Hi, my name is Jason. My grandson was rushed to the ER last Thursday 8/25/26 due to symptoms. Spinal tap confirmed Men B and was placed in PICU here in BR, La. Seizures soon followed with erratic temp. Dr' had him on 4 seizure meds and antibiotics. EEG''s up until now showed electrical seizures present. Today's EEG showed no signs of seizures but Neurologist was concerned of lack of brain activity. We are hoping this is due to meds and not any damage. CT & MRI did not show any sign of abscess on the brain. He was intubated due to number of meds and currently still is but he is breathing entirely own his own. Seizures have subsided and he is now gone 28+ hours without seizing. He is becoming a little more active when Nurses are interacting with him. Dr's have started reducing seizure meds to see how he reacts. Plans to remove breathing tube tomorrow. The utter feeling of helplessness is beyond any words as you are certainly aware and the feeling of not having the answers when my daughter asks if he will be ok is unbearable. We cannot ask for any better medical staff than we have. They have been more than just a Med staff, the nurses come by on their days off just to sing to him.
Looking for support and prayers!