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AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up š§!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up š§!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
My GCA/LVV experience
My GCA/LVV experience is a warning that the disease does not always present in the typical way we are alert for. I had headaches but no jaw claudication, no tongue pain, no eye symptoms, particularly light flashes in one eye. I had, had fairly typical PMR for 4 years, predictable, bilateral pains in
My GCA/LVV experience is a warning that the disease does not always present in the typical way we are alert for. I had headaches but no jaw claudication, no tongue pain, no eye symptoms, particularly light flashes in one eye. I had, had fairly typical PMR for 4 years, predictable, bilateral pains in
SheffieldJane
in
PMRGCAuk
2 years ago
Still learning!
A few weeks ago I was in such extreme pain I felt forced to contact 111 and 2 marvellous paramedics ultimately gave me a thorough examination. In my mind my symptoms pointed to a recurrence of dilated bile duct or gallstones, with which the paramedics agreed. A follow up with my GP a couple of days
A few weeks ago I was in such extreme pain I felt forced to contact 111 and 2 marvellous paramedics ultimately gave me a thorough examination. In my mind my symptoms pointed to a recurrence of dilated bile duct or gallstones, with which the paramedics agreed. A follow up with my GP a couple of days
AnniesRyder5
in
PMRGCAuk
2 years ago
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Midgut malrotation
I had HIDA scan done for my gallbladder. In addition to the findings for gallbladder, report noted āmidgut malrotationā. Doctor has asked for Ct scan to confirm. From what I have read online it sounds scary. Itās very rare in adult. Can anyone provide some insight on this?
I had HIDA scan done for my gallbladder. In addition to the findings for gallbladder, report noted āmidgut malrotationā. Doctor has asked for Ct scan to confirm. From what I have read online it sounds scary. Itās very rare in adult. Can anyone provide some insight on this?
Jason2233
in
PMRGCAuk
2 years ago
Happy World Lupus Day
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too. Hope your all as well as possible and
misty14
in
LUPUS UK
2 years ago
Gallstones
Does anyone know how long the wait is for gallstones surgery? I'm 19 and have been struggling with server pain for over 9 weeks. I have my bloods booked and a ultrasound to confirm as I was first diagnosed with a stomach ulcer. I have a 10 week old baby and I'm terrified to get the pain when he needs
Does anyone know how long the wait is for gallstones surgery? I'm 19 and have been struggling with server pain for over 9 weeks. I have my bloods booked and a ultrasound to confirm as I was first diagnosed with a stomach ulcer. I have a 10 week old baby and I'm terrified to get the pain when he needs
Macey1910
in
British Liver Trust
2 years ago
Gallbladder interaction with inflammation, and our PMR and RA.
Hi, just want to mention that I fought with my gallbladder this week and I believe the Hospital won the lottery with my money but that's another story in America, two trips to an Emergency Room and One stay of two days to get gallstone removed and only $13,000, no insurance so they make it cheaper than
Hi, just want to mention that I fought with my gallbladder this week and I believe the Hospital won the lottery with my money but that's another story in America, two trips to an Emergency Room and One stay of two days to get gallstone removed and only $13,000, no insurance so they make it cheaper than
Skymollie
in
PMRGCAuk
2 years ago
Carbs and thyroid
sorry, none of you seem to have understood my question. I am not talking about low carb diets at all. I am asking if a high carb diet will cure an underactive thyroid in a person who is not on medicatrion. If so, where is the research and evidence and why don't endos, GPs etc. suggest adding extra
sorry, none of you seem to have understood my question. I am not talking about low carb diets at all. I am asking if a high carb diet will cure an underactive thyroid in a person who is not on medicatrion. If so, where is the research and evidence and why don't endos, GPs etc. suggest adding extra
fiftyone
in
Thyroid UK
2 years ago
Gallbladder Op
Just wondering if anyone has had a gallbladder op recently. Iāve been on the list since November 2020. Gallstone now 80mm and common bile duct affected. Sick of not being able to eat properly and the fear of pain returning. Iām in Wales. Anyone been successful being seen?
Just wondering if anyone has had a gallbladder op recently. Iāve been on the list since November 2020. Gallstone now 80mm and common bile duct affected. Sick of not being able to eat properly and the fear of pain returning. Iām in Wales. Anyone been successful being seen?
Purplelamp
in
British Liver Trust
2 years ago
Which Levothyroxine Brand?
