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Dry eye syndrome
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RLS regimen for occasional big flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
707twitcher
in
Restless Legs Syndrome
6 months ago
Fluid at back of eye
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hidden
in
Glaucoma UK
8 months ago
what to do? Take .25mg Pramipexole and 7.5mg zopiclone for 2 or 3 nights? Or not?
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Rayme
in
Restless Legs Syndrome
6 months ago
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Hydrocodone?
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
MountainWanderer
in
Restless Legs Syndrome
6 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
7 months ago
when to call your neurologist
I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I contacted my neurologist a few months ago and they (the Pa) ordered a 3 day round of steroids which didn’t help at all. I called them back and
I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I contacted my neurologist a few months ago and they (the Pa) ordered a 3 day round of steroids which didn’t help at all. I called them back and
Littledeer
in
My MSAA Community
8 months ago
Blood test results.. 🤦♀️
Hi everyone 😠 Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing
Hi everyone 😠 Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing
birkie
in
Thyroid UK
8 months ago
Ptosis
Hello, This post is going to sound really trivial and vain, however I promise I am not at all in the slightest. I am 33 and have recently had double presserflo micro shunts fitted and we are 9 months on and my eyes still feel tender when I touch my eye lids. My consultants response was not to
Hello, This post is going to sound really trivial and vain, however I promise I am not at all in the slightest. I am 33 and have recently had double presserflo micro shunts fitted and we are 9 months on and my eyes still feel tender when I touch my eye lids. My consultants response was not to
Bec8891
in
Glaucoma UK
8 months ago
How to increase scarring after trabeculectomy
My husband (30m) had a trabeculectomy in his left eye in August 2023. It is now November 2023 and the IOP is only up to 7. His vision in that eye has never recovered (it does temporarily if he does something a little strenuous like walking up a steep hill). The consultant has said that to prevent
My husband (30m) had a trabeculectomy in his left eye in August 2023. It is now November 2023 and the IOP is only up to 7. His vision in that eye has never recovered (it does temporarily if he does something a little strenuous like walking up a steep hill). The consultant has said that to prevent
CurioK
in
Glaucoma UK
8 months ago
buprenorphine study
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
707twitcher
in
Restless Legs Syndrome
7 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
8 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
7 months ago
Co-codamol any good for RLS or PLMD?
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
pianoplayerPLMD
in
Restless Legs Syndrome
7 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
7 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
8 months ago
narrow angles
Hi, first post on this forum, new to all of this. On a recent trip to the opticians, my wife (56) was referred to our local eye clinic with narrow drainage angles. Her ocular pressure is ok and there are no other abnormalities. The referral was quick and she had an appointment at the clinic within
Hi, first post on this forum, new to all of this. On a recent trip to the opticians, my wife (56) was referred to our local eye clinic with narrow drainage angles. Her ocular pressure is ok and there are no other abnormalities. The referral was quick and she had an appointment at the clinic within
AAJJTt
in
Glaucoma UK
8 months ago
Permanently damaged vision due to dry eyes?
I've had Limited Scleroderma for about 12 years. A year ago, I noticed that the vision in my left eye had become blurred. 3 opticians and 4 opthalmologists later (because I never see the same person twice, and every one starts at the beginning - what a ludicrous system), we have finally reached the
I've had Limited Scleroderma for about 12 years. A year ago, I noticed that the vision in my left eye had become blurred. 3 opticians and 4 opthalmologists later (because I never see the same person twice, and every one starts at the beginning - what a ludicrous system), we have finally reached the
Lausanjuk
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
Conundrum Gastrin
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Helliborous
in
Pernicious Anaemia Society
4 months ago
GCA diagnostic dilemma
Thank you everyone who has helped so far. Last night I had a message from Rheumy saying I should go to the hospital for an emergency biopsy, with the headache and unusual severe temporal pain being the driver. He said that U/S was so ‘operator sensitive’ as to be unreliable in this ‘locality’. The
Thank you everyone who has helped so far. Last night I had a message from Rheumy saying I should go to the hospital for an emergency biopsy, with the headache and unusual severe temporal pain being the driver. He said that U/S was so ‘operator sensitive’ as to be unreliable in this ‘locality’. The
Predderman2020
in
PMRGCAuk
8 months ago
Bile acid malabsorption
I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right
I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right
Netbet22
in
IBS Network
8 months ago
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