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Hand inflamation following PMR
Hi there, I suffered bad PMR for nearly three years, strating on 30mg of pred. Tapering down until about six weeks ago... maybe too fast towards the end, the GP put me on Naproxin. Aches and pains were fairly bad but a trigger finger has led to inflammation and paralysis to both hands. No one seems to
Hi there, I suffered bad PMR for nearly three years, strating on 30mg of pred. Tapering down until about six weeks ago... maybe too fast towards the end, the GP put me on Naproxin. Aches and pains were fairly bad but a trigger finger has led to inflammation and paralysis to both hands. No one seems to
Kiyomasa
in
PMRGCAuk
30 days ago
2nd pBAT cycle results: AR upregulation? Double strand breaks? Darolutamide?
Started 2nd pBAT cycle on 4-22-24 with a PSA of 0.62 measured 2 days earlier. All 6 injections were 50 mg eod of T propionate with .625 mg letrozole every 5th day as an aromatase inhibitor. The hiT cycle was cut short by 2 injections because of a plan to SBRT treat a pelvic lymph node chain that lit
Started 2nd pBAT cycle on 4-22-24 with a PSA of 0.62 measured 2 days earlier. All 6 injections were 50 mg eod of T propionate with .625 mg letrozole every 5th day as an aromatase inhibitor. The hiT cycle was cut short by 2 injections because of a plan to SBRT treat a pelvic lymph node chain that lit
Ichthus316
in
Fight Prostate Cancer
1 month ago
Arthritis and P.A
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Suesue246
in
Pernicious Anaemia Society
1 month ago
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Newbie
Just been diagnosed with opca, awaiting blood tests to determine type. Have a 24 year old daughter so hope it isn’t inherited! The consultant has strongly hinted he thinks it is MSA-C. Going to see him again on the 25th September for the results maybe. Was told it was plantar fasciitis !!
Just been diagnosed with opca, awaiting blood tests to determine type. Have a 24 year old daughter so hope it isn’t inherited! The consultant has strongly hinted he thinks it is MSA-C. Going to see him again on the 25th September for the results maybe. Was told it was plantar fasciitis !!
BoneyEm1972
in
Multiple System Atrophy Trust
1 month ago
ET and anaemia
I have ET with my platelets running at around 1200. I take aspirin, (another condition makes medication tricky). My last GP appt I had a blood test and I'm anaemic. This is the first time this has happened so its a bit concerning. Having them repeated so fingers crossed it will have been a blip
I have ET with my platelets running at around 1200. I take aspirin, (another condition makes medication tricky). My last GP appt I had a blood test and I'm anaemic. This is the first time this has happened so its a bit concerning. Having them repeated so fingers crossed it will have been a blip
lynnieb
in
MPN Voice
1 month ago
10dp5dt and less that 1 on Beta hcg blood test so think this must have failed this time.
my clinic still wants me to continue with PIO injections pessaries and test again at 14 days which I think is a bit excessive and a waste of money, pain and even more anguish. I thought the latest clinics say is 12 days post transfer. Does anyone else clinic say 14 days?
my clinic still wants me to continue with PIO injections pessaries and test again at 14 days which I think is a bit excessive and a waste of money, pain and even more anguish. I thought the latest clinics say is 12 days post transfer. Does anyone else clinic say 14 days?
ladybd
in
Fertility Network UK
1 month ago
Blood test results
I got my results last week from rheumatologist visit (9 different tests). The nurse sent a message and told me results were normal, but continue orders to reduce Pred 1 mg each month. My CRP was.70 and ESR 26. Do these numbers indicate PMR?
I got my results last week from rheumatologist visit (9 different tests). The nurse sent a message and told me results were normal, but continue orders to reduce Pred 1 mg each month. My CRP was.70 and ESR 26. Do these numbers indicate PMR?
Aqua47
in
PMRGCAuk
1 month ago
Abnormal ESR but normal CRP post ablation
Hi all, I have had a few blood tests because I have episcleritis in one eye and some aches and pains in back, neck and shoulders.I had a catheter ablation on the 26th of March this year. I previously had polymyalgia and finally got off the steroids in January this year My ESR markers have come back
Hi all, I have had a few blood tests because I have episcleritis in one eye and some aches and pains in back, neck and shoulders.I had a catheter ablation on the 26th of March this year. I previously had polymyalgia and finally got off the steroids in January this year My ESR markers have come back
Karendeena
in
Atrial Fibrillation Support
1 month ago
NHS pre diabetic programme- Second Nature
This is more on the helpful pre diabetic theme, currently running. I wonder if anyone has been offered this programme? I was called up, by my surgery, for a blood test, in Dec 23, l don’t know why, possibly my age- 88. The result showed l was pre diabetic and l was immediately offered a free 9 month
This is more on the helpful pre diabetic theme, currently running. I wonder if anyone has been offered this programme? I was called up, by my surgery, for a blood test, in Dec 23, l don’t know why, possibly my age- 88. The result showed l was pre diabetic and l was immediately offered a free 9 month
Trulyscrumpious
in
PMRGCAuk
1 month ago
Very low iron level - Advice regarding supplementation.
