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GCA Flareup
I hope someone can help me, as I feel like I've been thrown to the wolves and I don't know what to do. I am having a major flare up of PMR and GCA, I have blurred vision and head pains every day for the past 2 weeks but have been feeling awful since February. My body is so sore, plus Iam so tired all
I hope someone can help me, as I feel like I've been thrown to the wolves and I don't know what to do. I am having a major flare up of PMR and GCA, I have blurred vision and head pains every day for the past 2 weeks but have been feeling awful since February. My body is so sore, plus Iam so tired all
Sally001
in
PMRGCAuk
1 year ago
Microbiome in PD, RBD and 1st degree relatives
As much as I'd like to believe that one "bad" bacteria (desulfovibrio) is responsible for Parkinson's, I suspect the situation is more complicated than that, as this recently released study suggests; https://www.nature.com/articles/s41467-023-38248-4 Certainly the evidence is accumulating though, that
As much as I'd like to believe that one "bad" bacteria (desulfovibrio) is responsible for Parkinson's, I suspect the situation is more complicated than that, as this recently released study suggests; https://www.nature.com/articles/s41467-023-38248-4 Certainly the evidence is accumulating though, that
Rufous2
in
Cure Parkinson's
1 year ago
Glaucoma, prednisolone and anxiety supplements
Good morning all I am being treated for GCA and at the moment I’m on 20mg of of prednisilone, I am coping ok and trying to stay as healthy as possible, I already have glaucoma and sadly the steroids have pushed my eye pressure up, I saw my eye consultant yesterday, he is quite concerned, the operation
Good morning all I am being treated for GCA and at the moment I’m on 20mg of of prednisilone, I am coping ok and trying to stay as healthy as possible, I already have glaucoma and sadly the steroids have pushed my eye pressure up, I saw my eye consultant yesterday, he is quite concerned, the operation
Mumdadlove
in
PMRGCAuk
1 year ago
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Has anyone had orbital decompression for graves eye disease?
Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks
Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks
Naples21
in
Thyroid UK
1 year ago
prednisolone 3 week course followd by surgery
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
lindyloo2018
in
NRAS
11 months ago
Third fresh failed (6th embryo) 😢
Good morning all Firstly I wanted to say a big thank you to everyone that responded to my posts and shared their experiences over the last few weeks (sorry I've not managed to reply to everyone but I have read your responses). It's been an incredibly anxious time and just doesn't get any easier the more
Good morning all Firstly I wanted to say a big thank you to everyone that responded to my posts and shared their experiences over the last few weeks (sorry I've not managed to reply to everyone but I have read your responses). It's been an incredibly anxious time and just doesn't get any easier the more
J0J0123
in
Fertility Network UK
5 months ago
Change clinics after failed first attempt?
Hi all! I’ve just completed my first ivf cycle and I’m looking for some advice from more experienced ivf ladies. in a nutshell, I’m wondering if I should change clinics or question them further. I am 40 and had previous successful pregnancy and miscarriages (12 years ago) good amh, afc and retrieved
Hi all! I’ve just completed my first ivf cycle and I’m looking for some advice from more experienced ivf ladies. in a nutshell, I’m wondering if I should change clinics or question them further. I am 40 and had previous successful pregnancy and miscarriages (12 years ago) good amh, afc and retrieved
Ses9
in
Fertility Network UK
5 months ago
embryo freezing day 1
hi all, First time posting and needing to hear from others with similar experience. Please help My partner and I have just completed our 3rd round of icsi. The first round we got one embryo make it to transfer but it failed. Second round we got a poor response and none of the 4 eggs were suitable for
hi all, First time posting and needing to hear from others with similar experience. Please help My partner and I have just completed our 3rd round of icsi. The first round we got one embryo make it to transfer but it failed. Second round we got a poor response and none of the 4 eggs were suitable for
Emjem84
in
Fertility Network UK
5 months ago
Short synathecen test
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Ester467
in
Thyroid UK
1 year ago
Covid and the NHS
Late april this year I contracted Covid again (previous time was just before the first lockdown). I slept for 4 days feeling cold and exhausted with lack of appetite I lost a stone in weight in 4 weeks. It did not seem to effect my chest so much this time (I have emphysema) but here I am 6 weeks later
Late april this year I contracted Covid again (previous time was just before the first lockdown). I slept for 4 days feeling cold and exhausted with lack of appetite I lost a stone in weight in 4 weeks. It did not seem to effect my chest so much this time (I have emphysema) but here I am 6 weeks later
Daisytime
in
Lung Conditions Community Forum
11 months ago
Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Hoping for some reassurance
Hit my head falling off my (not moving) bicycle a couple of months ago and have been suffering from severe nausea triggered by lights, high contrast and moving things since then. I'm seeing a physiotherapist specialized in head injury recovery and have exercises to do (which I do) and I know I'm in
