Blood test results.. 🤦‍♀️

[birkie]

Hi everyone 😠

Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing is something that should be straight forward, but no.

Firstly I'll pop my new blood test results up.

TSH..... 11.9....RANGE (0.30...4.50)🤦‍♀️

T3..... not done🤦‍♀️ eventho I'm on T3 medication (Roma which is giving me terrible gut/bowle issues)

I've tried many times to get appointments with a gp at my surgery with no luck.

I have spoken to the endocrinologists who I'm under for my parathyroid condition, she took thyroid bloods in June along with my parathyroid bloods and noted I'm obviously having real problems with this drug.

1,not absorbing it.

2, not getting to where it needs to in the cells.

3, hypersensitive to it.

After receiving my new blood work with an TSH of 11.9 it says at the bottom of the letter

TSH target on therapy for primary hypothyroidism = 0.30..4.50mU/L

Consider dose adjustment if patient is compliant and there is no MALABSORPTION.. or interfering of other medication eg, ca, fe, and ppIs.

I take split dose of 20mg (was on 25mg split, but endo in Liverpool decreased me to 20mg)

With water wait an hour then have breakfast which ultimately comes right through me.. (diarrhea)

I never take any other medication anywhere near my T3 so we can rule that out.

So we are left with the MALABSORPTION issue which I feel is just one of the problems another being hypersensitive to this drug... Honestly I'm just having a rant as I'm getting nowhere with my surgery who don't consider this to be an emergency or a need to see the gp... 😢😠😠

[SlowDragon Administrator]

Request/insist on returning to Teva T3

Increase dose by 5mcg

Suggest you split as 10mcg waking, 10mcg early afternoon and 5mcg at bedtime

Retest in 6-8 weeks

Are you now on absolutely strictly dairy free diet

(No milk in tea ever)

[birkie in reply to SlowDragon]

Sorry for my late reply slowdragon, but I'm not at all well... Just recived my appointment for the stroke unit for a cadiotic doppler scan, it's on the same day I'm travelling to Liverpool for my parathyroid scan 8th of nov🤦‍♀️ eventho I specifically said don't make it for the 7 or 8th of nov🙄.Regarding the t3, changing to teva wouldn't be good as I was worse on teva, even vomiting on it, and I can't trilateral up any further than 20mg on Roma as I'm having lots of diarrhea /gut issues and what I can only describe as morning sickness felling , the more I try to increase the worse this issue becomes.

As I said, I did a trial off it and all symptoms went, diarrhea , cramps, inflammation felling sick, went back on started low dose, built up over the 2 wks and bang back to pain, cramps, diarrhea and inflammation... So I know it's definitely the t3 Roma causing the problem.

I have lactose free milk, no dairy whatsoever, keep a clean food pallet, but I know my food triggers, I never eat those foods.. "EVER" this all started when I was given anti thyroid drugs same symptoms, had thyroid removed, started on thyroid medication and symptoms remained.

I'm fairly sure the drug is flaring up my colitis,.. on my pet scan I had inflammation in my tonsils, lymph nodes, saliva glands, pritruitry gland and liver.. in brackets from consultant (inflammatory in nature) 🤷‍♀️

I'm speaking to the endo on Nov 15th about my scan results, eventho I'm not under her for my thyroid medication (parathyroid only) i am going to ask her if she can help me, as it was her who decrease me from 25mg to 20mg after seeing what I'm passing poo wise, and my T3 being 11.4🤦‍♀️😔 she is sure something is going on with me and this medication 👍