We are a community dedicated to supporting people affected by epilepsy and seizures. Read more
Hiddena month ago
Hey, my daughter was diagnosed with absence seizures when she was 4 years old, they put her on Epilm and Ethuxomide which controlled them. T...
Message to all
gotmarried20122 months ago
Hi my name is Julie I have not been on for a long time but first I wanted to say a big thankyou to every one who gave me great advice I can ...
Hidden3 months ago
Hi everyone this is my first post hope to gain some knowledge and understanding of this frightening condition. My lovely daughter Alex had a...
samanthaash19933 months ago
I was in the bath, when i began to get a gradual feeling of fear, that I shouldn't be there alone, that I shouldn't be here, something will,...
Informational video about seizures
MedicEne3 months ago
Hello all Im a medical student in london and i wanted to share with you a video i made about seizures, I hope you enjoy it and have a great ...
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Levetiracetam/Keppra dizziness and memory
Gemgemsxx3 months ago
I'm really trying hard to stick with generic levetiracetam but I'm struggling with side affects, which I don't get with Lamictal.
I'm so forg...
Anxiety Attacks in Epilepsy
Prabz974 months ago
I have been suffering from Epilepsy for over 11 years and hospital have not managed to find a way to control my seizures but now days I stil...
For University research
zoecooper5 months ago
Hello, my name is Zoe Cooper and I study BA Product Design.
For my latest brief we get the opportunity to design a product or service related...
Jen_Jens7 months ago
My cousin has been placed in a medically induced coma for just over a week now, as they fear she has experience adult cot death like symptom...
Family member in coma help
Do adults suffer febrile convulsions?
TracyMoore737 months ago
My son suffered febrile convulsions from age 1 to 7, having around 8 in this time, he has never been tested for epilepsy, although there is ...
New to site
Hidden7 months ago
I'm new to this so not sure how things work. I was diagnosed with epilepsy when I was five. My epilepsy was controlled until I had m...
What am I?
greggieboy8 months ago
I would love to know if my condition has a specific name. I get short periods of time where I can see what's going on, can move things and ...
MedicalAngel8 months ago
I've got a copy of my eeg and I've tried to translate it (in lay terms) so I can understand it. But I need to know if my lay translation ...
Epilepsy diary graph
I'm not a techno know how so can anyone tell me how I can create a seizure diary graph please?
Hi Ive newly been diagnosed with epilepsy. The diagnosis totally threw me. The EEG indicates I have partial epilepsy.
I had two brain opera...
Chimbelina8 months ago
Hi did any of you watch the documentary? bbc.co.uk/iplayer/episo...
What did you think about it? How is your experience of epilpsy different?
Seizures not getting better
Prabz979 months ago
I haven't had a seizure for 5 months then I randomly started having seizures again but now when I have seizures I start to forget stuff and ...
Epilepsy getting worse
I have not had a seizure for at least 5 months then I thought I was getting better then I discharged myself from the hospital as they wasn't...
Hidden10 months ago
Having a stressed day had bad seizure last night step daughter knew this so mucked me around this morning making everyone run late// with a ...
More frequent seizures
Jemma1612 years ago
The last month I've been pretty run down. Have had a cold/flu type thing which completely knocked me for six and m hung around for ages. So ...
miacarlawilliams19942 years ago
I just need to rant.. I've got epilepsy and my meds just don't want tooo work!! I've got tormor in my eye where I landed in a table leg I al...
Hidden2 years ago
So, I was talking to my consultant this week and he suggested that I get more involved in sharing and supporting others with epilepsy and in...
Hi my name is flossy1974
Iam going into solford royal hospital soon for a video telemetry I haven't had one before as I have to stay in the same room for up to five ...
What happens next?
My 22yr old daughter has just been diagnosed, she had her '1st' seizure 7 weeks ago. We have just seen the neuro, who has started her on med...
I suffered 2 fits 3 yrs back& got 3 years medicine.After leaving medicine I again 2 fits during night .Tell me to get rid of this
ashukaka9072 years ago
I suffered 2 fits after 20 days of leaving medicine. Doctor told me that now I will be continued on medication for a longer period during my...
15 year old son with newly diagnosed epilepsy, complex partial
ginwin2 years ago
Hi there has this happened to anyone else? I'm really worried at the moment, he has been in hospital for 6 weeks and now they want to move h...
Hello. just moved to London. 34 yr old, epilepsy since childhood. Does NHS cover epilepsy and if so to what extant? thanx
Deutcha793 years ago
Can anyone explain to me Refractory Epilepsy and what treatments have people experienced?
msjenfu3 years ago
Long term Epilepsy
Hidden3 years ago
I have had epilepsy for 40 years and am currently on Carbamazapine and Phenytoin.
Anyone wishing to chat, please feel free to do so: facebook.com/lesmal...
Thinking back to when you were diagnosed, how long was it between first seeing your GP about your epilepsy symptoms and seeing a specialist?
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