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Epilepsy Society | HealthUnlocked
Epilepsy Society
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Mri result
Mri result is mild involutional changes with volume loss, Neurologist stated possibly due to long term Phenytoin use. Thoughts and whats should I be asking...
Mri result is mild involutional changes with volume loss, Neurologist stated po...
Memyselfandi1
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29 days ago
2 Replies
Vagus Nerve Stimulation (VNS)
My partner (45yo) got epilepsy after suffering from encephalitis two years ago. He is on Lacosamide and Topiramate. He still has 3-4 long partial focal...
My partner (45yo) got epilepsy after suffering from encephalitis two years ago....
Tuesando
•
11 months ago
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Getting used to epilepsy
My 45 year old partner was struck by encephalitis almost 2 years ago. He now has epilepsy (frontal partial). He now has on avarage two pronged seizures per...
My 45 year old partner was struck by encephalitis almost 2 years ago. He now has...
Tuesando
•
1 year ago
1 Reply
Does anyone have a neurologist in Amsterdam that you would recommend? or know where I can look to find out?
Does anyone have a neurologist in Amsterdam that you would recommend? or know where I can look to find out?
Does anyone have a neurologist in Amsterdam that you would recommend? or know wh...
nyev
•
1 year ago
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No sleep!
I'm freaking out that the last two nights I haven't been able to sleep. That's the number one reason I've had seizures. I have a client who I care for only a...
I'm freaking out that the last two nights I haven't been able to sleep. That's t...
lovedogs51511
•
2 years ago
7 Replies
Tuberous sclerosis
Hiya, tuberous sclerosis causes my epilepsy just wondering if anyone else is in a similar situation, or knows anyone with TSC ? 😊
Hiya, tuberous sclerosis causes my epilepsy just wondering if anyone else is in ...
Alwayslovecats
•
2 years ago
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Vaccine
Who has recieved the covid vaccine that has Epilepsy? Did you do ok? Thank you!!
Who has recieved the covid vaccine that has Epilepsy? Did you do ok? Thank you!!...
Jstbcuz
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2 years ago
4 Replies
Ectopic heart beats
Hi, i have mild, controlled epilepsy (last seizure was 10 years ago) but suffer with severe health anxiety and recently diagnosed with ectopic heart beats....
Hi, i have mild, controlled epilepsy (last seizure was 10 years ago) but suffer ...
Geo26
•
2 years ago
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Driving and epilepsy
I've had epilepsy since age 15. I'm 48 now. I've driven some parts in life and have been stuck on bus the other half. Finally got an older car and license back...
I've had epilepsy since age 15. I'm 48 now. I've driven some parts in life and h...
Lovedogs0877
•
2 years ago
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seizures
does any one here get seizures from being around a certain person
does any one here get seizures from being around a certain person
Polly711
•
2 years ago
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Keppra side effect of repetitive rhythm in head
Keppra at 500 mg twice daily has reduced my focal seizures to almost none, however when I bumped up to that dose I began hearing a repetitive rhythm repeating...
Keppra at 500 mg twice daily has reduced my focal seizures to almost none, howe...
Jeanne56
•
3 years ago
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Epilepsy and sickness
Epilepsy and sickness I would just like to say hello to everyone. I personally don’t suffer with epilepsy but my partner does and I’m keen to soak up as much...
Epilepsy and sickness I would just like to say hello to everyone. I personally ...
Kgarlick
•
3 years ago
1 Reply
Memory Loss without Seizures
Hi My Husband has had epilepsy for over 15 years following on from an Aneurysm. He had been seizure free for approximately 7 years, he now as had a couple...
Hi My Husband has had epilepsy for over 15 years following on from an Aneurysm...
Topcat67
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3 years ago
1 Reply
Telling/explaining your epilepsy to your manager
When you’re on your first day of the new job would you tell them that you have epilepsy or explain about your epilepsy that this happens and to reassure the...
When you’re on your first day of the new job would you tell them that you have e...
fatimaaesc
•
3 years ago
1 Reply
Sclerosis mesial temporal
Hi Has anyone had surgery for temporal lobe epilepsy?
