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3 years Runniversary
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
Yesletsgo
Graduate
in
Couch to 5K
5 months ago
Methadone transition
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
Steino
in
Restless Legs Syndrome
5 days ago
I finally got my sublingual buprenorhine!
Hi everybody! Thanks to this forum I finally got a neurologist who was willing to prescribe me 0.2mg sublingual buprenorphine tablets. I've been on 100 tramadol for two weeks and was wondering which would be the wiser way of switching from one to the other and finding the right dose. I'm a bit worried
Hi everybody! Thanks to this forum I finally got a neurologist who was willing to prescribe me 0.2mg sublingual buprenorphine tablets. I've been on 100 tramadol for two weeks and was wondering which would be the wiser way of switching from one to the other and finding the right dose. I'm a bit worried
Anthas
in
Restless Legs Syndrome
6 days ago
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Diabetic Macular Ischemia
hi all just wondering if anyone has had ischemia in their good eye it looks like that is what I have had for a while but now it’s much worse and just wondered if anyone has been told they had it in both eyes and therefore the eye injections are not working. I can’t have steroids as I am a steroid responder
hi all just wondering if anyone has had ischemia in their good eye it looks like that is what I have had for a while but now it’s much worse and just wondered if anyone has been told they had it in both eyes and therefore the eye injections are not working. I can’t have steroids as I am a steroid responder
tallyho
in
Macular Society
5 months ago
Drug rash from Gabapentin/Dihydrocodeine? Anyone else?
In the past month I’ve noticed a drug rash from Gabapentin and/or Dihydrocodeine. It’s on my face and neck and chest. It’s not itchy but is hot and comes on after my last dose at bedtime. It’s not anaphylaxis (I’m a retired Paramedic) but just wondered if anyone else had experienced this? Thank you
In the past month I’ve noticed a drug rash from Gabapentin and/or Dihydrocodeine. It’s on my face and neck and chest. It’s not itchy but is hot and comes on after my last dose at bedtime. It’s not anaphylaxis (I’m a retired Paramedic) but just wondered if anyone else had experienced this? Thank you
Islay9
in
Restless Legs Syndrome
11 days ago
Ropinirole. Lovely Ropinirole.
Hello, I have had RLS of steadily increasing worsity for over fifty years. For the last twenty I have been taking increasing doses of Ropinirole, and for the last ten have been on 4mg a day with great success except of course for never sitting still for long, never travelling far in a car, NEVER going
Hello, I have had RLS of steadily increasing worsity for over fifty years. For the last twenty I have been taking increasing doses of Ropinirole, and for the last ten have been on 4mg a day with great success except of course for never sitting still for long, never travelling far in a car, NEVER going
Hidden
in
Restless Legs Syndrome
12 days ago
Running after Retinal tear surgery
Hi everyone, I've had two retinal tears to my right eye in the space of 10 weeks and have had subsequent laser surgery for both tears. With the first tear, I waited at least 5 weeks, before I went back to running and had experienced my second tear at work and not whilst running. Has anyone had a retinal
Hi everyone, I've had two retinal tears to my right eye in the space of 10 weeks and have had subsequent laser surgery for both tears. With the first tear, I waited at least 5 weeks, before I went back to running and had experienced my second tear at work and not whilst running. Has anyone had a retinal
mcgu
in
Couch to 5K
5 months ago
add injury to my misery
I have had RLS for around 40 years. I was on ropineral for about 20 years and was taken off by Dr. B around 3 years ago. I tried methadone ( didn’t like the drug hangover), oxycodone ( worked fairly well for about 8 months) and am now on Buprenorphine/Naloxone sublingual film 1/5 or 1/4 of a film in
I have had RLS for around 40 years. I was on ropineral for about 20 years and was taken off by Dr. B around 3 years ago. I tried methadone ( didn’t like the drug hangover), oxycodone ( worked fairly well for about 8 months) and am now on Buprenorphine/Naloxone sublingual film 1/5 or 1/4 of a film in
Crazygrl
in
Restless Legs Syndrome
15 days ago
pramipexole
I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist tried me on Ropinirole which caused hallucinations. I am back on Pramipexole and during my years on it have suffered from overeating and excessive