Hit my head falling off my (not moving) bicycle a couple of months ago and have been suffering from severe nausea triggered by lights, high contrast and moving things since then. I'm seeing a physiotherapist specialized in head injury recovery and have exercises to do (which I do) and I know I'm in
capibaras
in
Headway
11 months ago
crp 6.7
Hi, I went to see my gp yesterday with suspected uti. I did a urine sample which was showing Leucocytes present, I was given a three day course of antibiotics and blood test sent. I have seen the results of blood tests on nhs app today and is showing abnormal result for crp at 6.7. When I last had
Hi, I went to see my gp yesterday with suspected uti. I did a urine sample which was showing Leucocytes present, I was given a three day course of antibiotics and blood test sent. I have seen the results of blood tests on nhs app today and is showing abnormal result for crp at 6.7. When I last had
Lynlea
in
PMRGCAuk
11 months ago
HU and prefibrotic myelofibrosis
Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from bad side effects. Dr didn’t want to change med or dosage. I resisted
Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from bad side effects. Dr didn’t want to change med or dosage. I resisted
Apple238
in
CLL Support
1 year ago
Sensitive : BFP rainbow baby
I was in two minds if to write this post as I know how difficult it is to read these updates if you are still struggling. and the fact that I am still in shock at a positive result. But I would also like to share a story of hope. So some of you will know my history, we had success on our second ICSI
I was in two minds if to write this post as I know how difficult it is to read these updates if you are still struggling. and the fact that I am still in shock at a positive result. But I would also like to share a story of hope. So some of you will know my history, we had success on our second ICSI
butterfliez
in
Fertility Network UK
5 months ago
WARNING: If you have FND and live in UK
Hi, If you live in UK and have FND you may wish to check your online medical record has not been incorrectly updated. I have had FND for over 12 years following a virus. When I was diagnosed 10 years ago, my consultant neurologist wrote a clear diagnosis letter, stating that I have a physical illness
Hi, If you live in UK and have FND you may wish to check your online medical record has not been incorrectly updated. I have had FND for over 12 years following a virus. When I was diagnosed 10 years ago, my consultant neurologist wrote a clear diagnosis letter, stating that I have a physical illness
sykgirl
in
Functional Neurological Disorder - FND Hope
1 year ago
Change of access of treatment to Covid treatments.
I have attached an email which I received today. It might be relevant to some of you: 'You may have previously received a letter or email explaining that you might be suitable for treatments if you get COVID and how to get treatment, if required. We are writing again because the way that you access
I have attached an email which I received today. It might be relevant to some of you: 'You may have previously received a letter or email explaining that you might be suitable for treatments if you get COVID and how to get treatment, if required. We are writing again because the way that you access
Moomin8
in
NRAS
11 months ago
Shingles vaccination and PCa progression?
Hi everyone, I am planning to get Shingles vaccine, but afraid from the consequences. Gleason score 9 (4+5) Radical Prostatectomy 2017 > BCR 2019 SRT 8 weeks + Firmagon 6 injections (over 6 months). G 9 recurrence is inevitable (as we all know) so I am scared to take the Shingles vaccine. Any one
Hi everyone, I am planning to get Shingles vaccine, but afraid from the consequences. Gleason score 9 (4+5) Radical Prostatectomy 2017 > BCR 2019 SRT 8 weeks + Firmagon 6 injections (over 6 months). G 9 recurrence is inevitable (as we all know) so I am scared to take the Shingles vaccine. Any one
Ralph1966
in
Advanced Prostate Cancer
10 months ago
update on Covid treatments
I received a email today with updated information. This is just in case people don’t receive emails from the nhs. As of 27th June you will no longer be contacted, if you submit a positive test. The onus is on the patient to contact either their gp or specialist to consider if they should receive antivirals
I received a email today with updated information. This is just in case people don’t receive emails from the nhs. As of 27th June you will no longer be contacted, if you submit a positive test. The onus is on the patient to contact either their gp or specialist to consider if they should receive antivirals
Runrig01
in
NRAS
11 months ago
NHS COVID changing
Email from NHS England saying from 27th June they will no longer contact you if you are classed as suitable for antivirals. Instead you contact your GP,hospital dept or NHS covid telephone number. Also from 1st October the way we get the tests may be changing? Yesterday someone told me that covid jabs
Email from NHS England saying from 27th June they will no longer contact you if you are classed as suitable for antivirals. Instead you contact your GP,hospital dept or NHS covid telephone number. Also from 1st October the way we get the tests may be changing? Yesterday someone told me that covid jabs
Jackie1947
in
NRAS
11 months ago
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