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Anyone doing Euro Lupus protocol? (Low dose cyclophosphamide)
Hello to everyone out there! I’m new to the group - seeking advice from those who have undergone the Euro Lupus Protocol? This is cytoxan (cyclophosphamide) treatments by IV every other week. I understand infusion treatment takes approximately 6 hrs. Sounds very looong to me! What does one do all
Hello to everyone out there! I’m new to the group - seeking advice from those who have undergone the Euro Lupus Protocol? This is cytoxan (cyclophosphamide) treatments by IV every other week. I understand infusion treatment takes approximately 6 hrs. Sounds very looong to me! What does one do all
Tired-in-Toronto
in
LUPUS UK
5 years ago
? BFP
Hi All, After two failed rounds of ISCI we had some pretty good improvement in sperm count but motility still wasn't up to scratch. We thought we'd give it one last proper try last month prior to my husbands renal transplant as we aren't sure if the sperm will take a nose dive. I had really mild spotting
Hi All, After two failed rounds of ISCI we had some pretty good improvement in sperm count but motility still wasn't up to scratch. We thought we'd give it one last proper try last month prior to my husbands renal transplant as we aren't sure if the sperm will take a nose dive. I had really mild spotting
Hidden
in
Fertility Network UK
5 years ago
Disabled badge
I am looking into applying for a disabled badge. I have only just turned 20 and I have systemic Lupus. I was diagnosed in 2014. I was wondering does that make me eligible for it? What are they looking for? I can walk but I have fatigue constantly, but to me i just see it as an everyday thing, alot of
I am looking into applying for a disabled badge. I have only just turned 20 and I have systemic Lupus. I was diagnosed in 2014. I was wondering does that make me eligible for it? What are they looking for? I can walk but I have fatigue constantly, but to me i just see it as an everyday thing, alot of
Ash2394
in
LUPUS UK
5 years ago
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B12 deficiency : tongue, mouth (and apologies !)
I did say that I would show what the lovely ENT consultant described as [i]"clearly B12 deficiency"[/i] - and also said that I was doing absolutely the right thing by self-injecting every other day, that it would take time and that I must be persistent. He also agreed with me that salivary gland infection
I did say that I would show what the lovely ENT consultant described as [i]"clearly B12 deficiency"[/i] - and also said that I was doing absolutely the right thing by self-injecting every other day, that it would take time and that I must be persistent. He also agreed with me that salivary gland infection
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
5 years ago
Raction after Pegasys injection
I inject 135 mg Pegasys every 3 weeks. Even though I feel very tired I find it hard to get to sleep (and stay asleep) the night of the injection. Does anyone else feel really jangly and agitated? It feels like I’ve drunk far too much coffee.
I inject 135 mg Pegasys every 3 weeks. Even though I feel very tired I find it hard to get to sleep (and stay asleep) the night of the injection. Does anyone else feel really jangly and agitated? It feels like I’ve drunk far too much coffee.
Marossi
in
MPN Voice
5 years ago
Eye problems is it PMR?
