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Rheumy helpline not replied to me 😢
Hi all, I've had RA since 2018 and I've had a cocktail of drugs since then, but I've now been on sarilumab for around 2 years and was doing okish up until a few months ago. I've rang Rheumy helpline last Wednesday and we have to leave a message but still had no reply. My appointment should have been
Hi all, I've had RA since 2018 and I've had a cocktail of drugs since then, but I've now been on sarilumab for around 2 years and was doing okish up until a few months ago. I've rang Rheumy helpline last Wednesday and we have to leave a message but still had no reply. My appointment should have been
Natbat87
in
NRAS
9 months ago
bleeding after Canesten pessary
I’ve had episodes of thrush over the years all treated with tablets or pessaries. I used a Canesten pessary a couple of days ago and now have period like bleeding. Never experienced this after treatment and pretty sure it’s not a normal period bleed. Any advice on similar welcome
I’ve had episodes of thrush over the years all treated with tablets or pessaries. I used a Canesten pessary a couple of days ago and now have period like bleeding. Never experienced this after treatment and pretty sure it’s not a normal period bleed. Any advice on similar welcome
im989
in
Women's Health
8 months ago
mannitol
mannitol which is in Teva brand of thyroxine and does not agree with everyone. I have found out is obtained by the hydrogenation of sugars from wheat/corn starch no wonder I have problems, being gluten free. Also found it in other medications.
mannitol which is in Teva brand of thyroxine and does not agree with everyone. I have found out is obtained by the hydrogenation of sugars from wheat/corn starch no wonder I have problems, being gluten free. Also found it in other medications.
elwins
in
Thyroid UK
10 months ago
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Frustrated
Hi glad I found this group. I have had depression and anxiety for a long time 2000. Dx Generalized Anxiety Disorder Effexor worked after going through a few meds as my stress level climbed my doctor at the time gave me Ativan .5 as needed added to Effexor it worked. (That was in 2000) fast forward
Hi glad I found this group. I have had depression and anxiety for a long time 2000. Dx Generalized Anxiety Disorder Effexor worked after going through a few meds as my stress level climbed my doctor at the time gave me Ativan .5 as needed added to Effexor it worked. (That was in 2000) fast forward
darksun
in
Anxiety and Depression Support
9 months ago
Is it just me !
So I had a viral infection in March and pneumonia that sent me into a really bad flare up of symptoms and I'm currently still in this flare up . Whenever I get any sort of infection it sends me into a flare of symptoms. I also had COVID in September which may be contributing to why my flare up is lasting
So I had a viral infection in March and pneumonia that sent me into a really bad flare up of symptoms and I'm currently still in this flare up . Whenever I get any sort of infection it sends me into a flare of symptoms. I also had COVID in September which may be contributing to why my flare up is lasting
Jillgib
in
Fibromyalgia Action UK
6 months ago
when to take tablets
I have had my thyroid problem since 1992 and when I was just taking my thyroxine , when to take it was not a problem. Now I have atrial fibrillation and have to take 1/2 tablet of Apocard with a blood thinner 12 hours apart with food. I also have to take a beta blocker with food but not with the Apocard
I have had my thyroid problem since 1992 and when I was just taking my thyroxine , when to take it was not a problem. Now I have atrial fibrillation and have to take 1/2 tablet of Apocard with a blood thinner 12 hours apart with food. I also have to take a beta blocker with food but not with the Apocard
Sam1411
in
Thyroid UK
1 year ago
Desperate
Hi,I have suffered from anxiety all my life, I've always been nervous and have little confidence. In 2020, I was diagnosed with CPTSD, and initially had a few sessions of EMDR, and also hypnotise, neither of which worked. I subsequent developed chronic panic attacks, which were more like seizures/ fits
Hi,I have suffered from anxiety all my life, I've always been nervous and have little confidence. In 2020, I was diagnosed with CPTSD, and initially had a few sessions of EMDR, and also hypnotise, neither of which worked. I subsequent developed chronic panic attacks, which were more like seizures/ fits
Patkin50
in
Mental Health Support
5 months ago
Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?
