Search
Search
About
Log in
Join
Experiences with
Eye enucleation
Posts
Communities
4,842 public posts
Filter results
Sore eyes and light sensitivity
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
pandacat2
in
Thyroid UK
2 years ago
Pegasys and insomnia
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
EleanorPV
in
MPN Voice
2 years ago
Raynaudscand swollen Herbens nodes
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
Stormy911
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Accessing Neuropsychology and trauma therapy
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
Hidden
in
Headway
2 years ago
Weird symptoms
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
I share concerns, I'm sharing some good news!!
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
Grammy80
in
PMRGCAuk
2 years ago
Charles Bonnet .. Has anyone been diagnosed with Charles bonnet syndrome with relatively good eyesight?
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
Giro26
in
Macular Society
2 years ago
Has anyone else experienced olfactory hallucinations? Phantosmia?
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
seamuspg
in
Functional Neurological Disorder - FND Hope
2 years ago
Feeling despondent - cataract surgery after trab
My partner developed steroid-induced glaucoma (another and long story) in his left eye and had trab surgery last December. He also developed a cataract while on this journey. Last Friday he had cataract surgery. The next day he could read the eye chart after having very little vision in that eye all
My partner developed steroid-induced glaucoma (another and long story) in his left eye and had trab surgery last December. He also developed a cataract while on this journey. Last Friday he had cataract surgery. The next day he could read the eye chart after having very little vision in that eye all
Calam1ty
in
Glaucoma UK
2 years ago
Any experience/advice re drug storage (TCZ) when electricity off & no fridge due to power cut please?
My first post, be kind, I’m maybe just overthinking…. Does anyone have experience/advice on Drug storage when Electricity goes off so that biological injections aren’t rendered unusable please? Power cuts happen regularly during winter as we live in a village ‘in the sticks’ or the ‘wilds of wannee’
My first post, be kind, I’m maybe just overthinking…. Does anyone have experience/advice on Drug storage when Electricity goes off so that biological injections aren’t rendered unusable please? Power cuts happen regularly during winter as we live in a village ‘in the sticks’ or the ‘wilds of wannee’
Erikaknitssocks
in
NRAS
2 years ago
Besremi versus Pegasys
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
EPguy
in
MPN Voice
2 years ago
Myopic Degeneration
26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that
26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that
myopiaisdangerous
in
Macular Society
2 years ago
HSP and alport syndrome
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house and got a.new consultant who on reviewing my file wants me tested for alport syndrome. Has anyone else with HSP had this done? I'm not sure if
kc4t
in
Vasculitis UK
3 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
3 years ago
Pre surgery question - thanks
Hey! Has anyone been asked to inject themselves with Dalteparin the day before their surgery? Were you taught how to do it by a nurse? Thanks ❤
Hey! Has anyone been asked to inject themselves with Dalteparin the day before their surgery? Were you taught how to do it by a nurse? Thanks ❤
TennisAM
in
Endometriosis UK
3 years ago
Doing the best with what we have
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had
Samson360
in
Charcot-Marie-Tooth UK
3 years ago
Loose suture 7 months after eye surgery
Following implantation of a Preserflo micro shunt in my Left eye last March the eye has not been any trouble. Three weeks ago I began having dry eye symptoms and it was a little red. This did not improve despite my flooding the eye with lubricating drops and now it is still aching, sore, watering and
Following implantation of a Preserflo micro shunt in my Left eye last March the eye has not been any trouble. Three weeks ago I began having dry eye symptoms and it was a little red. This did not improve despite my flooding the eye with lubricating drops and now it is still aching, sore, watering and
muddledme
in
Glaucoma UK
3 years ago
5dp5dt testing too early again I'm sure :(
Here we go again I say every time I won't test but 5dp5dt and I'm certain if I squint and hold it to the light I can see a little line. I'm on double pessary cyclogest. Lubion injections. Dalteparin and prednisolone for the first time really hoping I have a sticky one I've been pregnant 8 times but still
Here we go again I say every time I won't test but 5dp5dt and I'm certain if I squint and hold it to the light I can see a little line. I'm on double pessary cyclogest. Lubion injections. Dalteparin and prednisolone for the first time really hoping I have a sticky one I've been pregnant 8 times but still
Kieneyl
in
Fertility Network UK
3 years ago
My Life with CMT type 1a
So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and took me to the doctor. It took a couple of years of being in and out of hospital and having every test imaginable. Finally a neurologist diagnosed
So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and took me to the doctor. It took a couple of years of being in and out of hospital and having every test imaginable. Finally a neurologist diagnosed
Samson360
in
Charcot-Marie-Tooth UK
3 years ago
SARS-CoV-2 virus-trapping chewing gum
This is not science fiction. It is from University of Pennsylvania researchers. Transform plant cells with a gene targeted to the chloroplast that codes for the SARS-CoV-2 virus spike-binding ACE2 receptor. Incorporate the transformed plant cells into chewing gum. When the gum is chewed, the ACE2
This is not science fiction. It is from University of Pennsylvania researchers. Transform plant cells with a gene targeted to the chloroplast that codes for the SARS-CoV-2 virus spike-binding ACE2 receptor. Incorporate the transformed plant cells into chewing gum. When the gum is chewed, the ACE2
gardening-girl
in
CLL Support
3 years ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Macular Society
557 results
Thyroid UK
478 results
PMRGCAuk
384 results
View top 10 communities
Sort by
Most Relevant
Newest