Hi, I recently read a post from koalajane to do with dry eyes and PMR. I have woken up many times with red eyes, my vision is blurred and I sometimes have a bit of watery pus. I'd be interested to know if PMR or steroids may be causing this. After around 10 minutes my eyes begin to clear. Thank you
Hi, I recently read a post from koalajane to do with dry eyes and PMR. I have woken up many times with red eyes, my vision is blurred and I sometimes have a bit of watery pus. I'd be interested to know if PMR or steroids may be causing this. After around 10 minutes my eyes begin to clear. Thank you
Hidden
in
PMRGCAuk
5 years ago
Diagnosis update for you all nearly a year on
Hi guys, so I promised I would update my journey here with how I got on after needing a second opinion and attending The Kellgren Centre at Manchester. Well over the last few months I’ve been having other various tests and then saw Dr Parker again a few weeks ago. He said he’s even more certain now that
Hi guys, so I promised I would update my journey here with how I got on after needing a second opinion and attending The Kellgren Centre at Manchester. Well over the last few months I’ve been having other various tests and then saw Dr Parker again a few weeks ago. He said he’s even more certain now that
Littlemisssunshine87
in
LUPUS UK
5 years ago
Friendship advice needed
Hi everyone, In need of some advice.. Recently my friend gave birth to her second little girl, but it was a traumatic delivery resulting in some brain damage to her daughter. We communicated back & forth in those first few difficult days, and I sent her daily messages of love and support and also a
Hi everyone, In need of some advice.. Recently my friend gave birth to her second little girl, but it was a traumatic delivery resulting in some brain damage to her daughter. We communicated back & forth in those first few difficult days, and I sent her daily messages of love and support and also a
Emska77
in
Fertility Network UK
5 years ago
Bell’s palsy diagnosed this week
After a horrible year I’ve now got this to deal with 😪 but having read more I wonder if it’s Ramsay hunt syndrome? I went to a&e on Tuesday with my face drooping and had extensive tests for a stroke. My ear was seemingly very red inside but not bad enough for antibiotics. I had to go to out of hours
After a horrible year I’ve now got this to deal with 😪 but having read more I wonder if it’s Ramsay hunt syndrome? I went to a&e on Tuesday with my face drooping and had extensive tests for a stroke. My ear was seemingly very red inside but not bad enough for antibiotics. I had to go to out of hours
Weejenny
in
Facial Palsy UK
5 years ago
Bladder Issues
Hi to you all! I saw a urologist the other day and she recommended either Myrbetriq, tibial nerve stimulation or Botox for incontinence issues Do any of you have experience with any of these treatments? Any advice would be appreciated! Thank you!
Hi to you all! I saw a urologist the other day and she recommended either Myrbetriq, tibial nerve stimulation or Botox for incontinence issues Do any of you have experience with any of these treatments? Any advice would be appreciated! Thank you!
jsb0410
in
My MSAA Community
5 years ago
Transparent membrane Eye
I have noticed this transparent membrane in December last year. I went to a eye test and was told it was nothing, there was nothing in my eyes. Both eyes have the membrane. I was told not to worry about. Last week I checked my eyes again to see if the membrane was still there, and the membrane has grown
I have noticed this transparent membrane in December last year. I went to a eye test and was told it was nothing, there was nothing in my eyes. Both eyes have the membrane. I was told not to worry about. Last week I checked my eyes again to see if the membrane was still there, and the membrane has grown
Catherines03
in
Cure Arthritis Community
5 years ago
Hashimotis frequency of blood testing . I'd like your advice please.
How often should blood be tested if you have Hashimotis? I have been on Levothyroxine for 6 years now. 200mg at present. Last year I felt awful. Dry skin. Swollen eyes . Swollen tongue. My GP test said 'borderline retest in 6 months. I used a private test the remarks which came with the result suggested
How often should blood be tested if you have Hashimotis? I have been on Levothyroxine for 6 years now. 200mg at present. Last year I felt awful. Dry skin. Swollen eyes . Swollen tongue. My GP test said 'borderline retest in 6 months. I used a private test the remarks which came with the result suggested
A1Amber
in
Thyroid UK
5 years ago
Spacey
Anyone else ever get really spacey from the anxiety? Or maybe depression or dissociation?
Anyone else ever get really spacey from the anxiety? Or maybe depression or dissociation?
