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newly diagnosed
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Pink_piglet
in
Fibromyalgia Action UK
5 months ago
Simbrinza shortage?
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
meandpd
in
Glaucoma UK
6 months ago
Pregabalin
Has anyone had any experience of pregabalin becoming less effective? I was taking the maximum dose of 450 mg but I started to have breakthrough symptoms. I went to the GP who appeared horrified that I was taking Pregabalin. She said I must reduce it until I was not taking anymore and at the same time
Has anyone had any experience of pregabalin becoming less effective? I was taking the maximum dose of 450 mg but I started to have breakthrough symptoms. I went to the GP who appeared horrified that I was taking Pregabalin. She said I must reduce it until I was not taking anymore and at the same time
gobojo
in
Restless Legs Syndrome
5 months ago
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scared and worried
I will have to admit that I am very concerned about coming off the Ropinirole! After reading some of the experiences that some people have had it makes me wonder what will I go through. I know I’ve said this before but I’m just not sure I can do it. If I had some good support and help it would make it
I will have to admit that I am very concerned about coming off the Ropinirole! After reading some of the experiences that some people have had it makes me wonder what will I go through. I know I’ve said this before but I’m just not sure I can do it. If I had some good support and help it would make it
6236
in
Restless Legs Syndrome
5 months ago
EYE HEALTH: RELATIONSHIP OF PMR, PRED & MTX TO GLAUCOMA, CATARACTS, & DRY EYE
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
DrRon
in
PMRGCAuk
7 months ago
Corneal transplant
Hi all. A very happy Christmas to you all. I apologise if this is not an acceptable question on here as it is not related to RA but it is a great platform to air the question. I am desparately worried about my brother who needs a corneal transplant. Has anyone on here had one or knows of anyone who has
Hi all. A very happy Christmas to you all. I apologise if this is not an acceptable question on here as it is not related to RA but it is a great platform to air the question. I am desparately worried about my brother who needs a corneal transplant. Has anyone on here had one or knows of anyone who has
Sheila_G
in
NRAS
7 months ago
hcg test negative first FET @ 26 years old only one embryo
hello all if u have all been following my journey . It has been quite difficult , lost my baby at 21 weeks to fetal anomaly - no genetic conditions on my end or husbands end . It was a 3 day fresh transfer and worked first time we were so happy. it was a difficult time and had some hope in the
hello all if u have all been following my journey . It has been quite difficult , lost my baby at 21 weeks to fetal anomaly - no genetic conditions on my end or husbands end . It was a 3 day fresh transfer and worked first time we were so happy. it was a difficult time and had some hope in the
Hidden
in
Fertility Network UK
8 months ago
Sjogrens - Tooth Loss, Gum Disease
Hello, I'm new to this and hoping someone can help. I have Sjogrens and a couple of other autoimmune conditions. I experienced a dramatic deterioration with teeth and gums 2 years ago, dentist advised I would lose all my teeth within 6 months and because of the lack of saliva I could not get dentures
Hello, I'm new to this and hoping someone can help. I have Sjogrens and a couple of other autoimmune conditions. I experienced a dramatic deterioration with teeth and gums 2 years ago, dentist advised I would lose all my teeth within 6 months and because of the lack of saliva I could not get dentures
Crystal68
in
LUPUS UK
8 months ago
GCA or Dry eye pain
Yesterday was the first day both my eyes hurt. I have been having dry eyes and drops are not doing too much. The pain in both eyes feel like pressure or strain pain. I am worried not knowing if it’s just dry eyes or my GCA acting up. Currently taking 10 mg if prednisone since the last GCA temple pain
Yesterday was the first day both my eyes hurt. I have been having dry eyes and drops are not doing too much. The pain in both eyes feel like pressure or strain pain. I am worried not knowing if it’s just dry eyes or my GCA acting up. Currently taking 10 mg if prednisone since the last GCA temple pain
Plains
in
PMRGCAuk
7 months ago
German tara
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
Germantara
in
Lung Conditions Community Forum
7 months ago
My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
5 months ago
Possible relapse, trouble seeing Rheumatologist.
