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Kohen Michael Blades 8 week old with Men B
Hi, my name is Jason. My grandson was rushed to the ER last Thursday 8/25/26 due to symptoms. Spinal tap confirmed Men B and was placed in PICU here in BR, La. Seizures soon followed with erratic temp. Dr' had him on 4 seizure meds and antibiotics. EEG''s up until now showed electrical seizures present
Hi, my name is Jason. My grandson was rushed to the ER last Thursday 8/25/26 due to symptoms. Spinal tap confirmed Men B and was placed in PICU here in BR, La. Seizures soon followed with erratic temp. Dr' had him on 4 seizure meds and antibiotics. EEG''s up until now showed electrical seizures present
jleblanc7486
in
Meningitis Now
8 years ago
Body movement disorder
Hi everyone,. I'm still waiting for my official diagnosis but wanted to know if anyone has experienced whole body jerks and sometimes uncontrollable shaking. This can happen at any time of the day and not necessarily tied to stress. The worst it gets is usually after I've been sleeping for awhile and
Hi everyone,. I'm still waiting for my official diagnosis but wanted to know if anyone has experienced whole body jerks and sometimes uncontrollable shaking. This can happen at any time of the day and not necessarily tied to stress. The worst it gets is usually after I've been sleeping for awhile and
Judi4
in
My MSAA Community
8 years ago
poorly after EEG Scan
I had my first ever EEG scan today. I thought it would be a forality I didn't realise I would rough afterwards. Anyone else feel poorly
I had my first ever EEG scan today. I thought it would be a forality I didn't realise I would rough afterwards. Anyone else feel poorly
sospan
in
Headway
8 years ago
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MY HUBBY WAS DIAGNOSED WITH VIRAL MENINGITIS 2 WEEKS AGO
Hi everyone, I am writing this post because I have many concerns.... This is not an easy time for me at all and I suspect that my dearest hubby is not going to find what lies ahead very easy to deal with either after I have been reading many posts regarding the same situation of VM. I AM SEEKING ADVISE
Hi everyone, I am writing this post because I have many concerns.... This is not an easy time for me at all and I suspect that my dearest hubby is not going to find what lies ahead very easy to deal with either after I have been reading many posts regarding the same situation of VM. I AM SEEKING ADVISE
VivienWebber
in
Meningitis Now
8 years ago
Holiday Insurance
Hi all! So the recovery is still on going, feeling stronger and positive day by day but have hit a new hurdle now. I have had my MRI and EEG, just waiting for results and to go back to the neurologist but we are due to travel abroad on the 1 st August, fairly sure I wont get an appointment before then
Hi all! So the recovery is still on going, feeling stronger and positive day by day but have hit a new hurdle now. I have had my MRI and EEG, just waiting for results and to go back to the neurologist but we are due to travel abroad on the 1 st August, fairly sure I wont get an appointment before then
Whoopsy
in
Headway
8 years ago
I AM NOT SERONEGATIVE!
