ET PLATLETS

[VTAR24]

Hi i was diagnosed with ET cal r mutation a year ago I am 47 went to my gp for normal blood tests and that's hw this all started I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so shocked with this news but he told me it was manageable with routine check ups so a year later I'm on asprin and started 90mg of pegasys in March this year which I am doing ok with but platelets are up and dwn lowest 780 and highest 1110 which I was so anxious about but my hematologist tells me this is noting to worry about as it can take a while to get dosage right I feel fine just tired in the evenings and no problems with pegasys also lately feeling very hot at night and now I'm worried are things goi g up more does anyone have this experience at nite time bk into hematologist in 3 weeks .

[Cat1001954]

night sweats are a symptom of ET I have it

[Ipadlin]

I started having night sweats just before I was diagnosed and my platelets were slightly under 1000. I was put on hydroxy and my platelets dropped, then increased before gradually dropping to around 400. (I’m eight months post diagnosis and the dosage is still being calibrated.) The night sweats stopped when I got below 800.

I’m not suggesting this is typical or a target to aim for just that the lower count seem to reduce the symptoms