We are a community dedicated to supporting people affected by epilepsy and seizures. Read more
You have the ability to recover
WheelBarrow1972 months ago
Hi Everyone, this is the first time I have spoken about my epilepsy and I hope this will give you all the hope to recover from your epilepsy...
Trying to understand
Samantha_2 months ago
Hi there. I'm new to all this. I've been diagnosed with epilepsy a few months ago. I've had 3 grand mals in 3 months. I'm on 500 create e...
Curious if related
jobey302 months ago
My husband has nocturnal epilepsy occured at the age 18 and takes the epilepsy meds, he hasn't had a seizure for over 10 years. I have ...
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My little girl and epilepsy
RyRywifey3 months ago
Hey guys! My little girl (7) was diagnosed with occipital benign epilepsy 2 years ago. And has just recently had her medication changed to a...
Hidden4 months ago
I just wondered how much warning you have before a seizure, mine are 30seconds and not sure if that is about the same as others.
10 Replies1 Like
The Brain Damaged Baron
BaronC5 months ago
Just trying to spread the word...
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moddogga6 months ago
my name is Maureen i'am a 381/2 year old female and i have Epilepsy and i have been battling with it since October 2006 and i have Grand Mal...
Hidden9 months ago
Hey, my daughter was diagnosed with absence seizures when she was 4 years old, they put her on Epilm and Ethuxomide which controlled them. T...
Message to all
gotmarried20129 months ago
Hi my name is Julie I have not been on for a long time but first I wanted to say a big thankyou to every one who gave me great advice I can ...
Hidden10 months ago
Hi everyone this is my first post hope to gain some knowledge and understanding of this frightening condition. My lovely daughter Alex had a...
samanthaash199310 months ago
I was in the bath, when i began to get a gradual feeling of fear, that I shouldn't be there alone, that I shouldn't be here, something will,...
Informational video about seizures
MedicEne10 months ago
Hello all Im a medical student in london and i wanted to share with you a video i made about seizures, I hope you enjoy it and have a great ...
Levetiracetam/Keppra dizziness and memory
Gemgemsxx10 months ago
I'm really trying hard to stick with generic levetiracetam but I'm struggling with side affects, which I don't get with Lamictal.
I'm so forg...
Anxiety Attacks in Epilepsy
Prabz97a year ago
I have been suffering from Epilepsy for over 11 years and hospital have not managed to find a way to control my seizures but now days I stil...
For University research
zoecoopera year ago
Hello, my name is Zoe Cooper and I study BA Product Design.
For my latest brief we get the opportunity to design a product or service related...
Jen_Jensa year ago
My cousin has been placed in a medically induced coma for just over a week now, as they fear she has experience adult cot death like symptom...
Family member in coma help
Do adults suffer febrile convulsions?
TracyMoore73a year ago
My son suffered febrile convulsions from age 1 to 7, having around 8 in this time, he has never been tested for epilepsy, although there is ...
New to site
Hiddena year ago
I'm new to this so not sure how things work. I was diagnosed with epilepsy when I was five. My epilepsy was controlled until I had m...
What am I?
greggieboya year ago
I would love to know if my condition has a specific name. I get short periods of time where I can see what's going on, can move things and ...
2 Replies1 Like
MedicalAngela year ago
I've got a copy of my eeg and I've tried to translate it (in lay terms) so I can understand it. But I need to know if my lay translation ...
Epilepsy diary graph
I'm not a techno know how so can anyone tell me how I can create a seizure diary graph please?
Hi Ive newly been diagnosed with epilepsy. The diagnosis totally threw me. The EEG indicates I have partial epilepsy.
I had two brain opera...
Chimbelinaa year ago
Hi did any of you watch the documentary? bbc.co.uk/iplayer/episo...
What did you think about it? How is your experience of epilpsy different?
Seizures not getting better
I haven't had a seizure for 5 months then I randomly started having seizures again but now when I have seizures I start to forget stuff and ...
Epilepsy getting worse
I have not had a seizure for at least 5 months then I thought I was getting better then I discharged myself from the hospital as they wasn't...
Having a stressed day had bad seizure last night step daughter knew this so mucked me around this morning making everyone run late// with a ...
More frequent seizures
Jemma1612 years ago
The last month I've been pretty run down. Have had a cold/flu type thing which completely knocked me for six and m hung around for ages. So ...
miacarlawilliams19942 years ago
I just need to rant.. I've got epilepsy and my meds just don't want tooo work!! I've got tormor in my eye where I landed in a table leg I al...
Hidden2 years ago
So, I was talking to my consultant this week and he suggested that I get more involved in sharing and supporting others with epilepsy and in...
4 Replies1 Like
Thinking back to when you were diagnosed, how long was it between first seeing your GP about your epilepsy symptoms and seeing a specialist?
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