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Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
6 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
6 months ago
Endoscopy was a bust.............
I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that i might need a valve replacement as it is thickening quite a lot. I don't remember much about it as the sedation was working and afterwards
I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that i might need a valve replacement as it is thickening quite a lot. I don't remember much about it as the sedation was working and afterwards
sylvi
in
NRAS
8 months ago
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Emphysema
Hi, approx 18 months ago i had a bullectomy operation. At my last chest xray some months ago, the report in to the result of that xray stated " deaeration at right hilum and right lung base". Also says there is a large right apical bulla. I have tried to find out on google ect what this actually
Hi, approx 18 months ago i had a bullectomy operation. At my last chest xray some months ago, the report in to the result of that xray stated " deaeration at right hilum and right lung base". Also says there is a large right apical bulla. I have tried to find out on google ect what this actually
pekingeselover
in
Lung Conditions Community Forum
2 months ago
I’ll health retirement
Hi All I posted on here a couple of months back about I’ll health retirement with the NHS pension I got a letter back today saying I don’t qualify for tier one or two reason being there is still ongoing issues not resolved I was diagnosed with Fibro in 2022 and mainly bedbound most days I was
Hi All I posted on here a couple of months back about I’ll health retirement with the NHS pension I got a letter back today saying I don’t qualify for tier one or two reason being there is still ongoing issues not resolved I was diagnosed with Fibro in 2022 and mainly bedbound most days I was
10x10
in
Fibromyalgia Action UK
2 months ago
hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
11 months ago
Who also has ... osteoarthritis?
I had xrays and an orthopedic surgeon exam. He says I have osteoarthritis and need a FULL hip replacement. !!!!!!!!!!! !!!!!!!!!!! !!!!!!!!!!! ------------------------------------------------- 1. Anybody else, here --- have that disagnosis? 2. What are you doing for the pain and limping? 3. Did
I had xrays and an orthopedic surgeon exam. He says I have osteoarthritis and need a FULL hip replacement. !!!!!!!!!!! !!!!!!!!!!! !!!!!!!!!!! ------------------------------------------------- 1. Anybody else, here --- have that disagnosis? 2. What are you doing for the pain and limping? 3. Did
NewGuywithPD
in
Cure Parkinson's
9 months ago
Thyroid and the Menstrual Cycle?
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
JUUJOO
in
Thyroid UK
11 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
6 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
7 months ago
Contraception as a 'treatment
Hi! After ten years of being ignored and dismissed by doctors, i was finally permitted to have a laparoscopy and was officially diagnosed with endometriosis in March of this year. Apparently the endo was removed, but unfortunately has not made any difference to my pain. My consultant basically told
Hi! After ten years of being ignored and dismissed by doctors, i was finally permitted to have a laparoscopy and was officially diagnosed with endometriosis in March of this year. Apparently the endo was removed, but unfortunately has not made any difference to my pain. My consultant basically told
peppermintspring
in
Endometriosis UK
2 months ago
Treatment and Prevention Strategies for Cognitive Function in PCa
Treatment and Prevention strategies for cognitive function in men being treated for advanced prostate cancer. Mild cognitive impairment (“brain fog” chemo-brain”) is common and widely recognized in those being treated with ADT and androgen signaling drugs, as well as with taxane chemotherapy. I am highlighting
Treatment and Prevention strategies for cognitive function in men being treated for advanced prostate cancer. Mild cognitive impairment (“brain fog” chemo-brain”) is common and widely recognized in those being treated with ADT and androgen signaling drugs, as well as with taxane chemotherapy. I am highlighting
MateoBeach
in
Fight Prostate Cancer
8 months ago
What age to start HRT
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Bassem1979
in
Menopause and Perimenopause Support
11 months ago
Kidney transplant 23 years my gfr now is 13 percent but I want no dialysis.
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
jennifer24
in
Kidney Transplant
2 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
7 months ago
Weird 6 day Miracale
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
Shumbah
in
Restless Legs Syndrome
11 months ago
Tuckute
I am a 73 year old single man, living alone. Been seriously depressed for 18 months. Had 3 hospitalizations, tried several meds, all ineffective. Have started ECT, with 3 sessions (last on June 3, 2024) and resuming tomorrow. No effective results yet.
I am a 73 year old single man, living alone. Been seriously depressed for 18 months. Had 3 hospitalizations, tried several meds, all ineffective. Have started ECT, with 3 sessions (last on June 3, 2024) and resuming tomorrow. No effective results yet.
Tuckute
in
Anxiety and Depression Support
2 months ago
Just need some encouraging words
I am 67 years old and have had chronic, disabling depression and anxiety for at least forty years. I have been on about every antidepressant known as well as two courses of ECT, all of which have done nothing. Had some much psychotherapy that I am running out of counselors. Am currently on my fourth
I am 67 years old and have had chronic, disabling depression and anxiety for at least forty years. I have been on about every antidepressant known as well as two courses of ECT, all of which have done nothing. Had some much psychotherapy that I am running out of counselors. Am currently on my fourth
doctorpws1
in
Anxiety and Depression Support
2 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
7 months ago
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