Hi all, Finally getting somewhere after going round in circles for months, I now have a prescription for Levo. Is there a brand better suited for people with Cow's Milk intolerance? Do you know whether the lactose in some brands would affect me, or likely to be ok given lactose is the sugar rather the
Hi all, Finally getting somewhere after going round in circles for months, I now have a prescription for Levo. Is there a brand better suited for people with Cow's Milk intolerance? Do you know whether the lactose in some brands would affect me, or likely to be ok given lactose is the sugar rather the
Chasing-rainbows
in
Thyroid UK
2 years ago
Low-carb diet - ketogenesis - PSADT
New study from Steve Freedland et al. "
Serum metabolomic analysis of men on a low-carbohydrate diet for biochemically recurrent prostate cancer reveals the potential role of ketogenesis to slow tumor growth: a secondary analysis of the CAPS2 diet trial
" [1] Bottom line: Low-carb diet may lenghthen
New study from Steve Freedland et al. "
Serum metabolomic analysis of men on a low-carbohydrate diet for biochemically recurrent prostate cancer reveals the potential role of ketogenesis to slow tumor growth: a secondary analysis of the CAPS2 diet trial
" [1] Bottom line: Low-carb diet may lenghthen
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Well after all does weight really matter
Have just come off my first (and last ) cruise and I was staggered at the amount of people who were not just overweight but obese . Having carefully watched my weight for years and low fat diet plus plenty of exercise it didnāt stop me needing a bypass at 76 . So what am I missing I keep asking myself
Have just come off my first (and last ) cruise and I was staggered at the amount of people who were not just overweight but obese . Having carefully watched my weight for years and low fat diet plus plenty of exercise it didnāt stop me needing a bypass at 76 . So what am I missing I keep asking myself
Pollypuss
in
British Heart Foundation
2 years ago
Alpha fetoprotein test for cirrhosis patients??
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
teale100
in
British Liver Trust
2 years ago
Bullectomy and Pleurectomy Surgery
Hi, Itās been a while since I was on this forum, itās hope you donāt mind me popping back on for some insight! I hope everyone is done as well as they can, and hope the spring weather is helping us all feel better! So, Iām due to have a bullectomy and Pleurectomy surgery next Wednesday (27th) and was
Hi, Itās been a while since I was on this forum, itās hope you donāt mind me popping back on for some insight! I hope everyone is done as well as they can, and hope the spring weather is helping us all feel better! So, Iām due to have a bullectomy and Pleurectomy surgery next Wednesday (27th) and was
Nelly_123
in
Lung Conditions Community Forum
2 years ago
Shock, upset and flare up of hashimotos thyroiditis
I wondered if anyone is kindly able to offer advice please. I recently lost my dad suddenly a month ago. I was able to carry on working for a 3 weeks, though I was upset, I was able to physically work. However last week because it was his funeral I went downhill on the Monday suffering with an enormous
I wondered if anyone is kindly able to offer advice please. I recently lost my dad suddenly a month ago. I was able to carry on working for a 3 weeks, though I was upset, I was able to physically work. However last week because it was his funeral I went downhill on the Monday suffering with an enormous
alibongo
in
Thyroid UK
2 years ago
Carb cravings and - Muffins!
Just a short one. One of the problems with transitioning to a largely low carb high fat lifestyle is the inevitable craving for bread, potatoes, rice and pasta. When I was a child it was only bread and potatoes - pasta was largely unknown, and rice was a pudding. Anyway, many, many low carb recipes
Just a short one. One of the problems with transitioning to a largely low carb high fat lifestyle is the inevitable craving for bread, potatoes, rice and pasta. When I was a child it was only bread and potatoes - pasta was largely unknown, and rice was a pudding. Anyway, many, many low carb recipes
MikePollard
in
Low-Carb High-Fat (LCHF)
2 years ago
Test and Trace?
Daft question perhaps, but is Test and Trace still in operation? I thought all that was finished with until today when I received a text message purporting to be from the NHS. It said I'd been in contact with an infected person, and that I should order a PCR test. I'm reluctant to click on the link,
Daft question perhaps, but is Test and Trace still in operation? I thought all that was finished with until today when I received a text message purporting to be from the NHS. It said I'd been in contact with an infected person, and that I should order a PCR test. I'm reluctant to click on the link,
LiveSalt
in
Lung Conditions Community Forum
2 years ago
High serum gastrin levels
Hi I have pernicious anaemia which I manage with monthly B12 injections. I have been diagnosed with intestinal metaplasia and autoimmune atrophic gastritis . My concern is that my gastrin levels are elevated and increasing , 1.7k 2 years ago and now 2.5k . I have gastroscopies every 2 years and dota
Hi I have pernicious anaemia which I manage with monthly B12 injections. I have been diagnosed with intestinal metaplasia and autoimmune atrophic gastritis . My concern is that my gastrin levels are elevated and increasing , 1.7k 2 years ago and now 2.5k . I have gastroscopies every 2 years and dota
Knittingcat123
in
Pernicious Anaemia Society
2 years ago
O2 or not O2 update
For the kind people who responded to my post about oxygen being offered then whisked away. I have had 2 blood test re my liver and am on a low fat diet. I have an injection today for my bones I have a dexa scan at the end of the month gp agrees my swollen legs are due to inactivity not my heart, has
For the kind people who responded to my post about oxygen being offered then whisked away. I have had 2 blood test re my liver and am on a low fat diet. I have an injection today for my bones I have a dexa scan at the end of the month gp agrees my swollen legs are due to inactivity not my heart, has
wheezyof
in
Lung Conditions Community Forum
2 years ago
Low Protein Diet
I'm starting a low protein diet and allowed 46 grams a day. I have a few questions: (1) does this allowance involve both plant and animal protein; (2] if it involves plant protein, does the plant protein have to be "complete " proteins or just any proteins; (3) if I only eat 30 grams on a day, can
I'm starting a low protein diet and allowed 46 grams a day. I have a few questions: (1) does this allowance involve both plant and animal protein; (2] if it involves plant protein, does the plant protein have to be "complete " proteins or just any proteins; (3) if I only eat 30 grams on a day, can
drmind
in
Kidney Disease
2 years ago
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