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Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
5 months ago
Is it time to swap from Gabapentin to Pregabalin?
I’m up to 1800mg (6pm/8pm/10pm) of gabapentin now with one 30mg dihydrocodeine. Waking 3 times a night and now sometimes needing a second dihydrocodeine as the legs are bad. Wondering what are my best next steps. Im thinking Pregabalin. I know you get the equivalent dose but would you ask for the same
I’m up to 1800mg (6pm/8pm/10pm) of gabapentin now with one 30mg dihydrocodeine. Waking 3 times a night and now sometimes needing a second dihydrocodeine as the legs are bad. Wondering what are my best next steps. Im thinking Pregabalin. I know you get the equivalent dose but would you ask for the same
Islay9
in
Restless Legs Syndrome
27 days ago
Methadone or Buprenorphine?
I have been on morphine successfully some years for severe RLS. However I'm beginning to think I need a change of meds. Opioid induced insomnia has gradually worsened so that I'm surviving on about 2 hours sleep now. I'm thinking of asking for either methadone or buprenorphine .I 've been thinking
I have been on morphine successfully some years for severe RLS. However I'm beginning to think I need a change of meds. Opioid induced insomnia has gradually worsened so that I'm surviving on about 2 hours sleep now. I'm thinking of asking for either methadone or buprenorphine .I 've been thinking
Jumpey
in
Restless Legs Syndrome
28 days ago
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SEVERE NIGHT TIME LEG CRAMPS
I HAVE HAD RESTLESS LEGS SINCE I WAS 40 YEARS OLD & I AM NOW 88YEARS OLD. I HAD BEEN TAKING PRAMIPEXOLE 1.5 MG ALL THESE YEARS, BUT RECENTLY IT NO LONGER WAS HELPING ME. I WAS PUT ON ROPINIROLE 1MG BID WHICH DID NOT HELP & NOW I'M ON 2MG AM PM. I WAS HAVING SO MUCH BURNING IN BOTH MY LEGS & NUMBNESS
I HAVE HAD RESTLESS LEGS SINCE I WAS 40 YEARS OLD & I AM NOW 88YEARS OLD. I HAD BEEN TAKING PRAMIPEXOLE 1.5 MG ALL THESE YEARS, BUT RECENTLY IT NO LONGER WAS HELPING ME. I WAS PUT ON ROPINIROLE 1MG BID WHICH DID NOT HELP & NOW I'M ON 2MG AM PM. I WAS HAVING SO MUCH BURNING IN BOTH MY LEGS & NUMBNESS
Big4844
in
Restless Legs Syndrome
28 days ago
Dancing queen
Hi everyone l have had severe restless legs most of my life even before they gave it this name l have been on many opioids which no-one should be prescribed has this particular medication doesn't help as with time this medications dosage as to be increased to a point where you cannot take anymore and
Hi everyone l have had severe restless legs most of my life even before they gave it this name l have been on many opioids which no-one should be prescribed has this particular medication doesn't help as with time this medications dosage as to be increased to a point where you cannot take anymore and
D4nc1ngqu33m
in
Restless Legs Syndrome
30 days ago
EXCESSIVE WATERING EYES
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
Ella59
in
Glaucoma UK
5 months ago
IOP question
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Our-poor-guys
in
Glaucoma UK
5 months ago
Methadone transition
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
Steino
in
Restless Legs Syndrome
1 month ago
I finally got my sublingual buprenorhine!
Hi everybody! Thanks to this forum I finally got a neurologist who was willing to prescribe me 0.2mg sublingual buprenorphine tablets. I've been on 100 tramadol for two weeks and was wondering which would be the wiser way of switching from one to the other and finding the right dose. I'm a bit worried
Hi everybody! Thanks to this forum I finally got a neurologist who was willing to prescribe me 0.2mg sublingual buprenorphine tablets. I've been on 100 tramadol for two weeks and was wondering which would be the wiser way of switching from one to the other and finding the right dose. I'm a bit worried
Anthas
in
Restless Legs Syndrome
1 month ago
How accurate is a visual field test?
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Mitziecat
in
Glaucoma UK
5 months ago
Edoxaban and dreams and nightmares
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
BenHall1
in
Atrial Fibrillation Support
5 months ago
Drug rash from Gabapentin/Dihydrocodeine? Anyone else?
In the past month I’ve noticed a drug rash from Gabapentin and/or Dihydrocodeine. It’s on my face and neck and chest. It’s not itchy but is hot and comes on after my last dose at bedtime. It’s not anaphylaxis (I’m a retired Paramedic) but just wondered if anyone else had experienced this? Thank you
In the past month I’ve noticed a drug rash from Gabapentin and/or Dihydrocodeine. It’s on my face and neck and chest. It’s not itchy but is hot and comes on after my last dose at bedtime. It’s not anaphylaxis (I’m a retired Paramedic) but just wondered if anyone else had experienced this? Thank you
Islay9
in
Restless Legs Syndrome
1 month ago
cosopt preservative free
hello all, I have been on cosopt preservative free eye drops now since November…. previously I was on all sorts of drops after having a laser iridotomy, an enlargement and subsequently now have high eye pressures which the cosopt eye drops are controlling. With the eye drop my pressures at the latest
hello all, I have been on cosopt preservative free eye drops now since November…. previously I was on all sorts of drops after having a laser iridotomy, an enlargement and subsequently now have high eye pressures which the cosopt eye drops are controlling. With the eye drop my pressures at the latest
KBIOW
in
Glaucoma UK
2 months ago
Ropinirole. Lovely Ropinirole.
Hello, I have had RLS of steadily increasing worsity for over fifty years. For the last twenty I have been taking increasing doses of Ropinirole, and for the last ten have been on 4mg a day with great success except of course for never sitting still for long, never travelling far in a car, NEVER going
Hello, I have had RLS of steadily increasing worsity for over fifty years. For the last twenty I have been taking increasing doses of Ropinirole, and for the last ten have been on 4mg a day with great success except of course for never sitting still for long, never travelling far in a car, NEVER going
Hidden
in
Restless Legs Syndrome
1 month ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
5 months ago
add injury to my misery
I have had RLS for around 40 years. I was on ropineral for about 20 years and was taken off by Dr. B around 3 years ago. I tried methadone ( didn’t like the drug hangover), oxycodone ( worked fairly well for about 8 months) and am now on Buprenorphine/Naloxone sublingual film 1/5 or 1/4 of a film in
I have had RLS for around 40 years. I was on ropineral for about 20 years and was taken off by Dr. B around 3 years ago. I tried methadone ( didn’t like the drug hangover), oxycodone ( worked fairly well for about 8 months) and am now on Buprenorphine/Naloxone sublingual film 1/5 or 1/4 of a film in
Crazygrl
in
Restless Legs Syndrome
2 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
5 months ago
Webinar: Is it possible to slow myopia progression in childhood and adolescence?
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Carol_MacularSociety
Partner
in
Macular Society
5 months ago
pramipexole
I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist tried me on Ropinirole which caused hallucinations. I am back on Pramipexole and during my years on it have suffered from overeating and excessive
I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist tried me on Ropinirole which caused hallucinations. I am back on Pramipexole and during my years on it have suffered from overeating and excessive
Onion01
in
Restless Legs Syndrome
2 months ago
PLMD and RLS Update
25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for
25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for
vikkitennis
in
Restless Legs Syndrome
2 months ago
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