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
lollypocket
in
Vasculitis UK
7 months ago
RLS AND ANTIHISTAMINES
Could someone please advise an alternative to Fexofenadine as it has an effect on my Restless legs. Since stopping this drug my RLS has gone. I have spoken to my GP (UK) they said there is not and alternative to Fexofenadine that is 'non drowsy' on prescription. Thank you. Keith
Could someone please advise an alternative to Fexofenadine as it has an effect on my Restless legs. Since stopping this drug my RLS has gone. I have spoken to my GP (UK) they said there is not and alternative to Fexofenadine that is 'non drowsy' on prescription. Thank you. Keith
Keith1231
in
Restless Legs Syndrome
5 months ago
Restless Legs Syndrome Market Size, Epidemiology, Analysis & Trends 2024-2034
Then there is this - https://menafn.com/1107801564/Restless-Legs-Syndrome-Market-Size-Epidemiology-Analysis-Trends-2024-2034 BROOKLYN, NY, USA, February 2, 2024 /EINPresswire / -- Restless Legs Syndrome Market Overview: The restless legs syndrome market is expected to exhibit a CAGR of 2.49% during
Then there is this - https://menafn.com/1107801564/Restless-Legs-Syndrome-Market-Size-Epidemiology-Analysis-Trends-2024-2034 BROOKLYN, NY, USA, February 2, 2024 /EINPresswire / -- Restless Legs Syndrome Market Overview: The restless legs syndrome market is expected to exhibit a CAGR of 2.49% during
RLSLearner
in
Restless Legs Syndrome
6 months ago
Fostair & dry mouth
Just started Fostair nextinhaler this week whilst in hospital for acute severe asthma. Have a very dry mouth & angular stomatitis (cracks in corner of mouth). Does anyone else have the same issues?
Just started Fostair nextinhaler this week whilst in hospital for acute severe asthma. Have a very dry mouth & angular stomatitis (cracks in corner of mouth). Does anyone else have the same issues?
Easybreath
in
Asthma Community Forum
7 months ago
Migraine and visual hallucinations
I’ve suffered with migraines for many years since I was about 11 (I’m 35 now). Anyway as I’ve gotten older they’ve thankfully become less frequent and severe (though I take propranalol to prevent). I had an attack begin late last night with my usual blind spots and visual disturbance. It was bed time
I’ve suffered with migraines for many years since I was about 11 (I’m 35 now). Anyway as I’ve gotten older they’ve thankfully become less frequent and severe (though I take propranalol to prevent). I had an attack begin late last night with my usual blind spots and visual disturbance. It was bed time
PTNewbie
in
National Migraine Centre
7 months ago
Just diagnosed this week
Hi Glaucoma community,I have been diagnosed with early stage glaucoma this week, in one eye. I'm 46 years old, female. My eye pressures in both eyes were 21 - so borderline from what I understand. I had a central retinal vein occlusion in my right eye in 2016 and saw a consultant for18 months until it
Hi Glaucoma community,I have been diagnosed with early stage glaucoma this week, in one eye. I'm 46 years old, female. My eye pressures in both eyes were 21 - so borderline from what I understand. I had a central retinal vein occlusion in my right eye in 2016 and saw a consultant for18 months until it
Eyespy1
in
Glaucoma UK
7 months ago
PMR AND ANASTROZOLE
I had an operation for breast cancer (Mastectomy with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets. I have been told by my surgeon that Anastrozole can give the same side effects as PMR so has delayed the start of these tablets as I was
I had an operation for breast cancer (Mastectomy with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets. I have been told by my surgeon that Anastrozole can give the same side effects as PMR so has delayed the start of these tablets as I was
GwenTheHen16
in
PMRGCAuk
6 months ago
I found this little gem today
The conclusion expressed my frustration today. The paper covers everything from nicotine to yoga, supplements etc... "In conclusion, although there are more holes than cheese in Swiss cheese, the nonpharmacologic treatments for RLS are worth considering given the limitations and partial success of
The conclusion expressed my frustration today. The paper covers everything from nicotine to yoga, supplements etc... "In conclusion, although there are more holes than cheese in Swiss cheese, the nonpharmacologic treatments for RLS are worth considering given the limitations and partial success of
WideBody
in
Restless Legs Syndrome
6 months ago
extra fluid 24 weeks
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
AngelMum1
in
Pregnancy and Parenting Support
9 months ago
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