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Starting Pegasys soon
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
IsabelleHo
in
MPN Voice
7 months ago
RLS sufferer
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
Farmboy1
in
Restless Legs Syndrome
5 months ago
concerned
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
6236
in
Restless Legs Syndrome
5 months ago
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ThyroidDisease and Cataracts
Has anyone had any experience with developing cataracts and is there a potential link to thyroid disease? My ophthalmologist has told me my thyroid eye disease makes me a poor surgical candidate.and getting a second opinion is pretty much out of the question. I am 61 and an active sewer and the prospect
Has anyone had any experience with developing cataracts and is there a potential link to thyroid disease? My ophthalmologist has told me my thyroid eye disease makes me a poor surgical candidate.and getting a second opinion is pretty much out of the question. I am 61 and an active sewer and the prospect
Vernonwendy
in
Thyroid UK
7 months ago
Ropinerole
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
Marzipana
in
Restless Legs Syndrome
5 months ago
Update after stopping sertraline
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
Petru
in
Restless Legs Syndrome
5 months ago
ubiquinone vs ubiquinol
I have just realised my Coq10 I’ve been taking for three months is ubiquinone form. I just thought I was taking ubiquinol 😫 Been doing 300mg twice a day. I’m worried I’ve missed a trick now. I’ve ordered some ubiquinol now but I’m starting downreg in about three weeks. Thoughts please lovely people
I have just realised my Coq10 I’ve been taking for three months is ubiquinone form. I just thought I was taking ubiquinol 😫 Been doing 300mg twice a day. I’m worried I’ve missed a trick now. I’ve ordered some ubiquinol now but I’m starting downreg in about three weeks. Thoughts please lovely people
Cuppppatea
in
Fertility Network UK
7 months ago
Something I forgot to mention
I wrote about Toprol (Metoprol) a few minutes ago. I forgot to mention that I also take Flecainide, 100 mg. twice a day.
I wrote about Toprol (Metoprol) a few minutes ago. I forgot to mention that I also take Flecainide, 100 mg. twice a day.
Pommerania78
in
AF Association
7 months ago
Buprenorphine triggers RLS (briefly)?
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
707twitcher
in
Restless Legs Syndrome
5 months ago
Buprenorphine/Naloxone (Suboxone)
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Cashews
in
Restless Legs Syndrome
5 months ago
Mild Sjogrens? Is that a thing?
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
Hidden
in
Thyroid UK
1 year ago
Hi all
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Glenr78
in
Restless Legs Syndrome
5 months ago
Pramipexole - update
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
Lineker
in
Restless Legs Syndrome
5 months ago
Trabeculectomy at 18
Hi I had a Trabeculectomy back in July and sadly my vision has never been the same. The first few weeks my surgeon was surprised because everything went well, my vision was the same and my eye pressure dropped to a good level (13) from what it was (57). But afterwards my eye pressure dropped too low
Hi I had a Trabeculectomy back in July and sadly my vision has never been the same. The first few weeks my surgeon was surprised because everything went well, my vision was the same and my eye pressure dropped to a good level (13) from what it was (57). But afterwards my eye pressure dropped too low
Madara786
in
Glaucoma UK
7 months ago
Whose advice should I follow?
I had a trabeculectomy 18 months ago. Last July I went to a Moorfields virtual clinic for monitoring. I received a letter from the doctor a few days later to say that my visual field on the operated eye was gradually worsening & that I would be seen at the Consultant led clinic four months later. I
I had a trabeculectomy 18 months ago. Last July I went to a Moorfields virtual clinic for monitoring. I received a letter from the doctor a few days later to say that my visual field on the operated eye was gradually worsening & that I would be seen at the Consultant led clinic four months later. I
YoungontheOutside
in
Glaucoma UK
7 months ago
Checking medication
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
restlessstoz
in
Restless Legs Syndrome
5 months ago
Belbuca vs. Suboxone
I’m in the US (CA). I’ve been on Suboxone for two months and it handles my RLS quite well. I’m currently taking about .4 mg (1/5 of a 2mg strip) nightly. I’ve gotten over the tiredness that arose for the first month or so, but the constipation is no fun. I’ve read one study that says buccal applications
I’m in the US (CA). I’ve been on Suboxone for two months and it handles my RLS quite well. I’m currently taking about .4 mg (1/5 of a 2mg strip) nightly. I’ve gotten over the tiredness that arose for the first month or so, but the constipation is no fun. I’ve read one study that says buccal applications
707twitcher
in
Restless Legs Syndrome
5 months ago
Opioids for refractory RLS-Dr Berkowski
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
Joolsg
in
Restless Legs Syndrome
5 months ago
SIBO!!! But fearing taking antibiotics, especially Neomicyn… I’ve heard of terrible side effects ( tinnitus and hearing loss).
Hello, here is my doctor's report: ''The report of your hydrogen and methane breath test is positive, both for small intestinal bacterial overgrowth as well as excessive methane-producing bacteria in the large bowel. It may be sensible to consider treatment with non-absorbable antibiotics. If you would
Hello, here is my doctor's report: ''The report of your hydrogen and methane breath test is positive, both for small intestinal bacterial overgrowth as well as excessive methane-producing bacteria in the large bowel. It may be sensible to consider treatment with non-absorbable antibiotics. If you would
Clara62
in
IBS Network
7 months ago
Covid restless leg
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
Ciciskinner
in
Restless Legs Syndrome
5 months ago
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