Hi Has anyone had surgery for temporal lobe epilepsy?
Tenerife1234
•
3 years ago
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Double vision
I have recently been suffering from double vision shortly after taking my medication, since having surgery on my stomach. Has anyone else suffered from this...
I have recently been suffering from double vision shortly after taking my medica...
darren71
•
3 years ago
2 Replies
It’s new and I need advice
So couple days ago I had a seizure. That seizure I didn’t know you can bite your tongue. My tongue has been in pain for a couple days and is there any way I...
So couple days ago I had a seizure. That seizure I didn’t know you can bite your...
fatimaaesc
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3 years ago
2 Replies
Pain that’s not going away
Good evening to all, I have I shunt that was put in me after I was diagnosed with hydrocephalus in 1975. Well 2 yrs ago after having a credit scan don’t I was...
Good evening to all, I have I shunt that was put in me after I was diagnosed wit...
JDQuinn75
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3 years ago
1 Reply
New to this😅
I’ve been diagnosed with absent seizures and I just want to say for about 5 years I’m so thankful I have found a community that I can relate with so much...
I’ve been diagnosed with absent seizures and I just want to say for about 5 year...
fatimaaesc
•
4 years ago
2 Replies
how times change not
Necessity or nastiness? The hidden law denying cannabis for medicinal use December 13, 2010 The last government had a peculiarly Stalinist approach to public...
Necessity or nastiness? The hidden law denying cannabis for medicinal use Decemb...
Rourke12345
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4 years ago
2 Replies
NJ/ NY Epilepsy Patient-- Paid Opportunity
Hi, My name is Olivia and I am reaching out for a potential paid consulting opportunity. I am working with a consulting firm who is hoping to speak or meeting...
Hi, My name is Olivia and I am reaching out for a potential paid consulting opp...
associate1
•
4 years ago
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Epilepsy and driving
I'm new here. I am 22 and live in the UK. I was diagnosed with epilepsy back in 2015. I used to before I was diagnosed have absence seizures most days, I have...
I'm new here. I am 22 and live in the UK. I was diagnosed with epilepsy back in ...
ParusMajor123
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4 years ago
4 Replies
New seizure
I usually have complex partial seizures but yesterday it went from complex to tonic clonic. Is this something to be concerned about? The neurologists at the VA...
I usually have complex partial seizures but yesterday it went from complex to to...
Chapp_95
•
4 years ago
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side effects advice
i have recently been diagnosed with epilepsy, (tonic clonic seizures) and have been on lamotrigine (sp?) since december ‘18, i thought that side effects would...
i have recently been diagnosed with epilepsy, (tonic clonic seizures) and have b...
Kpoll97
•
4 years ago
6 Replies
PNES
Does anyone here have pseudo seizures or psychogenic non epileptic seizures?
Does anyone here have pseudo seizures or psychogenic non epileptic seizures?
raelynn15
•
4 years ago
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Problems getting meds
Has anyone had problems getting their Tegratol Retard.?
Has anyone had problems getting their Tegratol Retard.?
dewi2
•
4 years ago
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34 yrs,7 meds and a surgery later: Only Marijuana controls my seizures. Less side effects, less money, and greatly improved quality of life.
It took some time to determine, but the fact of the matter is that Marijuana is the only medication that controls my seizures. I regret not trying it until...
It took some time to determine, but the fact of the matter is that Marijuana is ...
superflyerfan
•
4 years ago
1 Reply
Depression
Has anyone ever experienced severe depression a couple weeks after hospitalization for grand mal seizures?
Has anyone ever experienced severe depression a couple weeks after hospitalizati...
raelynn15
•
4 years ago
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Seizure recovery
How long does it normally take to recover from a grand mal seizure? I had ten grand mals about twelve days ago and was in the hospital for two days. I feel...
How long does it normally take to recover from a grand mal seizure? I had ten gr...
raelynn15
•
4 years ago
1 Reply
Epileptic and pregnant??
Is there anyone who is epileptic who is going through pregnancy like myself???
Is there anyone who is epileptic who is going through pregnancy like myself???
Babylegion
•
4 years ago
1 Reply
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http://www.epilepsysociety.org.uk/