Relief in pain since mirena coil removed

[0Jasmine]

Hi

Just wondering if anyone else has had similar experiences…I had pelvic pain for around 7 months and the mirena coil inserted to help with suspected endo however it caused the worst pain I have ever experienced for the first two weeks then around 20 days of random varying pain through the month and regular spotting when my period would be. Had the coil 9 months had it removed around about a month ago and have only experienced 4 days of main in 4 weeks! Feeling so much better with it out and greatful for this although haven’t had a ‘proper’ period yet but wondered if anyone else has experienced this?

Thank you! X

[LTyrer]

I also felt worse with the mirena coil in. When I had it removed they said it was slowy coming out by itself and the pain was probably it working it's way out. I felt a little better after it out too.

[0Jasmine in reply to LTyrer]

That’s good to know, thanks for your message. What do you do now to help with pain relief or are you managing ok?

[LTyrer in reply to 0Jasmine]

I had it taken out to have a baby and have really been struggling with pains since having her. Starting to loose my mind a little and think I will need to go to someone soon but don't really know where to start. What are you doing now?

[0Jasmine in reply to LTyrer]

Sorry to hear that, there’s nothing worse than constant pain! I’m just going to see how I am the next couple of months with nothing and if it’s only just before my period I’m going to try amytriptiline at night. X

[BattyForBats]

Hey, I also had the coil fitted to 'help' with the pain and ended up with more pain than the actual endo in the first place. Managed to last a month and had to get it removed. I'm now on the mini pill and have a review in 3 months to see how that's working.

[0Jasmine in reply to BattyForBats]

Hope it works for you and your feeling better soon x

[SoJo_EndoUK Moderator]

Hi Jasmine,

I’m one of the health unlocked moderators for Endo UK. It certainly sounds like the coil wasn’t agreeing with you. I’ve heard very mixed reviews of the coil and I know it can take some time to settle down after fitting. I’m glad you feel better after having it removed. There are various treatments available for endo, I have attached some info for you in case it is helpful. Take care and we’re here for support.

endometriosis-uk.org/endome...

[SleepyGardener]

Hi Jasmine, I don't have endo but had a mirena coil fitted due to horrendous period pains and heavy periods that were impacting me for 2 weeks each month. However, the coil not only affected me mentally (which was unexpected) but caused pelvic pain the whole time it was in - which was over a year! No one suspected the coil was the cause of the pain until I read some anecdotal stuff on the internet and figured it was worth a shot. Within a day of it being removed the constant pelvic pain that kept me awake at night was gone and I haven't looked back.

My periods came back and were 'normal' (my normal) afterwards. I ended up doing lots of research into nutrition and lifestyle changes that helped reduce the 'usual' period pain but obviously that might not help if you have endo. I read 2 books, 'the period repair manual' and 'period power' which I found really helpful and would recommend everyone reads.

[0Jasmine in reply to SleepyGardener]

Hi and thanks for your reply and experience. That’s really interesting, what did you read online? I’m so glad you have found a new balance with diet and I’ll look into that to read. I’m so glad I decided to have it taken out but also a bit worried about how my next normal period will be but wishing to try and not medicate myself as much as I possibly can. Thanks