I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist tried me on Ropinirole which caused hallucinations. I am back on Pramipexole and during my years on it have suffered from overeating and excessive
Onion01
in
Restless Legs Syndrome
18 days ago
PLMD and RLS Update
25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for
25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for
vikkitennis
in
Restless Legs Syndrome
18 days ago
Weird eyes
I have a mixed bag of symptoms, some classic hypo but others not so like weight loss and weird eyes. Sort of a bit staring and glassy looking. I have dry eyes and got told I had blepharitis but am careful to keep eyes clean and am on top of this. There not bulgy as such but can you have a mixture of
I have a mixed bag of symptoms, some classic hypo but others not so like weight loss and weird eyes. Sort of a bit staring and glassy looking. I have dry eyes and got told I had blepharitis but am careful to keep eyes clean and am on top of this. There not bulgy as such but can you have a mixture of
Fizzwhizz
in
Thyroid UK
5 months ago
Thyroxine uptake and Ehlers Danlos Syndrome
Hi all, any experience or advice on this would be much appreciated. I have been on thyroxine for 25 years since having Hashimotos at the age of 29. I've also been diagnosed a while ago with Ehlers Danlos Syndrome and Fibromyalgia (both connective tissue disorders.) My new GP is messing about with
Hi all, any experience or advice on this would be much appreciated. I have been on thyroxine for 25 years since having Hashimotos at the age of 29. I've also been diagnosed a while ago with Ehlers Danlos Syndrome and Fibromyalgia (both connective tissue disorders.) My new GP is messing about with
hcmoss68
in
Thyroid UK
21 days ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
5 months ago
7 days off Pramipexole
Two months ago I finally found a doctor (addiction specialist) who read all the literature I gave him (from this site) and he was very understanding and prescribed me the suboxone film. I’m taking 1/7 of the film each day and it has enabled me to get to this point of no Pramipexole! I kinda thought
Two months ago I finally found a doctor (addiction specialist) who read all the literature I gave him (from this site) and he was very understanding and prescribed me the suboxone film. I’m taking 1/7 of the film each day and it has enabled me to get to this point of no Pramipexole! I kinda thought
Itsatom
in
Restless Legs Syndrome
22 days ago
For those considering methadone
hi again everyone, I just want to give a quick update for anyone who may be considering methadone. After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to
hi again everyone, I just want to give a quick update for anyone who may be considering methadone. After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to
Mongolia2020
in
Restless Legs Syndrome
22 days ago
HELP Please
How do I find a GP who knows about RLS. I have been back again to my GP as I'm now in server pain all the time which has sent my RLS into overdrive, I'm not sure if I'm in augmentation, she said she would give me an antidepressant to lift my mood!!. I explained that they will make my RLS worse and
How do I find a GP who knows about RLS. I have been back again to my GP as I'm now in server pain all the time which has sent my RLS into overdrive, I'm not sure if I'm in augmentation, she said she would give me an antidepressant to lift my mood!!. I explained that they will make my RLS worse and
Marymill
in
Restless Legs Syndrome
23 days ago
Exercise that often helps
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Cedarish
in
Restless Legs Syndrome
24 days ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
27 days ago
Anyone else had this?
Hi everyone I am due my 10 weekly jab next week. Life has been hectic recently so I accept being really exhausted but I have come out in a very itchy rash on my back and arms plus I have really itchy red eyes. Not a pretty sight!!! Anyone else experienced anything similar? Thank you. Xx
Hi everyone I am due my 10 weekly jab next week. Life has been hectic recently so I accept being really exhausted but I have come out in a very itchy rash on my back and arms plus I have really itchy red eyes. Not a pretty sight!!! Anyone else experienced anything similar? Thank you. Xx
Mrsmr
in
Pernicious Anaemia Society
5 months ago
levodopa and augmentation
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
Covenant1962
in
Restless Legs Syndrome
29 days ago
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