Hi everyone,. I'm still waiting for my official diagnosis but wanted to know if anyone has experienced whole body jerks and sometimes uncontrollable shaking. This can happen at any time of the day and not necessarily tied to stress. The worst it gets is usually after I've been sleeping for awhile and it wakes me up. It can last anywhere from a 1/2 hour or more, the longest was 4 hours straight. When I went to current neurologist he thought maybe seizures, and after performing an EEG said it wasn't seizures but the test showed there was something going on. He then kinda dropped the ball. Again, I have my appointment set up with MS specialist at the end of the month. I'm just feeling down because this keeps happening with my body.