We are a community dedicated to supporting people affected by epilepsy and seizures. Read more
Walk With The Baron For Brain Injury
BaronC4 days ago
I have an idea to put to you that I've been mulling over for a while.
I'm thinking of putting together an 'event' one day next year.
Be the first to reply
Non - epileptic Seizures
EGraceA7 days ago
Hi. I am new on this community. I have NES - non epileptic seizures. The kind that medicine does not control. I am so tired of people cal...
Lots of myoclonic jerks
BELAwesome22 days ago
After some snacks (cheese related) I got a lot of muscle jerks when getting ready for bed. It hadn't happened as much but seems around menst...
littlemex2 months ago
i hope someone could help , the last 3 months i have had headaches 24/7 and blurred vision the doctor has prescribed naproxen and cocodam...
First Epilepsy specialist appointment Soon
BELAwesome3 months ago
Hi, I joined here recently. I have not been diagnosed with Epilepsy but I've been referred by my neurologist because of myoclonic jerks, etc...
Help, I'm new on this website
apn013 months ago
I had brain surgery due having seizures ( scaring on the temp lobe ) , 11 months I was seizure free, my count down was on to get my driving ...
Travis14 months ago
They have tried me on just about everything in the medical book to control my partial-seizures. Giving God all the credit when the medical w...
A final answer to my prayers!
Yes, I had had Epilepsy all my life. The doctors tried everything. Partial-Seizure was always was the diagnosis. I can count the Grands on m...
Due to take Lamotrigine
TMarisk4 months ago
Hi am new to the site. Basically I haven't been able to have a face-to-face discussion with any professional whose knowledgeable about this ...
Low sugar levels
mumwivbigbum4 months ago
Does anyone else find their seizures get worse due to reducing sugar on a diet? desperately trying to lose weight and my hubby has now insis...
Numb fingers and toes.
Precious_18 months ago
Does anyone else suffer from fingers and toes that turn white and go numb.It's getting worse over the years...could it be my epilepsy meds.
You have the ability to recover
WheelBarrow197a year ago
Hi Everyone, this is the first time I have spoken about my epilepsy and I hope this will give you all the hope to recover from your epilepsy...
Trying to understand
Samantha_a year ago
Hi there. I'm new to all this. I've been diagnosed with epilepsy a few months ago. I've had 3 grand mals in 3 months. I'm on 500 create e...
Curious if related
jobey30a year ago
My husband has nocturnal epilepsy occured at the age 18 and takes the epilepsy meds, he hasn't had a seizure for over 10 years. I have ...
My little girl and epilepsy
RyRywifeya year ago
Hey guys! My little girl (7) was diagnosed with occipital benign epilepsy 2 years ago. And has just recently had her medication changed to a...
moddoggaa year ago
my name is Maureen i'am a 381/2 year old female and i have Epilepsy and i have been battling with it since October 2006 and i have Grand Mal...
Message to all
gotmarried20122 years ago
Hi my name is Julie I have not been on for a long time but first I wanted to say a big thankyou to every one who gave me great advice I can ...
samanthaash19932 years ago
I was in the bath, when i began to get a gradual feeling of fear, that I shouldn't be there alone, that I shouldn't be here, something will,...
Informational video about seizures
MedicEne2 years ago
Hello all Im a medical student in london and i wanted to share with you a video i made about seizures, I hope you enjoy it and have a great ...
Levetiracetam/Keppra dizziness and memory
Gemgemsxx2 years ago
I'm really trying hard to stick with generic levetiracetam but I'm struggling with side affects, which I don't get with Lamictal.
I'm so forg...
Anxiety Attacks in Epilepsy
Prabz972 years ago
I have been suffering from Epilepsy for over 11 years and hospital have not managed to find a way to control my seizures but now days I stil...
For University research
zoecooper2 years ago
Hello, my name is Zoe Cooper and I study BA Product Design.
For my latest brief we get the opportunity to design a product or service related...
Jen_Jens2 years ago
My cousin has been placed in a medically induced coma for just over a week now, as they fear she has experience adult cot death like symptom...
Family member in coma help
Do adults suffer febrile convulsions?
TracyMoore732 years ago
My son suffered febrile convulsions from age 1 to 7, having around 8 in this time, he has never been tested for epilepsy, although there is ...
What am I?
greggieboy2 years ago
I would love to know if my condition has a specific name. I get short periods of time where I can see what's going on, can move things and ...
MedicalAngel2 years ago
I've got a copy of my eeg and I've tried to translate it (in lay terms) so I can understand it. But I need to know if my lay translation ...
Epilepsy diary graph
I'm not a techno know how so can anyone tell me how I can create a seizure diary graph please?
Hi Ive newly been diagnosed with epilepsy. The diagnosis totally threw me. The EEG indicates I have partial epilepsy.
I had two brain opera...
Chimbelina2 years ago
Hi did any of you watch the documentary? bbc.co.uk/iplayer/episo...
What did you think about it? How is your experience of epilpsy different?
Thinking back to when you were diagnosed, how long was it between first seeing your GP about your epilepsy symptoms and seeing a specialist?
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