Lindsey14
in
Anxiety Support
5 years ago
Ibrutinib Plus Venetoclax in Relapsed/Refractory Chronic Lymphocytic Leukemia: Update on The CLARITY Study
Published on line July 11, 2019, Accepted by JCO May 31 2019 Dr P Hillmen We have some members who are in this important CLARITY Study in UK. CLARITY is a phase II trial that combined ibrutinib with venetoclax in patients with relapsed or refractory CLL. The primary end point was eradication of MRD after
Published on line July 11, 2019, Accepted by JCO May 31 2019 Dr P Hillmen We have some members who are in this important CLARITY Study in UK. CLARITY is a phase II trial that combined ibrutinib with venetoclax in patients with relapsed or refractory CLL. The primary end point was eradication of MRD after
Jm954
Administrator
in
CLL Support
5 years ago
NK cells elevated
Hi Guys NK cells tests Results are in and my NK cells are elevated. Consultant has suggested Intralipid infusion and prednisolone for future treatments. Has anybody had a Intralipid infusion? I’ve read it needs to go into the vein. Is this administered by the clinic? If so How long does it take? (I
Hi Guys NK cells tests Results are in and my NK cells are elevated. Consultant has suggested Intralipid infusion and prednisolone for future treatments. Has anybody had a Intralipid infusion? I’ve read it needs to go into the vein. Is this administered by the clinic? If so How long does it take? (I
mushy19
in
Fertility Network UK
5 years ago
GRAVES AND THYROTOXICOSIS : RESPIRATORY SYSTEM, RETICULOENDOTHELIAL AND LYMPHATIC SYSTEMS
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ RESPIRATORY SYSTEM Except for dyspnea, which may or may not represent abnormal respiratory function, symptoms deriving from the lungs are not prominent. Nevertheless, measurements show
Graves’ Disease and the Manifestations of Thyrotoxicosis DeGroot LJ. https://www.ncbi.nlm.nih.gov/books/NBK285567/ RESPIRATORY SYSTEM Except for dyspnea, which may or may not represent abnormal respiratory function, symptoms deriving from the lungs are not prominent. Nevertheless, measurements show
ling
in
Thyroid UK
5 years ago
Double Vision
Hi, Does anyone else have visual impairments with fibromyalgia. Iam blind in my right eye and every time I have my prescription glasses done with a day or two I have double and treble vision. Any help is appreciated. Anton
Hi, Does anyone else have visual impairments with fibromyalgia. Iam blind in my right eye and every time I have my prescription glasses done with a day or two I have double and treble vision. Any help is appreciated. Anton
Hidden
in
Fibromyalgia Action UK
5 years ago
Anxiety/Panic attacks
I wanted to know Does anyone ever feel the need to Catch a deep breath almost everyday all day? I catch myself doing it a lot... I do have a lot of Health anxiety and I always feel like I’m sick or dying. So I’m always stressed about SOMETHING idk I’m taking Alprazolam 1mg but Half. And usually helps
I wanted to know Does anyone ever feel the need to Catch a deep breath almost everyday all day? I catch myself doing it a lot... I do have a lot of Health anxiety and I always feel like I’m sick or dying. So I’m always stressed about SOMETHING idk I’m taking Alprazolam 1mg but Half. And usually helps
Mindfulnessxo
in
Anxiety Support
5 years ago
Double Vision (Diplopia)
https://www.health.harvard.edu/a_to_z/double-vision-diplopia-a-to-z When double vision is due to Graves, and when it is not. ------------------------------------- Double Vision (Diplopia) What Is It? Published: July, 2019 Double vision, also called diplopia, causes a person to see two images of a single
https://www.health.harvard.edu/a_to_z/double-vision-diplopia-a-to-z When double vision is due to Graves, and when it is not. ------------------------------------- Double Vision (Diplopia) What Is It? Published: July, 2019 Double vision, also called diplopia, causes a person to see two images of a single
ling
in
Thyroid UK
5 years ago
Update for dry eyes 👀
As I wrote couple of months ago I was suffering sever dry eye. By the good advice of my dear friends here, I went to ophthalmologist and she told dryness is sever and the schirmer(? )test for measuring the volume of tears was extremely low. Also she said I have minor ulcerations on cornea. So she prescribed
As I wrote couple of months ago I was suffering sever dry eye. By the good advice of my dear friends here, I went to ophthalmologist and she told dryness is sever and the schirmer(? )test for measuring the volume of tears was extremely low. Also she said I have minor ulcerations on cornea. So she prescribed
Sona_akb
in
PBC Foundation
5 years ago
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