My father is dealing with 2nd BCR. His recent blood test shows extremely low iron levels which is putting his heart at great risk of giving out. He has not had low iron levels before at all. The cardiologist has prescribed supplementation, if that proves insufficient, the cardiologist will administer
My father is dealing with 2nd BCR. His recent blood test shows extremely low iron levels which is putting his heart at great risk of giving out. He has not had low iron levels before at all. The cardiologist has prescribed supplementation, if that proves insufficient, the cardiologist will administer
MsBoBo
in
Advanced Prostate Cancer
1 month ago
Truqap update
I persuaded my onc to start me on this new drug in April. Since starting I have had great results. My first set of labs was great, so we backed off the amount of drug due to diarrhea. I had one set back on my 2nd blood tests but adjusted my meds and am back to lower values on tumor markers. My
I persuaded my onc to start me on this new drug in April. Since starting I have had great results. My first set of labs was great, so we backed off the amount of drug due to diarrhea. I had one set back on my 2nd blood tests but adjusted my meds and am back to lower values on tumor markers. My
Bonnie1942
in
SHARE Metastatic Breast Cancer
1 month ago
Month 21 of 24 Rituximab and Venetoclax
I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had chronic diarrhoea with stool tests coming up negative. Blood tests all negative including C diff. I've been advised to stop Venetoclax for 2 weeks
I'm doing well with this treatment CLL wise with all bloods within normal range. Antibody levels are however below being of much use.Past 10 weeks I've had chronic diarrhoea with stool tests coming up negative. Blood tests all negative including C diff. I've been advised to stop Venetoclax for 2 weeks
Fastbike14
in
CLL Support
1 month ago
No Endo appointment for 18 months and struggling for information
A couple of blood tests in April showed hyperthyroidism. I’ve no real symptoms. GP examined me and referred me to an NHS endo, who asked for bloods and neck scan. But no appointment for 18mths. I therefore saw a private endo 3 weeks ago who after examining me said 99.9999% Graves and neck scan is a worthless
A couple of blood tests in April showed hyperthyroidism. I’ve no real symptoms. GP examined me and referred me to an NHS endo, who asked for bloods and neck scan. But no appointment for 18mths. I therefore saw a private endo 3 weeks ago who after examining me said 99.9999% Graves and neck scan is a worthless
Asatess
in
Thyroid UK
1 month ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
There's a long and challenging journey from microscope observations of cancer cells hopefully dying while exposed to candidate therapies, that is, 'in vitro' testing, to successful in vivo human studies, clinical trials and eventual approval. Not only does the therapy need to kill the cancer cells with
AussieNeil
Partner
in
CLL Support
1 month ago
at my wits end
My story is a long story.Everything was fine with my GP and had a good gp/patient relationship-had full trust in him -until 2011 when he referred me to rheumatology because he thought my symptoms were something else besides my Fibromyalgia.The rheumatologist did nothing except tell me" you need to lose
My story is a long story.Everything was fine with my GP and had a good gp/patient relationship-had full trust in him -until 2011 when he referred me to rheumatology because he thought my symptoms were something else besides my Fibromyalgia.The rheumatologist did nothing except tell me" you need to lose
Purple1968
in
Pain Concern
1 month ago
Another update to Advice Please.
PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointment to see the Rheumatologist Wednesday afternoon. She said blood test showed no raised inflammation. I pointed out that I had been on Pred for 6 years, and only down to 5.5mg. She arranged an urgent appointment to see the
PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointment to see the Rheumatologist Wednesday afternoon. She said blood test showed no raised inflammation. I pointed out that I had been on Pred for 6 years, and only down to 5.5mg. She arranged an urgent appointment to see the
pmrgcavictim
in
PMRGCAuk
1 month ago
Carbocisteine - possible side effect for CBD
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
My husband is in hospital recovering from silent aspiration pneumonia. He is now nil by mouth and PEG fed. His blood tests show he has no infection, his oxygen level is acceptable and his chest is much improved. However he is still being treated with Carbocisteine ( which helps to loosen and bring up
SunriseLegend
in
PSP Association
1 month ago
ET PLATLETS
Hi i was diagnosed with ET cal r mutation a year ago I am 47 went to my gp for normal blood tests and that's hw this all started I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so
Hi i was diagnosed with ET cal r mutation a year ago I am 47 went to my gp for normal blood tests and that's hw this all started I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so
VTAR24
in
MPN Voice
1 month ago
PMR relapse?
I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I stopped Pred December 23! Around 10 weeks ago started waking in early hours in bad pain chiefly in shoulders and hips but also shooting pains in limbs
I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I stopped Pred December 23! Around 10 weeks ago started waking in early hours in bad pain chiefly in shoulders and hips but also shooting pains in limbs
Salukimama
in
PMRGCAuk
1 month ago
Johns Hopkins adjusted clinical groups system score mean under nhs?
I see this on record Johns Hopkins adjusted clinical groups system score of ACG 5. What does it mean how does it impact me in any way.? I have started asking for blood tests and my GP has not been happy about it. Surgery has never been keen to blood tests though this seems to have popped up on record
I see this on record Johns Hopkins adjusted clinical groups system score of ACG 5. What does it mean how does it impact me in any way.? I have started asking for blood tests and my GP has not been happy about it. Surgery has never been keen to blood tests though this seems to have popped up on record
thyroidsymtoms
in
Thyroid UK
1 month ago
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