So it has taken me 3 ½ years and nearly 2000 miles to finally be diagnosed and treated, despite going the best hospitals in NYC. I went to see Dr. Jill Schofield in Denver, CO this spring. As some of you know who have read my earlier posts, I became severely ill in the end of 2012. After 3 weeks of
So it has taken me 3 ½ years and nearly 2000 miles to finally be diagnosed and treated, despite going the best hospitals in NYC. I went to see Dr. Jill Schofield in Denver, CO this spring. As some of you know who have read my earlier posts, I became severely ill in the end of 2012. After 3 weeks of
AnnNY
in
Hughes Syndrome APS Forum
8 years ago
My epilepsy profile
My name is mark I am 41 I have had epilepsy now for 26 years since I was 15 I have been on alot of medication and had alot of eeg and ecg in the years my seizures have been not to bad in the past year or so I am here to help people who are suffering from epilepsy if I can help you and give advice I will
My name is mark I am 41 I have had epilepsy now for 26 years since I was 15 I have been on alot of medication and had alot of eeg and ecg in the years my seizures have been not to bad in the past year or so I am here to help people who are suffering from epilepsy if I can help you and give advice I will
ml775776
in
Epilepsy Research Institute
8 years ago
What does the future hold - first post
Hi All, This is my first post and from reading some of the topics and chats I feel like a bit of a fraud but am finding things difficult to come to terms with so thought I would join and see if anyone had a similar issue and also just to vent/discuss with people who may understand. So precisely one
Hi All, This is my first post and from reading some of the topics and chats I feel like a bit of a fraud but am finding things difficult to come to terms with so thought I would join and see if anyone had a similar issue and also just to vent/discuss with people who may understand. So precisely one
Whoopsy
in
Headway
8 years ago
Can Seizures be diagnosed without an MRI
Hi I was recently diagnosed with focal seizures this was all done via an EEG in my local A&E. I have not seen any neurologists since the diagnosis, in April this year. I was a little concerned about this so I visisted a private neurologist and he was surprised that I had been diagnosed without an MRI
Hi I was recently diagnosed with focal seizures this was all done via an EEG in my local A&E. I have not seen any neurologists since the diagnosis, in April this year. I was a little concerned about this so I visisted a private neurologist and he was surprised that I had been diagnosed without an MRI
hand1cap
in
Epilepsy Action
8 years ago
Results
I hope everyone is feeling OK today? I've been having lots of problems lately which my Gp has ordered tests for. I have been asked by some of you what my test results were. MRI - brain lesion EEG - abnormal theta brain waves when awake Sleep Deprived EEG - awaiting results Bloods - very high markers
I hope everyone is feeling OK today? I've been having lots of problems lately which my Gp has ordered tests for. I have been asked by some of you what my test results were. MRI - brain lesion EEG - abnormal theta brain waves when awake Sleep Deprived EEG - awaiting results Bloods - very high markers
Mandy_lw
in
Fibromyalgia Action UK
8 years ago
Any suggestions?
Hi all. My 13 year old son is having in excess of 250 black outs a day. This started 3 months ago and has increased to this level. He has had MRI, EEG, blood tests, plus 24 blood pressure and heart monitoring, all results are within normal limits. Now refereed to psychologist, but they do not think it's
Hi all. My 13 year old son is having in excess of 250 black outs a day. This started 3 months ago and has increased to this level. He has had MRI, EEG, blood tests, plus 24 blood pressure and heart monitoring, all results are within normal limits. Now refereed to psychologist, but they do not think it's
Lynneporterjack
in
STARS
8 years ago
5 months of living in hell
Hi guys so i have alot to talk about so for the past 5 months ive been slowly developing a severe chronic derelization and numbness in my hands and face. I've had 3 ct scans and mri and eeg of brain and all where normal, basically i feel like I'm losing my mind and self and am scared if this keeps going
Hi guys so i have alot to talk about so for the past 5 months ive been slowly developing a severe chronic derelization and numbness in my hands and face. I've had 3 ct scans and mri and eeg of brain and all where normal, basically i feel like I'm losing my mind and self and am scared if this keeps going
dawners
in
Anxiety Support
8 years ago
epilepsy playing up but nothing showed on EEG.
Hi there, i am 25 and been diagnosed with epilepsy when i was 18. They got it under control around 2011, i have had a few ups and downs been nothing serious. But recently i have been suffering from .zoning out (absent seizures) .Severe headaches .memory loss .strong jerks which feel like a seizure .
Hi there, i am 25 and been diagnosed with epilepsy when i was 18. They got it under control around 2011, i have had a few ups and downs been nothing serious. But recently i have been suffering from .zoning out (absent seizures) .Severe headaches .memory loss .strong jerks which feel like a seizure .