I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively managed well with immunosuppressants. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively managed well with immunosuppressants. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
Udupik
in
PMRGCAuk
6 months ago
Covid and Liver Disease
we’ll Covid finally caught me, I have escaped it from day one but this week I have felt so I’ll and now I know why …. My question is how does Covid affect the liver, I know it is the livers job to fight infection and is that still possible with a bad liver, also how does Covid affect the liver, I really
we’ll Covid finally caught me, I have escaped it from day one but this week I have felt so I’ll and now I know why …. My question is how does Covid affect the liver, I know it is the livers job to fight infection and is that still possible with a bad liver, also how does Covid affect the liver, I really
Sophia1968
in
British Liver Trust
9 months ago
Feeling very cold
Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers and trousers and still feeling the cold. So am just wondering if it's normal lol. Donnax
Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers and trousers and still feeling the cold. So am just wondering if it's normal lol. Donnax
PusscatsGoodies
in
CLL Support
6 months ago
Viral infection to Covid and Flu booster gap.
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
JigFettler
Volunteer
in
CLL Support
8 months ago
Covid booster
I'm really anxious about having my booster this time due to some reactions Was really ill last Christmas into the New Year not with Covid but a pneumonia that I couldn't shift despite numerous antibiotics. I now have bronchiectasis along with my asthma! I have booked it as I'm a front line worker but
I'm really anxious about having my booster this time due to some reactions Was really ill last Christmas into the New Year not with Covid but a pneumonia that I couldn't shift despite numerous antibiotics. I now have bronchiectasis along with my asthma! I have booked it as I'm a front line worker but
Janny1
in
Asthma Community Forum
8 months ago
Eye drops
I've been diagnosed with ocular hypertension in both eyes and using Latanaprost drops at night. No real problems so far other than dry eyes later on in the day. My brother has Latanaprost too and he puts his drops in each eye but at the same time then presses on the tear duct for 2 minutes. The leaflet
I've been diagnosed with ocular hypertension in both eyes and using Latanaprost drops at night. No real problems so far other than dry eyes later on in the day. My brother has Latanaprost too and he puts his drops in each eye but at the same time then presses on the tear duct for 2 minutes. The leaflet
sheelc
in
Glaucoma UK
1 year ago
still going strong.
hello my Ataxian friends, how are you all doing, ok I hope….. an update on myself. I had cataracts removed from both eyes a couple of years ago, my vision now is amazing, and the colors are beautiful, but the new lenses are long distance only, you don’t get a choice, so I still wear glasses for reading
hello my Ataxian friends, how are you all doing, ok I hope….. an update on myself. I had cataracts removed from both eyes a couple of years ago, my vision now is amazing, and the colors are beautiful, but the new lenses are long distance only, you don’t get a choice, so I still wear glasses for reading
Veteran250
in
Ataxia UK
1 year ago
Pneumonia Vaccine - Who Can Have it?
Hi everybody, it’s been a bit of a tough 10 days. Things have been going well but a week last Thursday I started getting flashes in my left eye and loads of floaters, optician referred me and went to hospital to have laser treatment on some retinal tears, because the NHS have difficulty managing appointments
Hi everybody, it’s been a bit of a tough 10 days. Things have been going well but a week last Thursday I started getting flashes in my left eye and loads of floaters, optician referred me and went to hospital to have laser treatment on some retinal tears, because the NHS have difficulty managing appointments
Investigator1
in
Vasculitis UK
6 months ago
Think I've made a big mistake over flu vaccine!
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
Frenchduck
in
PMRGCAuk
6 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
6 months ago
shingles
hi all just wondering if anyone has any tips for managing shingles? So sore and uncomfortable 🥴
hi all just wondering if anyone has any tips for managing shingles? So sore and uncomfortable 🥴
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
Swelling back after knee aspiration
Hi everyone,I have had a diagnosis of inflammatory arthritis for about 10 years now (although the symptoms had been there many years longer like so many of us). I am on a weekly Metoject 20mg and 6x 500g Sulfasalazine daily. It tends to be my knees that are particularly affected and over the last 10
Hi everyone,I have had a diagnosis of inflammatory arthritis for about 10 years now (although the symptoms had been there many years longer like so many of us). I am on a weekly Metoject 20mg and 6x 500g Sulfasalazine daily. It tends to be my knees that are particularly affected and over the last 10
BillyJayDuncs
in
NRAS
9 months ago
Collagen Supplements
Hello all...does anyone have any advice or guidance please on whether taking collagen supplements is a good/bad idea alongside thyroid meds? My skin and hair are terribly dry and I was wondering if they might help. But I'm about worried about including them in the regime if there are contraindications
Hello all...does anyone have any advice or guidance please on whether taking collagen supplements is a good/bad idea alongside thyroid meds? My skin and hair are terribly dry and I was wondering if they might help. But I'm about worried about including them in the regime if there are contraindications
SilverSavvy
in
Thyroid UK
1 year ago
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