoms before your period is due to start? I have a coil but it's not working too well now and so get a few symptoms again now and getting a drs appointment due to covid is nigh on impossible. I have been doing lateral flow and pcr tests to check symptoms recently but
Fatbird77
in
The Endometriosis Foundation
3 years ago
Recovery time for laparoscopy? How do u get heard? 😳
Morning I read lots of things here it’s actually my daughter who is suffering. Shes 19 and has tried all pills, seen gynae once over telephone, had the transvaginal US where they’ve found a fibroid suggested a coil so tried that for 4 months the pain got worse she’s a high jumper and getting to quite
Morning I read lots of things here it’s actually my daughter who is suffering. Shes 19 and has tried all pills, seen gynae once over telephone, had the transvaginal US where they’ve found a fibroid suggested a coil so tried that for 4 months the pain got worse she’s a high jumper and getting to quite
Bellybear
in
Endometriosis UK
3 years ago
Pregnancy following removal of Merina Coil
Hello all, I have had my coil removed yesterday after waiting nearly a year for it to be removed. 4 attempts later and here I am. Would like advise and to hear people's story on getting pregnant after coil. Me and my partner are desperate to start a family and wondered how long I need to wait and if
Hello all, I have had my coil removed yesterday after waiting nearly a year for it to be removed. 4 attempts later and here I am. Would like advise and to hear people's story on getting pregnant after coil. Me and my partner are desperate to start a family and wondered how long I need to wait and if
Amy_jane
in
Fertility Network UK
3 years ago
FERTILITY…. After years of being deficient, could it ever be restored?
Fertility anyone? Had anyone had their fertility affected by a b12 deficiency, been trying for years, gone through all the MOT testing and your both fine and they leaves you still with no answers….. your youngest at the time would be 4 ….who might I add was conceived on the coil!! (Just to add Insult
Fertility anyone? Had anyone had their fertility affected by a b12 deficiency, been trying for years, gone through all the MOT testing and your both fine and they leaves you still with no answers….. your youngest at the time would be 4 ….who might I add was conceived on the coil!! (Just to add Insult
Lollipops35
in
Pernicious Anaemia Society
3 years ago
Coil removal
I’m looking at getting the coil removed soon to try to get pregnant. I’m anxious about this as I’ve had to go to the hospital for a ultrasound as the nurse couldn’t see the strings during a recent check up. All is fine with the coil but I’m wondering if anyone can reassure me?! Also, any advice for trying
I’m looking at getting the coil removed soon to try to get pregnant. I’m anxious about this as I’ve had to go to the hospital for a ultrasound as the nurse couldn’t see the strings during a recent check up. All is fine with the coil but I’m wondering if anyone can reassure me?! Also, any advice for trying
Green0102
in
BASHH
3 years ago
Removal of mirena coil and period
Has anyone had their coil removed had a period then when due the second period not had one?
Has anyone had their coil removed had a period then when due the second period not had one?
Rebeccaw21
in
Endometriosis UK
3 years ago
Endo pain with mirena 12 months on
Hi, I was diagnosed with stage 2 endometriosis November 2020 with a laproscopy. The endometrial tissue was removed, and I was placed on the Mirena coil to reduce my estrogen production. The first 6 months of the mirena coil was not nice, the pain was so bad we worried it was leftover endometrial tissue
Hi, I was diagnosed with stage 2 endometriosis November 2020 with a laproscopy. The endometrial tissue was removed, and I was placed on the Mirena coil to reduce my estrogen production. The first 6 months of the mirena coil was not nice, the pain was so bad we worried it was leftover endometrial tissue
Jessiecat1396
in
Endometriosis UK
3 years ago
Cerazette & Mirena Coil together
Hello all, I have stage 4 endometriosis. It’s recto-vaginal. I have had the Mirena coil in for 2 years. It was good initially. Stopped my periods completely and massively reduced my pain. I was getting a lot of pain in my left ovary and scan revealed 8cm cyst. I’ve had 2 further scans since abs
Hello all, I have stage 4 endometriosis. It’s recto-vaginal. I have had the Mirena coil in for 2 years. It was good initially. Stopped my periods completely and massively reduced my pain. I was getting a lot of pain in my left ovary and scan revealed 8cm cyst. I’ve had 2 further scans since abs
Erin8
in
Endometriosis UK
3 years ago
Has anyone had the merina coil fitted for treatment of thickening of lining of the womb?
Would like to speak to any ladies that have /are going through the same x
Would like to speak to any ladies that have /are going through the same x
Carla90xx
in
Women's Health
3 years ago
Endometriosis Advice
I am 27 and have been dealing with painful period since I was 13/14. I have gone back to the doctor so many times about the pain to be told we can’t do anymore. You’re already on naxproxen and codiene nothing strong we can give you. Lots of doctors have said they think I have endometriosis but no one
I am 27 and have been dealing with painful period since I was 13/14. I have gone back to the doctor so many times about the pain to be told we can’t do anymore. You’re already on naxproxen and codiene nothing strong we can give you. Lots of doctors have said they think I have endometriosis but no one
NatMcM
in
Endometriosis UK
3 years ago
Pill and treatment Endo?
Hi all, hoping for some advice. I was diagnosed with Endo in Jan 19 after having a large cyst removal, which resulted in my ovary and tube also being removed (left side). I was discharged from Gynae care after being given the pill. I stopped taking the pill and tried to carry on as normal (due to continuous
Hi all, hoping for some advice. I was diagnosed with Endo in Jan 19 after having a large cyst removal, which resulted in my ovary and tube also being removed (left side). I was discharged from Gynae care after being given the pill. I stopped taking the pill and tried to carry on as normal (due to continuous
AMJ88
in
Endometriosis UK
3 years ago
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