Bile acid malabsorption : I got diagnosed with... - IBS Network

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Bile acid malabsorption

Netbet22 profile image
3 Replies

I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right i know there is more going on and the weight lost is scary

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Netbet22
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Maggysav profile image
Maggysav

Hi I’ve had BAM for a few years now and I have lost weight too. I didn’t weigh very much before being diagnosed and now I weigh 43 kilos. Some people put weight on so it’s a bit bizarre! I developed BAM after cancer treatment. Im on binders too which help but still have terrible problems with urgency. I also take Imodium when I need to travel. My weight loss was fairly steady over a period of time but my GP doesn’t seem at all bothered! I was told to follow a low fat diet - no more than 40 grams of fat per day over 3 meals which is very hard to follow! Also you need to have yearly blood tests to check on your fat soluble vitamins as the medication can effect your body absorbing the goodness from your food. I have 3 monthly B12 injections. Good luck with your appointment in November.

Edgar77 profile image
Edgar77

I was diagnosed with BAM 3 years ago after the scans 1 week apart. The Docs are baffled because BAM causes diarrhoea but I suffer a lot from constipation?? Therefore I cannot take any of the usual medication for it. My IBS has Improved with diet but I still get a lot of embarrassing wind, to the point that sometimes I'm afraid to go out.

paraiba1 profile image
paraiba1

I have constant battle with very loose bowels etc.. I don't have a gallbladder either. Taking Colsevelam seems to help regulate bowel movement. Try it and see

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