jessica-amy-wade
in
Epilepsy Research Institute
8 years ago
Sleep deprived EEG
Hello everone, I hope you are all happy in mind and spirit if not physically. I have recently had an MRI test and an EEG test in February because I have been experiencing weird symptoms generally unrelated to fibromyalgia and hypothyroidism. I haven't received any results as yet for them (apparently
Hello everone, I hope you are all happy in mind and spirit if not physically. I have recently had an MRI test and an EEG test in February because I have been experiencing weird symptoms generally unrelated to fibromyalgia and hypothyroidism. I haven't received any results as yet for them (apparently
Mandy_lw
in
Fibromyalgia Action UK
8 years ago
Could it be Oligodendrogliomas
I have these weird headaches that been going on for I would say 2-3 months now, due to my seizures. I had CT, EEG scans and they came out normal, they don't want to give me a MRI for some reason witch I find stupid. but anyway lately I been super tired, when I go to school I can't stay awake or even
I have these weird headaches that been going on for I would say 2-3 months now, due to my seizures. I had CT, EEG scans and they came out normal, they don't want to give me a MRI for some reason witch I find stupid. but anyway lately I been super tired, when I go to school I can't stay awake or even
MD-School
in
Pain Concern
8 years ago
New diagnosis
Hello I'm 17 years old and have just been diagnosed with epilepsy. It was detected in my sleep deprived EEG which showed a generalised but anterior dominant photo paroxysmal response with spike and slow wave complexes which did not outlast the photic stimulus. I was told by my GP to stay away from
Hello I'm 17 years old and have just been diagnosed with epilepsy. It was detected in my sleep deprived EEG which showed a generalised but anterior dominant photo paroxysmal response with spike and slow wave complexes which did not outlast the photic stimulus. I was told by my GP to stay away from
Katiex
in
Epilepsy Action
8 years ago
Fashion student struggling with epilepsy.
Hi there I am 25...fashion student and became epileptic when i was 18. Im on keppra and lamotrogine. I have recently been suffering with frequent absent seizures (zoning out) and jerks. It has become alot worse over the wkend with sharpe head pains. I am sleeping an awful lot too. i didnt go into uni
Hi there I am 25...fashion student and became epileptic when i was 18. Im on keppra and lamotrogine. I have recently been suffering with frequent absent seizures (zoning out) and jerks. It has become alot worse over the wkend with sharpe head pains. I am sleeping an awful lot too. i didnt go into uni
laceyloves
in
Epilepsy Action
8 years ago
Left Temporal Lobe Surgery
My son had surgery on 11th Feb, he had a 15 second seizure 17th & 18th Feb, then today 21st , a seizure tonic clonic again jerking lasted 15 seconds followed by eyes ticking to the right for further minute. Our concern is this post op seizure or does it mean surgery hasnt worked? His epileptic seizures
My son had surgery on 11th Feb, he had a 15 second seizure 17th & 18th Feb, then today 21st , a seizure tonic clonic again jerking lasted 15 seconds followed by eyes ticking to the right for further minute. Our concern is this post op seizure or does it mean surgery hasnt worked? His epileptic seizures
Cath71
in
Epilepsy Research Institute
8 years ago
Epilepsy
Hi everyone I need help, my daughter is 17yrs diagnosed with epilepsy from September 2015 because she had a seizure at school, she is in matric and she already had 7 seizures in counting. she has seen 2 different neurologist from 2 hospitals. MRI/CT SCAN, EEG were done and nothing was found. she is
Hi everyone I need help, my daughter is 17yrs diagnosed with epilepsy from September 2015 because she had a seizure at school, she is in matric and she already had 7 seizures in counting. she has seen 2 different neurologist from 2 hospitals. MRI/CT SCAN, EEG were done and nothing was found. she is
binkiehb
in
Epilepsy South Africa
8 years ago
Beck with wiedemann syndrome
I got a baby boy on 14/11/15. He born with ompholocele minor(only small intestine was outside in a SAC). Baby went through an surgery for this on 27th Nov'15.During his surgery he was having Positive CRP . Immediately after the surgery he went on oxygen and after that on ventilator for almost 4-5 days
I got a baby boy on 14/11/15. He born with ompholocele minor(only small intestine was outside in a SAC). Baby went through an surgery for this on 27th Nov'15.During his surgery he was having Positive CRP . Immediately after the surgery he went on oxygen and after that on ventilator for almost 4-5 days
Ar01yan
in
BWS Support
8 years ago
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